re: Checking In :(

[Guest guest]

The numbness that was originally in only my right foot and calf has

now spread all the way up to my hips. This change happened towards

the middle of January and has only gotten worse. I'm worried. My PT

I've been seeing has recommended I see a physiatrist who can better

help me " manage " my care and assist me further -- so I do not have to

go on my own alone -- as I have been for the past 12 years. I meet

with her, Dr. Alison Baker on this Thursday for an EMG. Who here has

had one before. What does this test consist of and what is it like,

what should I expect? I'm feeling a bit overwhelmed. I see Dr. ,

my neurosurgeon a week from this Wednesday at Boston Children's

Hospital to go over the results and to check in and see what he has

to say. I no longer have a neurologist assisting with my care -- as

she just left town and no one really knows why. My PT's concerned I'm

taking on too much and said a physiatrist's job is to intervene when

surgery is no longer an option for people and to make the appropriate

recommendations and allow everyone (my current doctors, specialists,

therapists to work as a team.) This is all new. And lastly, I've re-

tethered. Once again, the radiologist at my small local hospital did

not pick up on it and I was not made aware until my neurosurgeon e-

mailed me after he reviewed all my records & films at my original

neurosurgeon's request *as I wrote my first neurosurgeon for help and

advice *

On the Mom front. She was scheduled for a lumpectomy on Tuesday but

when we went for testing on Thursday at Mass General they found two

other masses on her left breast and she's going back to Mass General

on this Wednesday for an MRI guided biopsy to rule out more cancer.

If the other two masses are malignant she will need a mastectomy. So,

I would appreciate all the good positive thoughts and prayers you are

willing to give/share.

I otherwise, hope everyone is well and continuing to heal.

Warmly,