tethered cord- bladder problem alongside

[Guest guest]

Hi my daughter is 19 months old and has a lipomyleomeningocele spina

bifida and tethered cord. She has had the odd wee spot so she ha a e

bladder test which came back that she wasnt empyint it all and her dr

said surhery is for her to try and relieve her cord and the blader

issues.

It is booked for next week, i am dreading it i must say she has already

had surgery at a few days old but i dont want it to make her worse,

HELP/

Kat

[Guest guest]

Just wanted to encourage you with your daughter's recent tethered cord/bladder

issues finding. I suspected a tethered cord in my son for over 2 yrs. and it

took that long to get medical backup to move forward with the surgery. We lost

a lot of time in regards to his bladder control and walking capabilities. I'm

grateful for you it was diagnosed so soon. Best wishes for you and know that my

son had a double brain surgery/tethered cord release at that same time. It was

really hard but he made it through and we have seen improvements since. There

are a lot of wonderful folks who will continue to advise and encourage you

during your hospital stay if you should choose to move forward with having the

surgery.

God bless,

Debbie & Ben 4 1/2 yrs. (Down Syndrome, Hydrocephalus, fatty filum tethered

cord, Hirschsprung's Disease, etc.)

robson_kathryn wrote:

Hi my daughter is 19 months old and has a lipomyleomeningocele spina

bifida and tethered cord. She has had the odd wee spot so she ha a e

bladder test which came back that she wasnt empyint it all and her dr

said surhery is for her to try and relieve her cord and the blader

issues.

It is booked for next week, i am dreading it i must say she has already

had surgery at a few days old but i dont want it to make her worse,

HELP/

Kat