Diagnosing a Tethered Cord?

[Guest guest]

The MRI does show the tether frequently though one can be tethered without

it showing up on occasion. Problem is once it shows the tether, future MRI's

are not as useful since it will always looked tethered. randee

In a message dated 12/14/2008 9:29:31 P.M. Eastern Standard Time,

ltbunny192@... writes:

My MRI report actually stated a tethered cord. When they did my

surgery I had a double. So I guess it depends on how good the

radiolgist reading it is and if they have seen it. My MRI from nj said

nothing brought the films to NYC hospital it was the first thing he

pointed out.

This message was sent from an iphone and may not display correctly.

On Dec 14, 2008, at 8:58 PM, " katwrangler2007 " <_ChocolateKat@Chocola_

(mailto:ChocolateKat@...) >

wrote:

> Can you truly see a tethered cord on an MRI? Or is it guessing by

> symptoms? Are there other methods of medical equipment that can be

> used?

>

> This question has been floating in my head and I thought I would ask

> you guys. LOL

>

> Anne

> Mama to Conner, le and Delaney

>

>

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[Guest guest]

Can you truly see a tethered cord on an MRI? Or is it guessing by

symptoms? Are there other methods of medical equipment that can be

used?

This question has been floating in my head and I thought I would ask

you guys. LOL

Anne

Mama to Conner, le and Delaney

[Guest guest]

My MRI report actually stated a tethered cord. When they did my

surgery I had a double. So I guess it depends on how good the

radiolgist reading it is and if they have seen it. My MRI from nj said

nothing brought the films to NYC hospital it was the first thing he

pointed out.

This message was sent from an iphone and may not display correctly.

On Dec 14, 2008, at 8:58 PM, " katwrangler2007 "

wrote:

> Can you truly see a tethered cord on an MRI? Or is it guessing by

> symptoms? Are there other methods of medical equipment that can be

> used?

>

> This question has been floating in my head and I thought I would ask

> you guys. LOL

>

> Anne

> Mama to Conner, le and Delaney

>

>

[Guest guest]

As others have stated, yes, you can see it on mri. My daughters neurologist

actually read her mri. But to answer ur other question... they can also use

ultrasound. Although picture quality is not nearly as good as the mri.

Sent from my Verizon Wireless BlackBerry

Diagnosing a Tethered Cord?

Can you truly see a tethered cord on an MRI? Or is it guessing by

symptoms? Are there other methods of medical equipment that can be

used?

This question has been floating in my head and I thought I would ask

you guys. LOL

Anne

Mama to Conner, le and Delaney

[Guest guest]

my daughter at 3 months had an ultrasound done. The radiologist didn't see

anything and thought she had a lump of fat on her butt.  It wasn't until she was

2 years old that we decided the lump was not normal, so we saw a pediatric

dermatologist who recommend an MRI and said that she has seen this before. 

Turns out she did have tethered cord and she just had it released a month ago.

 

Even though the ultrasound is 'cheaper', I would push for the MRI(if you see a

lipoma), because there are things the MRI can see more than an ultrasound.

Subject: Re: Diagnosing a Tethered Cord?

To: tetheredspinalcord

Date: Sunday, December 14, 2008, 10:04 PM

As others have stated, yes, you can see it on mri. My daughters neurologist

actually read her mri. But to answer ur other question... they can also use

ultrasound. Although picture quality is not nearly as good as the mri.

Sent from my Verizon Wireless BlackBerry

Diagnosing a Tethered Cord?

Can you truly see a tethered cord on an MRI? Or is it guessing by

symptoms? Are there other methods of medical equipment that can be

used?

This question has been floating in my head and I thought I would ask

you guys. LOL

Anne

Mama to Conner, le and Delaney

[Guest guest]

's Neurosurgeon Dr. Frim does a prone MRI. When the MRI is almost finished

they flip her over to her stomach. Your cord falls normally, but if you are

tethered the cord does not move. I have actually seen it on the MRI. It is

pretty cool, in a diagnostic kind of way!

 

Good luck,

Tommi

www.caringbridge.org/visit/amandapeters

From: nunubrownie@ yahoo.com <nunubrownie@ yahoo.com>

Subject: Re: Diagnosing a Tethered Cord?

To: tetheredspinalcord@ yahoogroups. com

Date: Sunday, December 14, 2008, 10:04 PM

As others have stated, yes, you can see it on mri. My daughters neurologist

actually read her mri. But to answer ur other question... they can also use

ultrasound. Although picture quality is not nearly as good as the mri.

Sent from my Verizon Wireless BlackBerry

Diagnosing a Tethered Cord?

Can you truly see a tethered cord on an MRI? Or is it guessing by

symptoms? Are there other methods of medical equipment that can be

used?

This question has been floating in my head and I thought I would ask

you guys. LOL

Anne

Mama to Conner, le and Delaney

[Guest guest]

Thank you for posting this. I am working on getting into OU's Spina Bifida

clinic and maybe I can get one done like this.     

From: nunubrownie@ yahoo.com <nunubrownie@ yahoo.com>

Subject: Re: Diagnosing a Tethered Cord?

To: tetheredspinalcord@ yahoogroups. com

Date: Sunday, December 14, 2008, 10:04 PM

As others have stated, yes, you can see it on mri. My daughters neurologist

actually read her mri. But to answer ur other question... they can also use

ultrasound. Although picture quality is not nearly as good as the mri.

Sent from my Verizon Wireless BlackBerry

Diagnosing a Tethered Cord?

Can you truly see a tethered cord on an MRI? Or is it guessing by

symptoms? Are there other methods of medical equipment that can be

used?

This question has been floating in my head and I thought I would ask

you guys. LOL

Anne

Mama to Conner, le and Delaney

[Guest guest]

Anne,

You can see TC on MRI, although it is possible to have TC and have a

negative MRI. The likelihood of a false negative is always there. I don’t

know that I’ve ever heard of anyone having a false positive for TC with MRI.

But lots of false negatives. In the case of a false negative, the

neurosurgeon just has to go by symptoms the patient is experiencing. For

example, my TC, diastematomyelia and SBO were all visible on my first MRI.

Then I had surgery. 4 months post-op, I was experiencing the same symptoms

again. The surgeon who did my surgery said I was fine and wrote me off, even

discharging me from his practice (unless I developed some other kind of

problem all together). At about 6 months post op, I was desperate for

answers and found a pedi neurosurgeon who said that it was pretty likely

that I was retethered. Although he could not tell on MRI, my symptoms spoke

for what was not visible on the scan. The problem with seeing TC after

surgery is that the scar tissue can almost always make the person look

tethered. The scar tissue creates a new tether. The question is whether or

not that new tether is actually symptomatic or not. Is it causing the

problem or something else. Fortunately, the pedi neurosurgeon I found was

very astute and identified the problem. I waited 1 ½ yrs to have the second

surgery and when he went in, it was much more complex than he anticipated.

He said it looked like someone poured super glue in my back there was so

much scar tissue.

Jenn

From: tetheredspinalcord

[mailto:tetheredspinalcord ] On Behalf Of katwrangler2007

Sent: Sunday, December 14, 2008 8:58 PM

To: tetheredspinalcord

Subject: Diagnosing a Tethered Cord?

Can you truly see a tethered cord on an MRI? Or is it guessing by

symptoms? Are there other methods of medical equipment that can be

used?

This question has been floating in my head and I thought I would ask

you guys. LOL

Anne

Mama to Conner, le and Delaney

[Guest guest]

My daughter had an US very early after birth and it was fine. I

pushed for an MRI at 9 months and she did have a tethered Cord. I

would also push for an MRI

>

>

> Subject: Re: Diagnosing a Tethered Cord?

> To: tetheredspinalcord

> Date: Sunday, December 14, 2008, 10:04 PM

>

>

>

>

>

>

> As others have stated, yes, you can see it on mri. My daughters

neurologist actually read her mri. But to answer ur other question...

they can also use ultrasound. Although picture quality is not nearly

as good as the mri.

> Sent from my Verizon Wireless BlackBerry

>

> Diagnosing a Tethered Cord?

>

> Can you truly see a tethered cord on an MRI? Or is it guessing by

> symptoms? Are there other methods of medical equipment that can be

> used?

>

> This question has been floating in my head and I thought I would

ask

> you guys. LOL

>

> Anne

> Mama to Conner, le and Delaney

>

>