Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 Yay is right! Good luck, ! In a message dated 11/14/2008 9:24:47 A.M. Eastern Standard Time, livedream_believe@... writes: Hi this is . Just wanted to share some good news. I have been trying to find an OTCS specialist and have only been able to find them on the East Coast. Finally, I have located one in Aurora, CO (I am in OK but its still closer than the coast) His name is Dr. Oro' and he runs a Chiari Center that also deals with Syringomelia and TCS/OTCS. AND not only did I find him but he has agreed to cosult with me as a self-referral with no insurance!! For those of you with insurance you may not realize it but it is almost impossible to get in to see a specialist without it, heck it is even hard to get in to see a family doc without it! I am soooo excited. I have to gather my films and send them to him with a small fee and he will examine them and then we can arrange an appointment. It means a flight, but it will hopefully give me the evidence (expert opinion) that I need to fight the disability insurance and social security appeals. Not to mention that if and when I do get insurance, he also does the minimally invasive surgery..and they have a pain clinic so maybe they will have some suggestions on how to deal with this pain until I can have surgery. YAY!!! Some light at the end of the tunnel! **************Get the Moviefone Toolbar. Showtimes, theaters, movie news & more!(http://pr.atwola.com/promoclk/100000075x1212774565x1200812037/aol?redir=ht\ t p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 , That is wonderful that you were able to find a MD with the experience you need, and will see you without insurance. Although it may be hard to find a specialist that you hand pick that will see you without insurance (unless you can pay up front), there are ways to get care. For example, if I didn't have insurance, I could go to the local public hospital (Grady, in Atlanta. Charity in New Orleans - but closed after Katrina - those are just the only 2 I know of). Public hospitals get subsidies from the county and state to pay for indigent care (for example, Grady is subsidized by Fulton and DeKalb counties - even though all of metro Atl relies on its services - but that' s another story). If a person were taken to an ER, any hospital has to stabilize them, but if they require further hospitalization, they will be transferred to the public hospital for care. If a person is not having symptoms serious enough to warrant an ER visit, they can always call their local public hospital info line and get information about how to see one of their MDs for non-emergency treatment. If there is just a general info # and the operator doesn't know who to transfer you to, request to speak with someone in social services or patient advocacy, etc. Even if someone manages to get treatment at a private hospital, they can notify the hospital that they are indigent. Then, they will negotiate with the hospital to either pay a reduced amount or write off the balance entirely. I'm positive its not the most efficient process or very easy, and it may take a little time and hard work to see someone, but it is possible. But I'm so happy that you've found someone to help you. I hope you have a great consult and think this MD is a good match for you. jenn From: tetheredspinalcord [mailto:tetheredspinalcord ] On Behalf Of livedream_believe Sent: Friday, November 14, 2008 9:24 AM To: tetheredspinalcord Subject: Great News!!!! Hi this is . Just wanted to share some good news. I have been trying to find an OTCS specialist and have only been able to find them on the East Coast. Finally, I have located one in Aurora, CO (I am in OK but its still closer than the coast) His name is Dr. Oro' and he runs a Chiari Center that also deals with Syringomelia and TCS/OTCS. AND not only did I find him but he has agreed to cosult with me as a self-referral with no insurance!! For those of you with insurance you may not realize it but it is almost impossible to get in to see a specialist without it, heck it is even hard to get in to see a family doc without it! I am soooo excited. I have to gather my films and send them to him with a small fee and he will examine them and then we can arrange an appointment. It means a flight, but it will hopefully give me the evidence (expert opinion) that I need to fight the disability insurance and social security appeals. Not to mention that if and when I do get insurance, he also does the minimally invasive surgery..and they have a pain clinic so maybe they will have some suggestions on how to deal with this pain until I can have surgery. YAY!!! Some light at the end of the tunnel! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 I think you are in great hands with Dr. Oro. I have heard he is wonderful, and he was second on my list to try to see. However, since I live near Miami, that was my first option, and I had detethering surgery there this past May. Good luck with Dr. Oro! Patty Quote Link to comment Share on other sites More sharing options...
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