Re: (tsc)

November 12, 2008

Hi , here is a link to the video...http://www.chiariin stitute.com/

video-popup. html

Subject:

Date: Wednesday, November 12, 2008, 7:21 AM

Hey ,

I couldnt see the links that you talked about.

Can you send them to me ?

I would really like to see that video..

Sincerly

Sylvia

August 6, 2009

Judy -

I realize my reply is quite late. Hopefully she has found help and a

diagnosis by now. If she hasn't found an answer yet, here is something to

think about. How does she know it is a spinal headache? If she has a disc

problem, she may be compensating and have muscle problems in her neck, which

can cause headaches. Also, pain in the neck, if constant, can radiate to the

head. Her headache may not be " spinal " in origin (in the sense that we think

of spinal headaches in relation to TSC - related to CSF. A disc problem

generally will not affect CSF flow. Its possible, just not probable).

I hope she has found a MD to help her out by now. Isn't the NIH there in the

DC area? Do they have MDs there? If not, I'm sure they have a way to get a

referral to a local MD. town University has a hospital. I would think

their MDs would be pretty good. They probably have a referral line where

people can get referrals to an appropriate MD. You might want to give them a

call. Just a thought

Jenn

Hi it is Judy. I need help please. My 30 yr old grandaughter lives in

Sterling, VA. She has a disc problem in her neck with no specific

diagnosis. She cannot find a dr to help This has been going on for over a

year. She has a spinal headache for over three weeks. She has two small

children and is pregnant so cannot even take pain meds. Can anyone

recommend a neurologist in the Washington, DC Baltimore area? I am really

worried about her. Thank you for an information you can provide.

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