AFTER TETHEREDCORD SURGERY

[Guest guest]

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> Subject: New Mom here!

> To: tetheredspinalcord

> Date: Monday, July 28, 2008, 4:17 AM

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> Hello All

> My name is Jane and I am a proud Mama to Madeline (Maddie). We

> adopted Maddie in January from China. We knew prior to adopting her

> that she had " spinal issues. " China called it a 'cracked spine.'

> Shortly after bringing her home we brought her to Children's Hospital

> of Philly and she was diagnosed with SBO (at her L5) and Tethered

> Cord. She had a dermal sinus tract on her back.

> Maddie had her detether surgery on April 2, 2008. It turned out she

> was tethered in two places, the spot of the tract and at her filum.

> It was a long 4 days post surgery, but since then she's turned into a

> much happier and mobile kid! With some help from PT she has gained

> excellent trunk control and is considered to be developing normally!

> We have noticed post surgery that she has grown almost 2 inches! Wow!

> While she is doing awesome, I obviously continue to have concerns for

> her as she grows up. I am hoping you all can help me when I have

> questions. Right now I am wondering how I will know if she retethers

> and what her future prognosis is. Her neurosurgeon says she's got a

> great prognosis.

> Our only concern main right now is her chronic constipation. We are

> not sure if it is related to her tethered cord or her diet. Coming

> from China she didn't eat a lot of fruit. We have slowly been

> introducing that to her, with some resistance. She does eat veggies,

> but is still pretty constipated. I'd like to stay away from meds for

> her, if I can.

> Our other concern is how we should protect her back and incision. She

> has healed beautifully, but the other day her brother accidently hit

> her in the back with his bike and I FREAKED out, it worried me so

> much. She seemed fine though...

> Please feel free to give me advice, thoughts, concerns...it would

> help a lot!

> Jane

> I HAD SURGERY ON THE 7TH OF JULY . DUE TO SOME OF MY COMPLAINS THE

DR MAILED ME SOME RX ,ONE WAS A MRI. I HAD IT DONE ON THURSDAY 24TH

..THEY CALLED ME WANTING THE CDS CAUSE THE RADIOLOGIST FROM THE HOSP.

THAT I LIVE NEAR CALLED THEM AND TOLD THEM THERE WAS SOMTHING WRONG.

SO I SENT THEM OVER NIGHT ,WHICH MEANT THEY WOULD B THERE ON SAT. WELL

THEY NEVER GOT THEM UNTIL ISTARTED CALLING BUGGING AROUND NOON MONDAY.

I TURNS OUT I HAVE SMALL SEROMA,MILD MASS EFFECT ON THE THECAL SAC PB.

THEY RECOM. HEAT TO CIRCULATE . IM CONFUSED! CAN ANY HELP????

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