Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 This is the first time posting to this group. My daughter, Mackenzie, has a tethered spinal cord. She is almost 4 and has had 5 surgeries for untethering. We just finished a really tough time over the last 9 months. We had an untethering and ended up with bacterial meningitis. She then had hydrocephalus that required a VP shunt. She also started leaking spinal fluid and had to 4 surgeries to repair the leak. On top of that she had a lumbar shunt put in to try and help the spinal fluid leak. We now are getting ready for another surgery to remove the lumbar shunt. But we also found out a week ago that she has an indirect hernia and will be having that repaired also. My daughter has a neurogenic bladder and has to be cathed 4 times a day. During her last untethering we also had some nerve damage to the bowel system and are having a really tough time with that. We have not been able to potty train and at this time it has not been a priority. Thank you to whoever created this group as tethered spinal cord is a tough disease to have. Jana Quote Link to comment Share on other sites More sharing options...
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