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My daughter, (8), had her one year post-op check up

yesterday. The follow-up MRI was run last week. No sign of

retethering, but the doctor reports she does have a neurogenic

bladder. Also, no sign at all of backed up bowels - totally

clear. Woohoo! Unfortunately, she's still having accidents and

still wears a pullup. So we see the GI doc in a few months

to discuss a bowel retraining program (she's in very high demand

here - the best in the area, and there's always a long wait time

to get in to see her). I need to make an appointment to see

the urologist to discuss bladder leakage. The neuro doc

recommended ditropan. I know some folks here have mentioned

that before.

So, the good news is that post-op her bowels and bladder are

functioning (bowels weren't functioning pre-op). Bad news is that

she's still not having the control she should have to allow her to

ditch the pull ups.

Jon

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