Hello

August 2, 1999

Hi ,

Welcome to the list. It's a great place to get information and share

experiences.

Houston was our 2nd conference. The last one was in Boston which is where we

live. Even tho I worked on the Conference committee for Boston (my husband

works for the Marriott where the conference was held), I had a better time at

Houston. Maybe it was because I *wasn't* on the conference committee. I

don't know. One thing I do know that made a difference was that for Houston

I had already *met* a lot of people on the list and then got to meet them in

person.

Again, welcome!

Janet

Wife to Matt

Mom to & (CHaRGEr) 7, nne 2,

Mom to 1, and 22 months.

Weymouth, Massachusetts

August 4, 1999

In a message dated 99-08-03 19:55:04 EDT, you write:

<< Also, is there anyone else out there that's worried about all the x-rays,

ultrasounds... that's been done and continues to happen to our children?

>>

I worry all the time!! Jillian is only 16 months old and has had more x-rays

than myself, husband, parents and other children have had in their entire

lives put together. I asked the tech at the last x-ray if it eventually works

it way out of the body and he said, " no, the radiation was kind of a

permanent thing. " So that really scarewd me. But what are we to do?????

Foley

Mom to 4 on Aug 16, CHARGE in heaven and Jillian 16 mo

w/cHaRGE, and 12 yr old niece

February 4, 2000

Good for you ! Glad to see you are going to get some much needed help.

You can do this !

Meniowl@...

type2,dx7/99,low-carbs & water aerobics

In a message dated 02/04/2000 1:32:36 PM Pacific Standard Time,

duffnb@... writes:

<< while i am so depressed, this decision is almost a relief -

am terrified - but this is a wonderful place and i think that they can

help us - the kids and dh suffer with this also - when i am off they are

too. >>

February 5, 2000

Hi Zissy,

The drug you are on is in a drug class called Sulfonylureas. They in time

will burn out your pancreas. You really want to get off of those ASAP. I

was on Glyburide another sulfonylurea and once I started lowering my carb

intake I quit taking those pills. I now manage to keep my blood sugar

readings to around 100. I did that with reading Dr. Bernstein's Diabetes

Solution book and also the support of this group.

Meniowl@...

type2,dx7/99,low-carbs & water aerobics

In a message dated 02/05/2000 11:17:42 AM Pacific Standard Time,

zissy62@... writes:

<< The day I was diagnosed my random blood sugar level was 496

and since that day I have been struggling to keep it down and I haven't

been under 200. I went from 5 mg. of Glipizide once a day to 10 mg. once

a day and now I am on 10 mg. twice a day and still no dice >>

February 5, 2000

Zissy,

You dear, sweet lady. I am so sorry that you have to go through this with

all of us but I think you will find that we're a pretty good bunch of people

here with a common denominator.....diabetes! Personally, I am reading

everything I can get my hands on and have gotten more from this group that I

ever got from the doctors or the diabetes educator. In fact, the last time

that I was there, she asked me would I come to their monthly meetings as a

motivational speaker. She said she had never seen anyone with such a

positive attitude as I have. Well, that's because of all of the wonderful

advice and encouragement I get from my friends in this group. As I said

just recently, " United we stand, divided we fall " .

I hear a lot about how each one maintains their BGs and the expression

YMMV., (Your mileage may vary). This is definitely an individual disease (I

call it the curse). What works for one will not always work for another. I

personally can't exercise because of 6 cardiac arrests and that works

against me. There is only 30% of my heart that is still working so I have

to be careful and not exert myself but I go my limit each day trying to burn

calories as much as possible. The main thing that helps me is that I WATCH

THOSE CARBS CAREFULLY! ......I'm from the south and thought I could not live

without potatoes (mashed, fried, baked.....just anyway), rice, cornbread,

biscuits and gravy, and GOOD OLD GRITS WITH LOTS OF BUTTER! You know,

since I have changed my way of eating, (WOE} I have felt so much better,

and believe it or not......I don't even miss those things. I can go out to

eat where they have a buffet.....and don't even slow down by all of those

starchy foods. I even panic when anyone suggests pizza now (which I just

love) since I went out with my daughter in law and her 2 little girls. (My

blood sugar went through the roof.) I won't do that again.

I'm learning by trial and error. Test my blood sugar, then take my insulin,

then 30 minutes later I eat, test again 2 hours later. I know pretty much

what I can and can't do. Like I said, trial and error!

I hope this helps you. You know you aren't alone and we all have a battle

to fight....individually. No body else really understands. Please feel

free to contact me anytime you want. I'm nearly always on the computer

EVERYDAY!

Oh by the way, I'm about 8 pounds overweight which is not bad considering

that I was 66 Feb. 3...... I probably need that little bit of extra weight

to keep the wrinkles sretched out. LOL

Good luck,

Naomi (Tootie)

nws@...

Hello

>

> I wanted to introduce myself so here goes. My name is Zissy pronounced

> Sissy it's a nickname that I have had for a good part of my life. I live

> in Bellflower CA which is in Los Angeles county. I moved here from Cocoa

> Beach, Florida on Sept. 4th, 1998. I have a son his name is and

> he lives in Florida until he graduates. I live with my boyfriend Glenn

> and his family. We moved in to help his parents with expenses because

> Glenn's sister started UC San Diego and the housing is expensive. I'm

> going to school for Computer Operator and Web Design and if I can start

> feeling better then one day I will finish.

>

> I was diagnosed with Type 2 diabetes on Dec. 15, '99 so I haven't been

> living with this personally for very long. It is in my family so I have

> heard the dreaded stories but you don't quite understand until you are

> living it. The day I was diagnosed my random blood sugar level was 496

> and since that day I have been struggling to keep it down and I haven't

> been under 200. I went from 5 mg. of Glipizide once a day to 10 mg. once

> a day and now I am on 10 mg. twice a day and still no dice. I go to a

> dietician and I follow the guidelines that I was given and still the

> high numbers. Of course all of this scares me because I lost my father

> to the disease 3 years ago and he was only 57, he lived with the disease

> for 11 yrs.

>

> So as you can see I have some concerns and I'm looking for a shoulder,

> ear, patience and understanding. I have been in a few groups already

> that have stressed me and so I am trying this group out hoping to get

> Knowledge not name calling and a Brow Bashing, we get enough of that day

> to day already correct?

>

> One thing that gets me through the day is laughter so if you find

> something funny that you would like to share with me or something

> encouraging send it to me. Thank you and Happy Trails, Z

>

> ---------------------------

December 14, 2008

Hello Everyone,

Sorry have not been around much. I have had a busy week. We found out that

my grandma on my mom's side had two strokes within a four day period. When

my mom spoke to her between them my grandma sounded confused and depressed.

At that time we did not know she had the strokes until we spoke to my sister

and she told us what happened. I also got called and ask to sub for a member

of my church to teach the three years old children. The children were a

little bit hyper during class so I had to cut the lesson short because they

were not interested in the lesson. So for the remainder of the class I let

them color a picture I had copyed and color on other pieces of paper I had

with me. I totally enjoyed being with these children. I also got asked to

teach other class next Sunday. I totally like to teach it gives me the

chance to study and pray about each subject that I am given.

Well that is all that's all for now and take care and have a wonderful week.

A. Stowell

February 10, 2009

Deta,

It was really a God thing to find my psychologist. I was so sick of the

psychiatrist I had and my pain doc agreed to order my Trazadone for me.

I picked this lady's name off of the insurance web site. She is so caring and

really understands chronic pain. I don't like to dis on people, but you're

right- my husband is a butt.

I'm sorry to hear you can't sleep- I didn't sleep for about a year and a half.

I get 8 or 9 hours now, but I'm still living for my next nap all day. I love to

curl up with my puppy.

Anyway it was nice chatting.

Have fun in your recliner!

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Hello

Hi Alanna,

My name is Deta and I to am new to the group. From what I have

read we all have different dx but yet it ALL leads to pain. Mine all

started in 03' & spinal fusion in 05 " and just escalated downhill from

there. I never heard of a pain psychologist, I need to find one tho.

I get SO overwhelmed I can't function sometimes. My mind won't

shut off and all I can do is cry and wring my hands. Not a fun time.

I'm sorry your husband is being a Butt. Sorry but if he isn't supporting

you that's what he is. I guess I am lucky that ALL my family is so

supportive and loving and caring. I hope I never take that for granite.

If you ever need to talk I'm usually around 24/7. About 4 hours sleep

is normal for me in a night. My recliner has become my best friend.

Won't bore you anymore, hope today is being kind to you.

> Hello everyone,

> My name is Alanna and I'm new to this group. My doctor recommended

> that I try to connect with other people with chronic pain. I'll be

> 52 next month, married and have two boys. is 12 and Noah is 9

> and they are the light of my life.

> My pain started the fall of 2004 with what I thought was the flu- but

> the body aches and fatigue never went away. I was able to fight it

> for about a year with vitamins and exercise, but then I woke up one

> morning with an unbearable backache. It spread to my right lower

> quadrant and despite an apendectomy and having my ovary removed, the

> pain remained. I have a diagnosis of Fibromyalgia/CFS, bulging discs

> at C-5 and C-6 and also at L-4 & L-5. I have unexplained leg pain

> (joint and muscle)) especially at night. When I wake up in the

> morning, I usually can't feel my arms. If I am up and about too

> much, I develop a neuropathic pain in my feet which is kind of like

> having no skin. I have had bad reactions to NSAIDs, neuroleptics,

> most antidepressants and many other categories of medications other

> than opiods. I am on massive doses of those just to keep the pain

> bearable. I live to take naps when the pain allows. I've also

> gained about 40 pounds since I've been sick despite diet and

> exercise.

> I worked as a Pharmacist for 25 years, but have been unemployed since

> June of 2006. I am on disablity through work and have a hearing

> scheduled in a couple of months to qualify for Social Security. I

> can't do a fraction of what I used to do around the house, which

> upsets my husband to no end. That really adds to my frustration. I

> have a really wonderful pain psychologist, several friends who are

> very empathetic and a number of angels who watch over me.

> I've been reading the e-mails for several days and am pretty confused

> by the " alphabet soup " of conditions that you all have. I'm sure I'll

> catch on.

> I look forward to getting to know you better.

> Alanna

>

--

Soft Hugs and Prayers,

Deta

February 10, 2009

hi debbi nice to mete you to i lost post of my freands because i cant get out

and do much so i am finding some pain freands post people thank because i look

normal that there is nothing rong with me i have rsd it is a pain disease

donnieKY

From: Debbi <debbi94550@ yahoo. com>

Subject: Re: Hello

To: Hugs-N-Pain@ yahoogroups. com

Date: Tuesday, February 10, 2009, 12:02 AM

Alanna,

Hi nice to meet you. My name is Debbi, and my most debilating issue at this

moment is constant severe migraines. I just was released from the hospital

friday after a weeks stay. The pain has been unbearable. We have a pain doc that

worked realy hard with me & have gone thru facet joint injections, as well as

other things, some so invasive I had to be asleep.

I also have fibromylagia and some days the effert to get out of bed is almost

too much. I really do hear you about the pain & how your life has changed. I am

so sorry. A question; have you beed dx'd with chronic fatigue? Im not a doc, but

your early symptoms sound so much like mine and I was dx'd with that in my 20's.

I am now 45. I also have depression which I really believe is tied into the

pain.

You will be 52 next month? Happy early birthday. Take care & keep writing,

Debbi

____________ _________ _________ __

From: alannabodana <awilgus@.... com>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Monday, February 9, 2009 2:13:14 PM

Subject: Hello

Hello everyone,

My name is Alanna and I'm new to this group. My doctor recommended

that I try to connect with other people with chronic pain. I'll be

52 next month, married and have two boys. is 12 and Noah is 9

and they are the light of my life.

My pain started the fall of 2004 with what I thought was the flu- but

the body aches and fatigue never went away. I was able to fight it

for about a year with vitamins and exercise, but then I woke up one

morning with an unbearable backache. It spread to my right lower

quadrant and despite an apendectomy and having my ovary removed, the

pain remained. I have a diagnosis of Fibromyalgia/ CFS, bulging discs

at C-5 and C-6 and also at L-4 & L-5. I have unexplained leg pain

(joint and muscle)) especially at night. When I wake up in the

morning, I usually can't feel my arms. If I am up and about too

much, I develop a neuropathic pain in my feet which is kind of like

having no skin. I have had bad reactions to NSAIDs, neuroleptics,

most antidepressants and many other categories of medications other

than opiods. I am on massive doses of those just to keep the pain

bearable. I live to take naps when the pain allows. I've also

gained about 40 pounds since I've been sick despite diet and

exercise.

I worked as a Pharmacist for 25 years, but have been unemployed since

June of 2006. I am on disablity through work and have a hearing

scheduled in a couple of months to qualify for Social Security. I

can't do a fraction of what I used to do around the house, which

upsets my husband to no end. That really adds to my frustration. I

have a really wonderful pain psychologist, several friends who are

very empathetic and a number of angels who watch over me.

I've been reading the e-mails for several days and am pretty confused

by the " alphabet soup " of conditions that you all have. I'm sure I'll

catch on.

I look forward to getting to know you better.

Alanna

February 11, 2009

Hi Debbi,

I get migraines once in awhile too. Within a couple of hours they get so bad I

have to take a sleeping pill and go to bed. What kind of meds are you on for

the migraines. I found mine were worse when I was on SSRI antidepressants (like

Prozac, Effexor etc.) and things like Neurontin.

I had two rounds of facet joint injections ( the first of which the doctor told

me I could go to work afterward!) and neither helped. I also had a sympathetic

block which did nothing either. I spent a year and a half going to a

chiropractor with no results, did many rounds of physical therapy and have tried

almost every medication under the sun. I hate to say it, but I have pretty much

given up on finding a cure, much less a diagnosis.

I also have a horrible time getting out of bed- partially because of the pain

and stiffnes, and partially because of the fatigue and depression. My doctor

does think I have CFS, but I also think that my adrenals are SHOT. If I get a

cut or something, it can take months for it to heal. I don't know how anyone

can live with high levels of pain and not be depressed, do you? That's what I

really hated about my old shrink. He seemed to think that the right combination

of pills would make me feel great. Yah, right!

Thank you for the early birthday wish.

Keep writing too.