Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 , Thanks for your suggestions regarding the tube. Her belly is doing better rash-wise. I'm going to do the gauze thing the next time I have to tape it, hopefully that might work. She isn't tugging it quite as much, I find I have to get something to play with in her hand RIGHT AWAY when she decides to start her tugging! Regarding the article, I can see where your brother in law would get the girls mixed up, they do look alike. My boys couldn't get over how much and Kennedy looked alike! Mom to Kennedy 18 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 > > >, > >Hey, it's , 's mom. I had a great time visiting with you at >the conference in Houston. >I haven't been on the list this past week and was just catching up on my >e-mail. I have been reading about your saga of the irritated BARD button >and Kennedy not leaving it alone. I have been relieved that people on >the list have given you some excellent suggestions. > > also has a BARD button. She initially was given a Mic-Key when >she was a baby but the balloon prevented her stomach from emptying. She >has had a BARD for more than 3 years now. Her button got a hole in it at >the joint where the tube joins the flat part on top and so we had it >replaced last week. (She had that button for about 15 months.) > >Anyway, I hope you have found a solution to Kennedy's problem but just in >case you haven't I will tell you what we have done in the past. > >For leaking out of the tube itself (the plastic hole): We tried the soda >pop thing but could not tolerate the extra gas produced by the >bubbles. We regularly give her cranberry juice because the acid in the >juice will help to reduce any build up in the tube. Make sure you don't >mix the cranberry juice with Pediasure because it will curdle. > >I would advise you against using tape on Kennedy especially because it is >breaking her out so badly. You don't want to expose her too much to >things she is allergic to especially if it might contribute in the future >to her developing a latex allergy. Do you have split 2 x 2 gauze pads >that you can put under her button? You can tape the top of the 2x2 >together so that no tape touches the skin. Then you can tape the tube >closed by taping to the gauze. You could also cut a " button hole " in a >onesie or t-shirt and then tape the button on top of the shirt so that >the tape does not touch her skin. > >We use string to tie the button closed and to tie the feeding tube to the >button during feedings. She has to work a little harder to pull her >feeding tube out. She does pull her feeding tube out regulary when she >is bored or playing but only messes with her button when it is >bothering her. > >If there is leakage around the gastrostomy site we use a split 2 x 2 >around the button site to absorb the stomach contents and lift it away >from the skin. These have to be changed frequently. > >We also make a mixture of Milk of Magnesia and Nystatin Powder >(prescription) to neutralize the acid in the stomach contents and to help >prevent infection. We spread this all around the g-button and site of >irritation. (This works great on diaper rash, too) > >Once 's button was torn on the inside and it bothered her during >feeding because the milk was leaking between the stomach and the skin >(the button would sometimes get excessively tight against her skin). We >thought she had outgrown the button size but when the surgeon removed the >old one we saw that it was ripped. > >How long has she had her button? If it is leaking a lot maybe it's time >to get a new one. > >I think the important thing is to get the irritation healed and if she >still messes with the button you can have the button checked out. If the >button is okay and the site is healed but she still messes with it then >you can try some more suggestions. > >Please let me know how things go. > >By the way, my brother-in-law printed out the special child online >article and when he looked at the front page he said, " Hey, there's >. " But then read the name underneath the picture of Kennedy and >realized that it wasn't her. The resemblence is quite striking, though. > > >Wife to Tim, Mom to (9), Caleb (7), (3 3/4 CHARGE) >Mesquite, TX >___________________________________________________________________ >Get the Internet just the way you want it. >Free software, free e-mail, and free Internet access for a month! >Try Juno Web: http://dl.www.juno.com/dynoget/tagj. > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1999 Report Share Posted August 17, 1999 and Cheryl, and Kennedy could be brother and sister!! What a couple of cuties! That is a really great site. Jacque Austin's mom KS Quote Link to comment Share on other sites More sharing options...
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