Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Welcome Aboard! > Hello, > I guess I should take a moment to introduce myself. > My name is Trina, and I live in Sarasota, Florida. I have a three and > a half year old son, who was DX with Verbal Apraxia last > summer just before our move. For a year and a half, I had to fight > with his pediatrician to get him tested to see what was going on. > was not making the 'normal' baby noises that my older > children had made as babies. > Well that is all I can think of to say right now. > Trina > Mom to ,8; Candace, 6; and , 3 (Verbal Apraxia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Trina, Welcome to the group. I've learned alot from everyone here. Stella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Hi, Trina! How funny, I am from Sarasota, FL. I still visit frequently as my mother lives with her husband in the Landings. Gorgeous place, really (sarasota, not the Landings) I can't imagine what the health care situation is like there for children. My son is on g-tube feeds (also speech disordered) and his mickey button popped out on the plane (much to the shock of the passenger playing with him) so I took Wiley to the emergency room in hunt of another one and they were like, " What?? For him?? " It's such an older population down there, I can see how you would have to battle for attention to your son's difficulties etc. Is the school situation alright? Welcome to the group!! Betsy >From: " candykisses_2_u " <candykisses423@...> >Reply- > >Subject: [ ] Hello, New to group >Date: Tue, 25 Jun 2002 22:27:27 -0000 > >Hello, >I guess I should take a moment to introduce myself. >My name is Trina, and I live in Sarasota, Florida. I have a three and >a half year old son, who was DX with Verbal Apraxia last >summer just before our move. For a year and a half, I had to fight >with his pediatrician to get him tested to see what was going on. > was not making the 'normal' baby noises that my older >children had made as babies. >Well that is all I can think of to say right now. >Trina >Mom to ,8; Candace, 6; and , 3 (Verbal Apraxia) > > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Hi Betsy, Just as an fyi, my daughter has a mickey button and no matter where we go we take a spare with us just for the reason you described... what a nightmare. Just thought I'd put my 2 cents in. Lillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Do you know, back then no one had shown me how to replace the button so I went to the ER with the spare. Unfortunately, they filled it with air - and it of course popped out again in the morning. So my mom had some distilled water she used for ironing, so I read the instructions and just put it back in myself. I was a little nervous, and on top of it my mother had been feeding him red fruit loops unbeknownst to me, so when I went to check whether I'd properly placed it, all this red stuff shot out and I was like, OH NO, I'M KILLING HIM! Ahh, those were the days... This is what I'll reminesce about in my old age... >Hi Betsy, >Just as an fyi, my daughter has a mickey button and no matter where >we go we take a spare with us just for the reason you described... what a >nightmare. > >Just thought I'd put my 2 cents in. >Lillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Hi, Beth and welcome to our group. I'm so sorry to hear that you are sick but there are many good people here that hopefully can help you. I am a former teacher and left my school 4 yrs. ago. I've been a patient of Dr. Shoemaker's since Dec. 2003. I started on the CSM at that time and still take it twice a day, along with Trental, Darvocet (hen needed for pain), Welchol (2x a day) and Procrit (twice a week). The Procrit has been very successful for me. I really don't know anything about Dr. Schaller, but I can't say enough good things about Dr. Shoemaker. He is an excellent physician, compassionate and caring. Every patient is different, but I can honestly say that his protocol has worked for me. I have followed all his instructions and never missed a dose of medicine. I will never be 100%, but I feel so much better than I did years ago. Good luck and if you have any other questions please let me know. I can call you ANYTIME night or day! Sue Hello, I'm new to the group and have a lot of questions. I was wondering if anyone has seen Dr. Shoemaker or Dr. Schaller(Tampa)anyone has seen Dr. S if anyone is taking any mold toxin binding meds like Cholestyramine and having success. And last, if anyone has had the lab work for mold from the book " Mold Warriors " , and if it's really necessary to use their recommended labs, if so, why. Sorry for all the questions. I really appreciate your input. I have always had mold sensitivities and am trying to figure out if my current neurological problem is related to mold. I did do a few of the labs that I could get my insurance to pay for, don't have out of network benefits this year. MSH is 8, VEGF is extremely high, MMP9 is 350, all from LapCorp, no Quest lab locally. Did the HLA from LapCorp, have two gene types for multisensitivity and mold, (according to the book Mold Warriors). Thanks! Beth ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Hello, I'm new to the group and have a lot of questions. I was wondering if anyone has seen Dr. Shoemaker or Dr. Schaller(Tampa). Also wondering if anyone is taking any mold toxin binding meds like Cholestyramine and having success. And last, if anyone has had the lab work for mold from the book " Mold Warriors " , and if it's really necessary to use their recommended labs, if so, why. Sorry for all the questions. I really appreciate your input. I have always had mold sensitivities and am trying to figure out if my current neurological problem is related to mold. I did do a few of the labs that I could get my insurance to pay for, don't have out of network benefits this year. MSH is 8, VEGF is extremely high, MMP9 is 350, all from LapCorp, no Quest lab locally. Did the HLA from LapCorp, have two gene types for multisensitivity and mold, (according to the book Mold Warriors). Thanks! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 Hi , are you considering a helmet? who did the plagio diagnosis? if it is your ped you may still want a referal to a specalist such as a cranial facial plastic surgeon to determine if a helmet is needed. You can also being repositioning (repo) to try and correct the head shape. basically this means keeping him off his head, and when he is resting on his head it should be the prominent area (encouraging the flat part to fill in). there are tips in the files are for the group. I think other tort moms will be able to help with stretches. I would also ask for another referral that can see you sooner, and see if the PT can fit you in sooner if they have a cancellation. take care. -christine sydney 17 mo starband grad > > Hi, I'm and my son is Owen, 4 1/2 mos old, and he was just > diagnosed with plagiocephaly on friday and he got a head ct today, and > unfortunately the appointment for physical therapy isn't until August > (soonest they could get us in). Is there anything we can do ourselves > to help him while we wait? Thanks! > - > Quote Link to comment Share on other sites More sharing options...
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