new to group and I have a retethering question for my dd

[Guest guest]

Hi,

I am new to this group. I have a 4 year old that was diagnosed with

tether spinal cord at 9 months and had surgery two weeks later. It

took me 9 months to get a doctor to agree to do the MRI. She was born

with a deep dimple off center of her butt crack and we were told by

several doctors not to worry about it. Anyways, She has been doing

great until a few months ago were she started complaining of severe leg

pain. Pain that wakes her up at night and she can barely move during

the " pain episodes " . Now the doctors are telling us that it is

just " growing pains " . How do I know for sure? The doctors let us down

the first time.

What are the signs of retethering? She has had two wet accidents, but

she just turned 4.

Thanks