There is more than one Protocol

[Guest guest]

Goodmorning Everyone,

I have been sitting back watching all of the wonderful information and

discussions that go on here. Everyone is willing to give suggestions and

experiences. How wonderful to have this support. Support we can get from no

place else.

However, I would like to bring a couple of things up. There have been a couple

of topics that have concerned me, as far as what you are expecting from others.

The negative tone it is giving them. The unsupporting effort that we don't want

here. We have to remember that not everyone wants to share everything. There

are reasons for this.

Some of you have ask me about my families treatment, diet and so forth. I have

shared most of it with you hoping to help. But, in the long run I have

received e-mails telling me I am doing it all wrong. I should be doing this and

should be doing that, because that's what works. The kids should be taking this

medication because that is the cure and it works for everyone. How dare I feed

them this and that, as it isn't good for them. So, in turn I don't share much

any longer. Not because I don't want to help others. But, because I know what

works for my kids. I have been doing this since 2002. I know what they can eat

and what they can't eat. What medication almost killed them (even though for

many it works great-but for them it was lethal), and what medications are

alright for them. My treatment will NOT work for everyone. But, for us it

works. It works GREAT!!

I see people come here and it is like there is only one doctor on the planet

that can help, and if you don't see that doctor you are crazy. If you don't

take CSM there is something wrong with you. Well, I have done both and it

didn't work out for us. Am I crazy? (not looking for answer from you on that

one) Your doctor may help many. But, not for all. How sad that someone comes

here and feels they can't get well useless they see a certain doctor and take a

certain medication. When this is not true. How much more heartbreak they must

experience. When most are looking for something that they can afford to do,

since many are broke and have NO insurance. The doctor that is most referred to

on this board even says himself that his protocol cannot help everyone. That

his protocol is not a cure all. I know that if we here of someone using a new

doctor and a new protocol we want to here it. But, maybe they want to see how

it works first before sharing it.

Some people are forced to live to in unhealthy conditions. Do you really think

they want to? Heck NO!!!! But, for some it is impossible to get out. Some are

not thinking clearly. Some have NO money. Some have no family. I can relate

to this. It took me 4 months to just realize I was about to loose EVERYTHING.

I was in denial. Now because of loosing everything and trying to start over 5

years ago, and the economy the way it is, I am about to loose the home I have

made so safe for my daughter. It sucks. Not one suggestion any of you have can

fix this. Unless you are willing to send me $200,000.00. Most here can relate

to this. Many here have lost several homes to mold and their lives. Some never

recover financially. It is very hard. For those here that have money it is

easy to say just move. But, for those of us who are living months behind it is

not that easy. Most of us are just trying to keep our families healthy and

don't have money to spend on doctors and moving again.

Sometimes we are experiencing things in our own lives and we just want answers.

But, my answer is not going to work for most of you. Many of your suggestions

won't work for me. I like to hear your suggestions. But, sometimes during

conversations here it is like it is being crammed down our throats. If we don't

want to share treatment, then we suck. This is not true. Some here just don't

want to go into depth about treatment they are using, because they don't want a

long carried out discussion. So, for those that want to stay quiet let them.

There are reasons for this. Please don't make them feel that they can't join in

on group discussions because they are not doing what you want them to. Yes!!!!

this is happening here on this group, lets not be in denial. Lets try to change

it and sympatric towards others feelings in this matter, so they can continue to

give us their knowledge and get our support.

-Moderator

[Guest guest]

Thanks for saying this. We all have to remember that we are

all individuals and we need individual treatments. No one size fits

all here....

Dana

>

> Goodmorning Everyone,

> I have been sitting back watching all of the wonderful information

and discussions that go on here. Everyone is willing to give

suggestions and experiences. How wonderful to have this support.

Support we can get from no place else.

>

> However, I would like to bring a couple of things up. There have

been a couple of topics that have concerned me, as far as what you

are expecting from others. The negative tone it is giving them.

The unsupporting effort that we don't want here. We have to remember

that not everyone wants to share everything. There are reasons for

this.

>

> Some of you have ask me about my families treatment, diet and so

forth. I have shared most of it with you hoping to help. But, in

the long run I have received e-mails telling me I am doing it all

wrong. I should be doing this and should be doing that, because

that's what works. The kids should be taking this medication

because that is the cure and it works for everyone. How dare I feed

them this and that, as it isn't good for them. So, in turn I don't

share much any longer. Not because I don't want to help others.

But, because I know what works for my kids. I have been doing this

since 2002. I know what they can eat and what they can't eat. What

medication almost killed them (even though for many it works great-

but for them it was lethal), and what medications are alright for

them. My treatment will NOT work for everyone. But, for us it

works. It works GREAT!!

>

> I see people come here and it is like there is only one doctor on

the planet that can help, and if you don't see that doctor you are

crazy. If you don't take CSM there is something wrong with you.

Well, I have done both and it didn't work out for us. Am I crazy?

(not looking for answer from you on that one) Your doctor may help

many. But, not for all. How sad that someone comes here and feels

they can't get well useless they see a certain doctor and take a

certain medication. When this is not true. How much more

heartbreak they must experience. When most are looking for

something that they can afford to do, since many are broke and have

NO insurance. The doctor that is most referred to on this board

even says himself that his protocol cannot help everyone. That his

protocol is not a cure all. I know that if we here of someone using

a new doctor and a new protocol we want to here it. But, maybe they

want to see how it works first before sharing it.

>

> Some people are forced to live to in unhealthy conditions. Do you

really think they want to? Heck NO!!!! But, for some it is

impossible to get out. Some are not thinking clearly. Some have NO

money. Some have no family. I can relate to this. It took me 4

months to just realize I was about to loose EVERYTHING. I was in

denial. Now because of loosing everything and trying to start over

5 years ago, and the economy the way it is, I am about to loose the

home I have made so safe for my daughter. It sucks. Not one

suggestion any of you have can fix this. Unless you are willing to

send me $200,000.00. Most here can relate to this. Many here have

lost several homes to mold and their lives. Some never recover

financially. It is very hard. For those here that have money it is

easy to say just move. But, for those of us who are living months

behind it is not that easy. Most of us are just trying to keep our

families healthy and don't have money to spend on doctors and moving

again.

>

> Sometimes we are experiencing things in our own lives and we just

want answers. But, my answer is not going to work for most of you.

Many of your suggestions won't work for me. I like to hear your

suggestions. But, sometimes during conversations here it is like it

is being crammed down our throats. If we don't want to share

treatment, then we suck. This is not true. Some here just don't

want to go into depth about treatment they are using, because they

don't want a long carried out discussion. So, for those that want to

stay quiet let them. There are reasons for this. Please don't make

them feel that they can't join in on group discussions because they

are not doing what you want them to. Yes!!!! this is happening here

on this group, lets not be in denial. Lets try to change it and

sympatric towards others feelings in this matter, so they can

continue to give us their knowledge and get our support.

>

> -Moderator

>

>