Re: RE : NIOSH Blasts Air Quality at Interior Department

[Guest guest]

Ginny, I agree 100%.

But the Federal government still has problems even admitting that mold

causes illness in any form, so its not surprising that they act this way.

They see acting to protect the health of workers as some kind of admission

of liability, virtually guaranteeing that they will make more people sick.

The message they are often trying to send is that its the victim's fault for

getting sick.

Not their fault for ignoring maintainance so long that there are mold spores

and mold toxins in the building that are going to cost money and time to

remove. Only legal action will change this.

They won't change unless they are forced to.

[Guest guest]

I was on the phone for what seemed like forever with NIH and CDC this

week asking for statistics on cheimical poisoning or MCS. After

connections after connections to " someone who could help " they have no

stats themselves. The end of the connection directed me to

http://www.mcsrr.org/factsheets/index.html

I thought they might have some stats to quote themselves. Nope.

Who SHOULD be documenting this? Shouldnt the CDC have stats on MCS for

example. THe said that its accepted as an illness and they have stats on

other illnesses.

While I'm on this - why does wikipedia for the entry on MCS quote GOTS

on their site?? CDC does accept MCS as with the likes of the CDC giving

this site as one of their best sources. They also suggested:

http://www.health.gov/environment/mcs/ii.htm

First the ignore you, Then they laugh at you

Then they fight you, Then you win - M Ghandi

LiveSimply wrote:

> Ginny, I agree 100%.

>

> But the Federal government still has problems even admitting that mold

> causes illness in any form, so its not surprising that they act this way.

>

> They see acting to protect the health of workers as some kind of admission

> of liability, virtually guaranteeing that they will make more people sick.

>

> The message they are often trying to send is that its the victim's

> fault for

> getting sick.

>

> Not their fault for ignoring maintainance so long that there are mold

> spores

> and mold toxins in the building that are going to cost money and time to

> remove. Only legal action will change this.

>

> They won't change unless they are forced to.

>

>

[Guest guest]

, regarding Wikipedia. I guess you know that Wikipedia is not a

good source of information since anyone can " edit " the material

there. It is more a " fun " source of information that might, or might

not be correct. If you don't think GOTS should be referenced, you can

go in their and edit that out is my understanding. Anyone can change

the content of Wikipedia.

>

> While I'm on this - why does wikipedia for the entry on MCS quote

GOTS

> on their site?? CDC does accept MCS as with the likes of the CDC

giving

> this site as one of their best sources. They also suggested:

> http://www.health.gov/environment/mcs/ii.htm

>

> First the ignore you, Then they laugh at you

> Then they fight you, Then you win - M Ghandi

>

[Guest guest]

Barb, others,

I totally know aobut wikipedia. Im a disabled librarian - but we need

to accept the fact that wikipedia is maseively used by those we want to

reach.

AND even the NIH guy who spoke a while with me quoted from there when

defining the illness- Maybe sharon can edit the gots parts citing his

fraudulant sides and letting the wiki editors know hes not the one to be

in there. I DID change wikipedia a year ago on the MCS site, it was

changed back.

Just one more place we could fight for facts is all - angie

barb1283 wrote:

> , regarding Wikipedia. I guess you know that Wikipedia is not a

> good source of information since anyone can " edit " the material

> there. It is more a " fun " source of information that might, or might

> not be correct. If you don't think GOTS should be referenced, you can

> go in their and edit that out is my understanding. Anyone can change

> the content of Wikipedia.

>

[Guest guest]

from what I'm getting, MCS is accepted as a allergic type syndrome.

not a result of toxin exposure. if everything is blamed as being

caused by allergy than they dont have to admit that mycotoxins,ect.

in indoor environments, up the nose cause brain damage. so, sence

their being forced to admit it's a real illness they put their own

spin on it to play it down.

>

> > Ginny, I agree 100%.

> >

> > But the Federal government still has problems even admitting that

mold

> > causes illness in any form, so its not surprising that they act

this way.

> >

> > They see acting to protect the health of workers as some kind of

admission

> > of liability, virtually guaranteeing that they will make more

people sick.

> >

> > The message they are often trying to send is that its the

victim's

> > fault for

> > getting sick.

> >

> > Not their fault for ignoring maintainance so long that there are

mold

> > spores

> > and mold toxins in the building that are going to cost money and

time to

> > remove. Only legal action will change this.

> >

> > They won't change unless they are forced to.

> >

> >

>

>

>

>

>

[Guest guest]

I didn't really want to post this because it goes way off track but

to see where their headed. what can't be blamed on allergies will be

blamed on genetics.

http://www.niehs.nih.gov/external/faq/mcss.htm

> >

> > > Ginny, I agree 100%.

> > >

> > > But the Federal government still has problems even admitting

that

> mold

> > > causes illness in any form, so its not surprising that they act

> this way.

> > >

> > > They see acting to protect the health of workers as some kind

of

> admission

> > > of liability, virtually guaranteeing that they will make more

> people sick.

> > >

> > > The message they are often trying to send is that its the

> victim's

> > > fault for

> > > getting sick.

> > >

> > > Not their fault for ignoring maintainance so long that there

are

> mold

> > > spores

> > > and mold toxins in the building that are going to cost money

and

> time to

> > > remove. Only legal action will change this.

> > >

> > > They won't change unless they are forced to.

> > >

> > >

> >

> >

> >

> >

> >

[Guest guest]

I like Wiki as a quick reference and find it is usually fairly

accurate. lacking in the areas that relate to our illness but what

else is new. you just have to know what your looking for.

>

> > , regarding Wikipedia. I guess you know that Wikipedia is

not a

> > good source of information since anyone can " edit " the material

> > there. It is more a " fun " source of information that might, or

might

> > not be correct. If you don't think GOTS should be referenced, you

can

> > go in their and edit that out is my understanding. Anyone can

change

> > the content of Wikipedia.

> >

>

>

>

>

>

>

>

>

[Guest guest]

hopefully studies on twins will help

2007-twin studies on chronic fatique syndrome,brain

http://www.immunesupport.com/library/showarticle.cfm?

id=7644 & T=CFIDS_FM

twin studies-rheumatoid arthritis.

http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=65056

http://en.wikipedia.org/wiki/Gene_mutation#Causes_of_mutation

monozygotic twins shate identocal genes

dizygotic share half on average.

aacfs

http://www.co-cure.org/aacfs6b.htm

> > >

> > > > Ginny, I agree 100%.

> > > >

> > > > But the Federal government still has problems even admitting

> that

> > mold

> > > > causes illness in any form, so its not surprising that they

act

> > this way.

> > > >

> > > > They see acting to protect the health of workers as some kind

> of

> > admission

> > > > of liability, virtually guaranteeing that they will make more

> > people sick.

> > > >

> > > > The message they are often trying to send is that its the

> > victim's

> > > > fault for

> > > > getting sick.

> > > >

> > > > Not their fault for ignoring maintainance so long that there

> are

> > mold

> > > > spores

> > > > and mold toxins in the building that are going to cost money

> and

> > time to

> > > > remove. Only legal action will change this.

> > > >

> > > > They won't change unless they are forced to.

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

hope they figure it out soon,

I dont think I can take much more of those " allergy " causeing toxins

going up my nose to my brain causong temporal lobe(limbic)siezures

and the other route to my cns from the blood stream,causing brain

swelling intercranal pressure on my eyes, lesions, and the csf leaks

damage to my ears, and the nose/olfactory bulb damage from both.

haveing both affects described above makes MCSS effects much worse

the more organ damage suffered by exposure the more damage to brain

barriors/paths the less the path of resistance.

> > > >

> > > > > Ginny, I agree 100%.

> > > > >

> > > > > But the Federal government still has problems even

admitting

> > that

> > > mold

> > > > > causes illness in any form, so its not surprising that they

> act

> > > this way.

> > > > >

> > > > > They see acting to protect the health of workers as some

kind

> > of

> > > admission

> > > > > of liability, virtually guaranteeing that they will make

more

> > > people sick.

> > > > >

> > > > > The message they are often trying to send is that its the

> > > victim's

> > > > > fault for

> > > > > getting sick.

> > > > >

> > > > > Not their fault for ignoring maintainance so long that

there

> > are

> > > mold

> > > > > spores

> > > > > and mold toxins in the building that are going to cost

money

> > and

> > > time to

> > > > > remove. Only legal action will change this.

> > > > >

> > > > > They won't change unless they are forced to.

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >