Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 KC Do you or anybody else know anything else about these fungal brain tumors? How do they distinguish them from cancer, and how are they treated? The reason I ask is because a close friend's mother was recently diagnosed with a noncancerous brain tumor and although I am sure she has excellent medical care, I am sure she would like to know if there was something that might help that hadn't been tried (Its evidently inoperable) Its pressing on her brain and she has had stroke-like things happen. For that reason she has now been told by her doctor she can no longer drive. She's taking it well but it must be terrifying. If something like an antifungal would help, that would be great. How do doctors tell? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 LS, I don't think I can really answer that question, but hopefully there are others that can. Can this be determined through the correct bloodwork, you would think. I'm sure we all could assume this fungal infection (tumors, lesions) are most likely caused by an aspergillus, how did she contract it that's anybodies quess. Both parents were very nice when I spoke to them and of course very concerned. From what I can remember she was a normal. healthy child before this infection overcame her. Was she on mega doses of antibodics beforehand, I don't know. But I'm curious now. The first symptom that the parents took notice of was she (Molly) was losing her balance, but how many other symptoms were there that they didn't notice or didn't correlate. When the doctors were first asking for help through the media they showed the x-rays similiar in the video of her brain and you could clearly see the tumor and lesions. They started I believe with sporonax IV, which did not seem to help much until they started injecting it directly into the tumor.Only then did it start to shrink, but also at that time Molly was losing the battle. In my mind I knew what the end results were going to be, I'm surprised she lasted as long as she did. But I was hesitant of contacting the parents again. Cases like this are always very disturbing. It reminds me of several cases of other children from the same location, I believe in NC, where the school and the parents were aware of the mold infestation, several of the young students came down with a rare form of brain cancer. Several have died and several other instances we could not get any info on. Just think, all of these conditions could possibly be prevented if the general public had been educated on the toxins these molds produce. Such a shame. They don't start paying attention until lawsuits start flying and then they wonder why. For them to keep saying it's an unknown disease with no known cure is pathetic. Just like all the information that has been stiffled over the years, that's criminal. Say what it is, it is a FUNGAL INFECTION and most likely not brought on by ingestion. Our medical institutions need to come to the understanding if you are inhaling it, you are ingesting it also. The spores get lodged in the saliva in the back of your throat due to inhalation and guess where they go when you swallow? If they can't figure this out they shouldn't be in the possition that they are in. KC --- In , LiveSimply <quackadillian@...> wrote: > > KC > > Do you or anybody else know anything else about these fungal brain tumors? > How do they distinguish them from cancer, and how are they treated? > > The reason I ask is because a close friend's mother was recently diagnosed > with a noncancerous brain tumor and although I am sure she has excellent > medical care, I am sure she would like to know if there was something that > might help that hadn't been tried (Its evidently inoperable) > > Its pressing on her brain and she has had stroke-like things happen. For > that reason she has now been told by her doctor she can no longer drive. > > She's taking it well but it must be terrifying. If something like an > antifungal would help, that would be great. How do doctors tell? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Thank you! I just found this: Aspergilloma of the brain: an overview. http://www.jpgmonline.com/temp/jpgm51537_130700.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Live, the link isn't working. can you try to forward it again. would love to read about this. thanks, Dana --- In , LiveSimply <quackadillian@...> wrote: > > Thank you! > > I just found this: > > Aspergilloma of the brain: an overview. > http://www.jpgmonline.com/temp/jpgm51537_130700.pdf > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 On 5/22/07, gsgrl2000 <gsgrl2000@...> wrote: No problem. (although the subject is terrifying..aspergilloma of the brain is a very bad diagnosis for someone to get..as you'll see) Make sure this (below) is all on one line, with no spaces.. Then follow the link in the " Full Text " banner in the upper right corner, then click on PDF link on that page.. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed & cmd=Retrieve & dopt=Abstra\ ctPlus & list_uids=16519254 & query_hl=1 & itool=pubmed_docsum Live, > the link isn't working. can you try to forward it again. would love to > read about this. > > thanks, Dana > > > > > > Thank you! > > > > I just found this: > > > > Aspergilloma of the brain: an overview. > > http://www.jpgmonline.com/temp/jpgm51537_130700.pdf > > > > > Quote Link to comment Share on other sites More sharing options...
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