Re: accidents at school/504 plan...

[Guest guest]

In a message dated 9/25/2008 9:51:23 A.M. Eastern Daylight Time,

emaher1916@... writes:

I do not see why this cannot be

figured out and a plan cannot be made -- just like an IEP for special ed

students

It can and should be figured out... My son has delayed sensation and

an anorectal malformation and is on daily laxatives. He is continent, but

when he has to go, he HAS to go. For this and other issues due to his

congenital malformations, he has a 504 Disability plan set up at school. This

is the

equivalent of an IEP plan for people with physical disabilities that can

affect them at school. The plan is a written agreement signed by myself and

the

teachers and administators at his school district, and details what his

issues are, how they can impact him at school, and what accomodations are

necessary for him to have " fair and equal access " to school.

His 504 plan states that he is allowed to go to the bathroom at ANY time,

even during recess, tests, whatever. The plan with the school allows him to go

straight to the nurses office, no questions asked, if he should have an

accident. The nurse then informs the teacher that he is with her, so the

teacher

knows he's not wandering around if he doesn't come right back like he would

for a bathroom break, and the nurse calls me to come assist if needed. A

spare change of clothing is kept at the nurses in a ziploc bag with 's

name

on it (privately) for him if he needs it. All the teachers and playground

aides know of 's issues, and of his right to do this.

He also has orthopedic issues, both from structural problems and nerve

issues, that affect his balance and endurance, and the plan allows him to use

the

elevator to avoid stair mishaps, and it also allows him final say in what he

can and cannot do in gym class. It also allows that he be excused without

consequence when he is absent from or late to school due to his medical issues.

Anyone with a child that has TC and bowel/bladder/leg issues should

definitely request a meeting with their school to set up a 504 Disability Plan

if

they don't have one already. I have a copy of a parent input sheet that can be

helpful in gathering your info ahead of any meetings, as an informed parent

who already knows what accommodations they want has a better chance of

actually getting it

Connie

Mom to Sara 16, Nicky 10 (GI issues, megacolon), and 8

(CRS/VACTERLS incl. tethered spinal cord (repaired 9/00, 8/06) perineal

fistula imperforate anus (repaired 5/00, managed with daily Exlax), single

kidney, PDA (closed on its own), malformed pelvis and hemisacrum, long segment

lumbosacral levoscoliosis with hemivertebrae (spinal fusion T11-sacrum 8/06),

extra left rib, genital anomalies with hypospadius (repairs 9/00,11/00,

5/01,12/01,12/03), hypoplastic left leg with clubfoot (repaired 5/01) tibial

torsion

and 4.5cm length discrepancy - wears AFO and 3.5cm lift, SUA, GI reflux,

DGE/gastroparesis, mild swallowing dysphagia, eating issues and the most

beautiful smile ever)

conni60640@...

Our website: _http://members.tripod.com/conni60640-ivil/_

(http://members.tripod.com/conni60640-ivil/)

VACTERL/VATER support _http://health.groups.yahoo.com/group/VACTERLNetwork/_

(http://health.groups.yahoo.com/group/VACTERLNetwork/)

TC support group _http://health.groups.yahoo.com/group/LMC-TCS/_

(http://health.groups.yahoo.com/group/LMC-TCS/)

Congenital scoliosis support group

_http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/_

(http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/)

Anorectal malformations support - The Pull-Thru Network

_http://www.pullthrunetwork.org/index.php_

(http://www.pullthrunetwork.org/index.php)

S. Jersey

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