Re: Sorry, have sick grand baby

[Guest guest]

Hi Jackie,

I'm so sorry to hear about your sick grand daughter and that you had

to spend the nite in the ER. But, am very to hear that you were able

to get her the help she needs.

I don't think we're all advocating a one size fits all approach.

There's not just one thing wrong with any of us and certainly CSM

isn't at all the only solution to most of our problems. I, too, have

many other issues (including Lyme, which brings an entire other

dimension to the illness), I just know that CSM was a key to my

wellness. And, I just don't know of any treatment for

binding/removing the mycotoxins that is more effective and would love

to hear and learn about other approaches that might work.

I provided the link to Klinghardt's protocol, which does include many

other approaches, amongst them CSM. The CSM is the only protocol I

have found that is in common amongst the top Lyme, chronic fatigue,

CFS practitioners.

I totally agree that many folks need to stabilize other health issues

before taking CSM. I spent 3 years dealing with the Lyme, many,

many, many allergies (2 years of NAET treatments @ $95.00 a pop),

many rounds of liver detox and anti-candida treatments and getting my

thyroid medication at an appropriate dosage, dietary changes (gluten-

free, dairy-free, primarily organic, etc.) and adding supplements to

compensate for the lack of absorption from the celiac disease (B

vitamins especially as I have a methylation defect) before I was well

enough to be able to even make the trip to see Dr. Shoemaker and

start the CSM. So, again, I agree 100% that you need to work with a

doctor/practitioner that will deal with alot of other issues that

many of us have. There are many, many layers of illness for many of

us.

We're not criticizing your treatment approach, we're just wanting to

know what alternatives to CSM there might be, since there are many

that don't tolerate CSM. No matter what approach folks follow, they

need to find a good health practitioner to work with them and there

are certainly risks with all treatment approaches (alternative and

mainstream). But, I do think it is important that we educate

ourselves as to the treatment options, so that we find practitioners

that can help us. Many of us have spent thousands of dollars on

treatments that don't help (and in my case some of them did more harm

than good). And, yes, it is very difficult because we are all

different and what works for one may not work for another. And, you

are 100% accurate that any practitioner needs to do an appropriate

differential diagnosis (including gathering a complete health

history) to make sure there aren't other health issues. BUT, I

really think the crowd here is very self-selecting, in that I really

doubt there's much of anyone on this list that has any self-doubt

that mold has made them ill - the problem most folks have is finding

a doctor that will believe them. I honestly did not want to believe

it myself. I went to Dr. Shoemaker initially for treatment for my

Lyme toxins, only to have him tell me on my first visit that I should

move out of my house (I had told him about a roof leak that we had

repaired - I was totally ignorant about mold toxins). And again,

that's not to say, that we don't all have other health issues that

need addressing, as again I spent almost 3 years doing that and still

knew that there was really something wrong that none of the doctors

(alternative or mainstream) was addressing.

In short, I still think the information you can provide is very

helpful because it appears that your practitioner focuses on

improving the terrain before she starts targetted treatment. I think

that's a really good approach and I'm personally quite interested in

the order in which she approaches things as I've done things in a

more random way as I've been through many doctors in the past 4 years

and I've read different protocols in terms of the order of treating

problems (e.g., heavy metals first vs. heavy metals last, etc.).

Peace and Healing,

B.

>

> I am sorry I have not answered anyone. I had my sick 3 year old BD

> today) granddaughter since yesterday morning. We spent all day at

an

> Urgent Cary Clinic