Re: Has anyone been able to get their sense of smell back?

[Guest guest]

_http://www.examiner.com/a-812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_

(http://www.examiner.com/a-812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html)

Check this story out from the Baltimore Examiner this morning. I know many

of us have memory loss but I've never heard about Alzheimer's and loss of

smell.

Since getting sick my sense of smell is heightened. Everything bothers me,

perfumes,soaps, cigarette smoke, candles, all give me headaches or make me

feel bad. I have talked to other people that have said they have lost their

sense of smell but don't know if it has improved for them.

Sue

************************************** See what's free at http://www.aol.com.

[Guest guest]

Live, one day I felt the start of migrane comeing on and took NAC and

it seamed to stop the progress. but i also washed my sinuses out so not

sure which helped most or stopped the migrane, maybe both. worth

expermenting with, but I'm not takeing anything on a regular basis for

fear of becomeing sensatized to it. even washing sinuses to often can

have adverse effects for me. on sence of smell and taste, I think some

of it's permenant damage. however theres something going on where some

days my sence of smell become so sensative that everything seams to

bother me. again, back to brain sencers/receptors and responces.

>

> I miss mine, and I think the lack of a sense of smell might be

> effecting me in other ways too, so I am worried about that. Has anyone

> ever really gotten theirs back after being in mold and losing theirs?

>

>

>

[Guest guest]

Thanks Sue, very interesting.

>

>

> _http://www.examiner.com/a-

812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_

>

> (http://www.examiner.com/a-

812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html)

> Check this story out from the Baltimore Examiner this morning. I

know many

> of us have memory loss but I've never heard about Alzheimer's and

loss of

> smell.

> Since getting sick my sense of smell is heightened. Everything

bothers me,

> perfumes,soaps, cigarette smoke, candles, all give me headaches or

make me

> feel bad. I have talked to other people that have said they have

lost their

> sense of smell but don't know if it has improved for them.

> Sue

>

>

>

>

>

>

>

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

[Guest guest]

Have to ask? Whats NAC?

a

who <jeaninem660@...> wrote:

Live, one day I felt the start of migrane comeing on and took NAC and

it seamed to stop the progress. but i also washed my sinuses out so not

sure which helped most or stopped the migrane, maybe both. worth

expermenting with, but I'm not takeing anything on a regular basis for

fear of becomeing sensatized to it. even washing sinuses to often can

have adverse effects for me. on sence of smell and taste, I think some

of it's permenant damage. however theres something going on where some

days my sence of smell become so sensative that everything seams to

bother me. again, back to brain sencers/receptors and responces.

>

> I miss mine, and I think the lack of a sense of smell might be

> effecting me in other ways too, so I am worried about that. Has anyone

> ever really gotten theirs back after being in mold and losing theirs?

>

>

>

---------------------------------

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[Guest guest]

Yes, Sue, I've been reading stuff about this connection between sense of

smell and neurodegenerative disease for a long time.

What happened to me is pretty well documented, unfortunately, at least in

rats.. (murine means rat)

See this paper:

Satratoxin G from the Black Mold *Stachybotrys chartarum*

Evokes Olfactory Sensory Neuron Loss and Inflammation in the Murine Nose and

Brain

http://www.ehponline.org/members/2006/8854/8854.html

So, I don't think I have Alzheimers.. If I did, I would be on some other

list, not this one..

On 7/4/07, ssr3351@... <ssr3351@...> wrote:

>

>

> _

>

http://www.examiner.com/a-812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_<ht\

tp://www.examiner.com/a-812516%7EPoor_Sense_of_Smell_May_Be_Alzheimer_s.html_>

>

> (

>

http://www.examiner.com/a-812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html<htt\

p://www.examiner.com/a-812516%7EPoor_Sense_of_Smell_May_Be_Alzheimer_s.html>)

>

> Check this story out from the Baltimore Examiner this morning. I know many

>

> of us have memory loss but I've never heard about Alzheimer's and loss of

> smell.

> Since getting sick my sense of smell is heightened. Everything bothers me,

>

> perfumes,soaps, cigarette smoke, candles, all give me headaches or make me

>

> feel bad. I have talked to other people that have said they have lost

> their

> sense of smell but don't know if it has improved for them.

> Sue

>

>

>

[Guest guest]

But what I really wanted to ask was if - and how many people here have

lost their sense of smell? (please speak up if you have) and

especially if anyone has gotten it back..and how long it took, what

you did.. etc.

THANK YOU EVERYONE..

[Guest guest]

I too feel I smell things more than I did, but in my case suspect I

am just be paying more attention to odors than I used to.

Interesting article on Altzheimer's and odors. I think a person

could test themselves on this which may be handy.

I bet there is not a degeneration of sense of smell though, just my

guess, but a degeneration of 'memory' as to what the odor is: is it

cinnamon or banana?

The memory in altzheimers is so severe and has surprising

consequences. The mother of a friend of mine stopped smoking when

she developed altzheimers because she 'forgot' she smoked. I bet

she had withdrawal symptoms that would otherwise have made her reach

for a cigarette, but that she could no longer identify what the

cause of symptom was/i.e. needing a cigarette.

>

>

> _http://www.examiner.com/a-

812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_

>

>

[Guest guest]

For a long time I was just like that. I was oversensitive to smells.

But now its the opposite except that I still have a slight sense of smell

and those strong smells, and also mold still get through a little bit and

they still make me feel sick.

What I miss are the nice smells.. food, chocolate, spices, teas, coffee,

cheese, etc.

I might smell those things a very little bit if I literally stick my nose in

them but its very little.

On 7/4/07, barb1283 <barb1283@...> wrote:

>

> I too feel I smell things more than I did, but in my case suspect I

> am just be paying more attention to odors than I used to.

> Interesting article on Altzheimer's and odors. I think a person

> could test themselves on this which may be handy.

> I bet there is not a degeneration of sense of smell though, just my

> guess, but a degeneration of 'memory' as to what the odor is: is it

> cinnamon or banana?

> The memory in altzheimers is so severe and has surprising

> consequences. The mother of a friend of mine stopped smoking when

> she developed altzheimers because she 'forgot' she smoked. I bet

> she had withdrawal symptoms that would otherwise have made her reach

> for a cigarette, but that she could no longer identify what the

> cause of symptom was/i.e. needing a cigarette.

>

>

> >

> >

> > _http://www.examiner.com/a-

> 812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_

> >

> >

>

> _

>

[Guest guest]

I agree we I don't have Alzheimers either but that's just the SS

Drs. try to tell me! We and some of our excellent Drs. know the real

reason. Hopefully one day soon the educated idiots in our country will finally

wake up and then help all the people that need it.

SDue

Yes, Sue, I've been reading stuff about this connection between sense of

smell and neurodegenerative disease for a long time.

[Guest guest]

I don't know if this has been mentioned, but zinc is vital to many

functions including taste and smell. Each member of my family is

severely zinc deficient. I don't know if that's because it is also

very important for immune function. Our doctor told us living in mold

" hammers " the immune system. I take over 150 mg. daily.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> For a long time I was just like that. I was oversensitive to smells.

>

> But now its the opposite except that I still have a slight sense of

smell

> and those strong smells, and also mold still get through a little

bit and

> they still make me feel sick.

>

> What I miss are the nice smells.. food, chocolate, spices, teas, coffee,

> cheese, etc.

> I might smell those things a very little bit if I literally stick my

nose in

> them but its very little.

>

[Guest guest]

nothing seams to smell like I remember it use to smell.

I have reactions weather I smell whats causeing it or not.

heres a few links on loss of smell,olfactory damage from toxin

exposure

statistics on smell

http://www.nidcd.nih.gov/health/statistics/smell.asp

smell

http://www.ilo.org/encyclopaedia/?print & nd=857400178

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> > > _http://www.examiner.com/a-

> > 812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_

> > >

> > >

> >

> > _

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[Guest guest]

We spent a lot of money on spore and bulk and later, toxin testing.

When those second batch of tests came back, we had our explanation with no

wiggle room.

On 7/5/07, <smarshwar@...> wrote:

>

> I don't know if this has been mentioned, but zinc is vital to many

> functions including taste and smell. Each member of my family is

> severely zinc deficient. I don't know if that's because it is also

> very important for immune function. Our doctor told us living in mold

> " hammers " the immune system. I take over 150 mg. daily.

>

>

> >

> > For a long time I was just like that. I was oversensitive to smells.

> >

> > But now its the opposite except that I still have a slight sense of

> smell

> > and those strong smells, and also mold still get through a little

> bit and

> > they still make me feel sick.

> >

> > What I miss are the nice smells.. food, chocolate, spices, teas, coffee,

> > cheese, etc.

> > I might smell those things a very little bit if I literally stick my

> nose in

> > them but its very little.

> >

>

> _

>

[Guest guest]

I don't quite understand your response. We did the same, as well as

numerous other medical tests.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> We spent a lot of money on spore and bulk and later, toxin testing.

> When those second batch of tests came back, we had our explanation

with no

> wiggle room.

>

[Guest guest]

So I'm confused, I have over sensitive to smells. I had a reaction to someone

pouring a dark beer next to me on the plane coming back from Dr. M in Cal.

Should I be extra careful there too, so I don't damage my sense of smell. I

would really miss smelling that first pot of coffee in the morning.

I never thought I would say this but my mask has become a security blanket.

Don't leave home with out it!

a

who <jeaninem660@...> wrote:

nothing seams to smell like I remember it use to smell.

I have reactions weather I smell whats causeing it or not.

heres a few links on loss of smell,olfactory damage from toxin

exposure

statistics on smell

http://www.nidcd.nih.gov/health/statistics/smell.asp

smell

http://www.ilo.org/encyclopaedia/?print & nd=857400178

> > >

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> > > _http://www.examiner.com/a-

> > 812516~Poor_Sense_of_Smell_May_Be_Alzheimer_s.html_

> > >

> > >

> >

> > _

> >

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[Guest guest]

I guess with this illness the smell thing can go both ways either you

are too sensitive like I am where you smell way too much when no one

else does, or you loose most or all of your smell sensation. I

know there is a girl on the MCS list that has lost her smell

sensation for about 30 years and she has no protection when chemicals

are near other than getting sick.

I once asked my ENT when I first got ill if they couldn't make me

not smell so much. I forget what he said but I guess it does protect

me from what is in the area, but I hate it. For a long time I

couldn't stand anything like food cooking or anything. At least some

food smells good now. I think mine changes according to how much I

am exposed to. If I am away from mold and chemicals for a while I

get a little stronger and can't detect every little thing whereas if

I have been around too many chemicals or mold I can't handle

anything, so moving does help eventually to get to a safe place but

it is finding that safe place that is the trick. It took me 6 moves

since 1998 to finally get to a safer place.

>

> nothing seams to smell like I remember it use to smell.

> I have reactions weather I smell whats causeing it or not.

> heres a few links on loss of smell,olfactory damage from toxin

> exposure

> statistics on smell

[Guest guest]

yes, toxic load on body makes difference in reactions.

but at same time I'm oversensative to smells I also have distortion

of the smell irself.