Re: Re: Want to give many thanks..... and I don't know how much more I can take!!.....

May 18, 2007

I'm gonna second that - my disability pre-dates my mold exposure, and while I

won't get into my own gory details here, I'll say that I finally got through my

appeals process when I mentioned that I had memory loss and trouble thinking.

Mind you that it was not the more life-threatening stuff that prompted my

getting covered. Go figure. But while most of us would prefer to avoid the

stigma in our society of having brain issues, by the time most of us get this

far, we already have medical records that document things that can get us into

trouble with insurance companies anyway.

~Haley

who <jeaninem660@...> wrote: Hi Dana,

thanks, you too girl and yes, KC and Sharon are the best,

where would we be without them? very few people in the world today

care about helping others. I've been through the disability thing,

dont give up, sometimes it takes years, another screwed up system

that needs reform. when I finally got it they only agreed to give it

to me if I agreed to drop the back pay of 5 years and I was disperate

so I did. I dont think thats the right way for them to do things but

I guess they can do whatever they want. it's insane what they put you

through when you need their help. just don't give up, appeal, refile,

whatever it takes. if you can't work you have no choise but to keep

trying. PS. some of our illness does include our heads, just not the

way they think. if you have cognitive/memory/ptsd type symptoms you

might want to get it checked out. people do get on dosability for

that.

>

> I've been offline for awhile... been really sick but I have been

> wanting to thank KC and Sharon for speaking with me and giving me

> some support. I also wanted to thank for chatting with me and

> informing me about Dr. Kilburn. I also want to thank anyone else

who

> responded to my message for help....

>

May 18, 2007

Back straight. Eyes closed. Palms up. Say it with me now in six or eight

syllables..... 'Om.'

~Haley

gsgrl2000 <gsgrl2000@...> wrote: Thanks

Haley,

Those state doctors and judge want to call me crazy but they're the

ones who are crazy for not waking up to the truth about mold. they

never know, someday it may hit them the way it has us and then they

will be singing another tune.

Without this sight and those on it I think I would have gone insane

by now. It is good to be able to connect to people who understand.

Dana

>

> Yup. We've all had these days... don't mean to trivialize your

experience by saying that, but we're a feisty bunch, and I haven't

heard of any deaths of our members since I've been on the board -

one day soon we will begin prevailing more than having the

experience you and all of us have had so far...

>

> If my brain worked, I'd be able to quote the Rolling Stones song

about not always getting what we want but getting what we need... by

hook and crook, all of us here seem to be eventually pulling rabbits

out of hats and keeping each other collectively sane enough to keep

fighting another day...

>

> I've mentioned before that my former neighbor, Patti, and I are

always saying we know we're crazy, but not about THIS... her son

died of his mold exposure, and WE WILL PREVAIL, eventually, in

court, but MAN! it's been a helluva time just getting to court.

>

> Strength for today...

>

> ~Haley

>

May 18, 2007

Actually, Haley, at least one member has died while I've been on here. Bob.

He lived in a trailer that had mold growing underneath it and inside of the

walls and he was trying to clean it up. He just stopped posting one day and

then a few weeks later his daughter sent an email to the list telling us all

he had died.

I don't think they did an autopsy.

May 19, 2007

i agree. i think people in general empathize with all of us.

Haley <myhaze@...> wrote: I'm gonna second that - my disability

pre-dates my mold exposure, and while I won't get into my own gory details here,

I'll say that I finally got through my appeals process when I mentioned that I

had memory loss and trouble thinking. Mind you that it was not the more

life-threatening stuff that prompted my getting covered. Go figure. But while

most of us would prefer to avoid the stigma in our society of having brain

issues, by the time most of us get this far, we already have medical records

that document things that can get us into trouble with insurance companies

anyway.

~Haley

who <jeaninem660@...> wrote: Hi Dana, thanks, you too girl and yes, KC

and Sharon are the best,