Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Our story is very similar to Haven's story. In addition to being a concerned parent, I have spent the past 25 years in the medical industry, and 12 years of college in the science field with degrees in both immunology and virology. I may not be an 'expert' but I can tell you that I have researched every facet of my son's medical condition which I now know is a neuroimmune disorder with regressive autism as a symptom. We have stopped the regression, and his immune system is finally recovering after 4 long years of treatment. I am fortunate that I have the opportunity to interact with very bright physicians across multiple specializations in hospitals throughout the country for my career. We speak often about my son, and they send me the latest research articles from time to time (that I have already read) but they don't have many answers. Who are the autism 'experts?' The parents who have spent the past several years seeking the highest level of treatment and recovery for their child. My education and experience did not prepare me for treating my son's regression. I shouldn't have to educate a pediatrician about PANDAS or cd4/cd8 testing for immune function. They should have learned that in medical school, correct? I recently spoke to the head of a prominent medical school in Texas, and asked him what part of the curriculum is dedicated to teaching physicians how to treat the flood of patients they are now seeing with autism. He sadly shook his head (his grand-daughter has autism) and said, " Unfortunately, there is not much to teach medical students. We don't know what causes autism. We don't have enough research based, FDA cleared treatments to have credibility within AMA, despite that as parents we are seeing results with evidence based interventions such as a clean diet and supplements which build the immune system and heal the gut. " The autism 'experts,' physicians and researchers, still don't know the cause of the autism and within that classification is a diverse group of patients. Emory University has found that 10-15% of 'autism' is genetic. The other larger percentage is thought to be epigenetic. NIH has an ongoing 10 year investigation for over 1000 chemical compounds that may contribute to autism, either independently or in groupings. The average infant cord blood sample contains over 600,000 chemicals. It's like finding a needle in a haystack. I can tell you I will never back down from researching the answers and possible treatments after I witnessed the stark regression in my son immediately following his one year 'well baby' appointment that forever changed his life. Was it vaccines? Was it a compromised immune system prior to getting vaccines? Was it a viral infection combined with the vaccines? Was it a course of Augmentin, a double ear infection, 8 vaccines given all in one week? I may never know, but my focus in recent years has been to focus on his recovery- not what happened back in 2001. I cannot change that, I cannot force our bankrupt government to invest in autism research, and I cannot hold anger and frustration toward an ignorant medical establishment. I have to work in collaboration with thought leaders and experts and be a champion for my son. Until we have substantial research and evidence that vaccines are not contributing to neuro-inflammation in a subset of children, we cannot rule out this possibility. If you really believe the studies that have found no connection between autism and vaccines, perhaps you should put on your investigative hat and really examine the flaws in the 14 studies. I have. So did the late Dr. Bernadette Healy. As educated and intelligent parents, I hope we can at least agree that we need to support one another until we find a cause and treatment. That's why I'm part of this great TAA group and have been for many years. I don't post much, but I do read the posts. Thanks to for calming the flames from our debates when they get a bit too heated. Please continue the discussion but not personal attacks on list members. Intelligent and objective debate opens minds and challenges our thinking. Further, we should all question our understanding of the 'truths' we have been told by the media, the government and scientists. If you stop seeking the truth, you risk becoming myopic and stubborn. Blessings, > > > > , > > > > I’m sorry the posts have upset you, but there is no reason to shut down debate. That is precisely what this list > > is for and the topic is very pertinent. > > > > Some of us find the anti-vaccine posts quite helpful and constructive. Why don’t you just ignore them? > > > > There are many posts on here I don’t find helpful, but why should I tell the posters to stop posting? It’s > > their right and I imagine other people find them helpful. > > > > Give us a chance and you’ll find this list is a great place to get lots of good advice. > > > > Marilyn > > > Quote Link to comment Share on other sites More sharing options...
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