Re: we need to brainstorm ways to prevent our economic marginalization

[Guest guest]

I'm afraid they would put us all in " avoid this group " package but if

others can think of something, I'm in.

--- In , LiveSimply <quackadillian@...>

wrote:

>

> Does anyone else here think that since we all seem to be facing

> similar, serious problems economically as a result of our illness

[Guest guest]

Eh - we're already on lists, I'm sure.

One of the other sites had negotiated discounts with lab, I noted once...

~H.

barb1283 <barb1283@...> wrote: I'm afraid

they would put us all in " avoid this group " package but if

others can think of something, I'm in.

>

> Does anyone else here think that since we all seem to be facing

> similar, serious problems economically as a result of our illness

[Guest guest]

Well then, there are labs in Dallas that Dallas Environmental Clinic

uses that Dr Hooper runs. He does testing for mycotoxins. I wonder

if he would give this group a discount on testing?

The question would be if he does testing without an Rx requesting

it. I bet he does since he doesn't bill to insurance companies but I

did have an Rx for tests run by him so don't know for sure. Then

second question would be if he would give discount. I don't know

what the incentive for him would be since he is one of few labs that

do the tests he does. Not like he has alot of competition but never

know. I cannot look into this as I'm too busy trying to get back

into my sick house. (Sounds weird but it's the 'sick' place I know

rather than the 'sick' place I don't know.)

Regarding Dr Hooper: I don't think he bothers with insurance anyway,

since most insurances don't cover mycotoxin testing that I have

heard of anyway. I heard the Medicare does though for those of you

who are on disability coverage...I **think**. Medicare actually

covers alot of novel treatment surprisingly and heard recently that

Anthem has started to cover some medical services that members have

gone out of the country for this they were less expensive.

Insurance companies SHOULD be interested more in treatments that

strive to cure rather all this symptom management done by most

doctors here. For example I heard Medicare covered some alternative

cancer treatments people were going to Mexico for.

>

> Eh - we're already on lists, I'm sure.

> One of the other sites had negotiated discounts with lab, I noted

once...

>

> ~H.

>

[Guest guest]

There need to be state-based organizations to lobby in each state for better

laws on mold in workplaces and homes. There need to be ways we can get

package deals on services we need such as medical testing and treatments.

etc.

There are also other services that we need that we might be able to get

discounts on. For example, mold victims seem to sometimes need to replace

almost everything they own.

That is a dream market for some industries.

Shouldn't we be able to get a discount on that somehow? Similar to the

discounts given older people.

[Guest guest]

Barb, YES, that is another thing we desperately need, a way to get

testing without an Rx in a pre determined package of tests that will

expedite the process of people being able to get the right treatments.

Say Lab Corp and Quest could have some code number that would allow us

to get a bunch of their tests all for under $400 or so. so the total

would be under $1000 for people.

That has been a BIG obstacle for me, the costs of all those tests and

the difficulty of getting doctors to prescribe them.

[Guest guest]

I just noticed at POA website that Dr Hooper's company that I

suggested would be good lab to get a discount from, " Realtime Labs " ,

is one Melinda Ballard has arranged discounted tests and there is no

Rx necessary...unless you are insured and you want your insurance to

pay for it, then you would need an Rx.

>

> Well then, there are labs in Dallas that Dallas Environmental Clinic

> uses that Dr Hooper runs. He does testing for mycotoxins. I wonder

> if he would give this group a discount on testing?

>