Harassment of members

Posted May 27, 2007 · May 27, 2007

I just recently reposted the terms and conditions of this group and

there is one thing I will not tolerate,no exceptions, and that is

the harassment of one member to another through back channels.

This has happened recently and in the past, and if it continues

those who are participating will be removed. This issue that we are

dealing with is not a simplistic one to handle, since we are all

dealing with many variables. I don't remember at any time, anywhere

on this board, where someone said, one size fits all. I think we all

know better than that. I wish that was the case.

I don't want anyone to feel that they will be harassed because they

are doing someone's protocol other than the one that is mentioned on

this board quite frequently. I don't want you to hesitate about

responding to someone's questions or concerns or the results that

they are experiencing, negative or positive on their physicians

treatments. The more input from members the better.

I would love to hear more from others who are seeing other

physicians how their protocols are or are not working. There are

several good doctors that many of us are aware of, without

mentioning their names. Do any of them claim to have the cure, of

course not, and the ones that claim that they do, I would really be

suspicious of right now.

As far as I am aware of, all they can do is inform and educate us to

prevent further exposure and damage to our immune systems. They can

stop the progression of many of the effects from mold/mycotoxins,

but they can not heal or repair damaged organs. We will recover to a

point, but new treatment is continously being worked on.

Science is changing daily along with diagnosing and treatment, which

tends to be very expensive to get this information out in the

medical community. All we can do is hope that some day soon that

there will be new medications available to us.

We can not bash members or their physicians because they are willing

to try new medications, even though we may not agree with it. We are

not the doctor or the patient and one of the medications that is

being used today, of course not what the FDA recommended it for,

just happened to be accidently stumbled upon and found to work for

the elimination of these toxins. This goes to show the same thing

could happen again with any patient or physician.

I salute ANY doctor that is willing to acknowledge this condition

and willing to listen to their patients, and physicians that have

been in the field for many years.

We all have our days and many times our stress and anger levels are

elevated because of the way we feel and the lack of. Many times

we've had to bite our tongues one time or another for good reason.

None of us have all the answers and I don't know of anyone that

does. There are many that are real close to putting all the pieces

together though.

Let's remember that this is a support group to help guide one

another, offer suggestions, opinions and relate our experiences.

There are two ways to answer a post, professionally and

unprofessionally. Let's not forget the many new members that are

continously joining this board and the frame of mind they may be in,

of just not knowing and why am I feeling like this, or why are my

kids so sick. For many of us that have been here for many years we

still can relate to the changes and effects that it has had on our

lives.

I remember where I came from, and what I went through in the

beginning of just not knowing what was causing my wife's condition.

For those of you that don't know me or my story, I was not exposed,

my wife was at her place of employment. I often wonder what would be

worse if there even is a comparison, I guess spouces, family or

friends could only understand where I am coming from. As horrible

that this condition is and the pain that you all relate to, the

symptoms and the illnesses that you have experienced, I often

questioned what would have been best if I was in the same boat,

instead of watching a spouce or a loved one age and deteriate right

before your eyes. No one needs to answer to this statement, but

either way, it is not easy.

The least we can do is be there for one another with complete

understanding and compassion and support when needed. I must tip my

cap to some of those spouces, friends and family that haven't gotten

up and ran and deserted you in your time of need.

Let's just remember what we are here for, because like myself

without this board, your help and the help of many other

professionals and advocates, I really don't know where I would be

today.

Be kind. Keep a positive attitude and a good sense of humor.

KC,

Owner

Posted May 28, 2007 · May 28, 2007

I couldn't agree with you more, KC! This forum has done more for my physical and

mental health situation than any one doctor could ever dream of doing. I don't

have the time or energy to waste it on others' dissatisfactions and backbitings.

Since there are people out there, apparently, that have the time and energy to

do such backbiting, maybe they should think about what their own true motives

are and be grateful they have been given life as a human being.

You see, if our motives are self-serving, we have no business getting involved

in a discussion list that deals with " serving " others. So do so in a healthy,

non-provoking way. It is apparent you need to resolve your anger. If you need

the phone number of an expert in anger resolution, let me know and I will give

you his contact information. I will pray for your complete healing.

In His Service,

Young <><

tigerpaw2c <tigerpaw2c@...> wrote: I just

recently reposted the terms and conditions of this group and