HLA genotype?

[Guest guest]

Hello Everyone,

Ive posted on here before and finally was able to get the HLA

genotype testing done.

I have the dreaded genotype, which i did suspect since i am so sick.

I have the 12-3-52B

and the chronic lyme 15-6-51

the alternative Dr I am seeing said that he has success treating

patients with IV Phosphatidyl Choline , which supposedly cleans out

your system of toxins.

I have tried the oral Phosphatidyl Choline but after i few days it

hurts my bladder (i have intercetial cystitis) I just dont know

what to think about it, the IV is 200 and they recommend 2 a week.

I dont have that kind of money since Im on disability.

All of my symptoms hit me hard in August 2005 while on vacation in

the mountains of PA, I was swimming in a lake the day it happend as

well. It was just such a sudden onset that i think it was lyme. I

did try to treat the lyme but the antibiotics just seemed to make me

sicker and sicker and i saw little improvement.

Where i used to work i sat under an HVAC vent that would blow on my

ALL day long, i complained and complained and they did nothing. One

of the tiles near where i sat fell down almost hitting a coworker,

and was saturated with water, there were often buckets collected

water on the first floor of the building. When i started working

there I got real bad bronchitis and would get it atleast once a

year, I also had a sore throat on and off and allergy like symptoms.

I havent had bronchitis since being fired while out on disability,

and my sore throats are non existant. But i dont know if that is

because i treated the lyme.

My main symptoms now are bladder pain, neck pain, like someone is

standing on my shoulders, thirst, joint stiffness, severly tight

pelvic muscles.

I just dont know what direction to go in next....do i go back on the

antibiotics, do I do the IV Phosphatidyl Choline . anyone have any

suggestions.

thanks for your help