Re: Sue: Cholestyramine question

[Guest guest]

Beth, you can ask a hundred more questions and I'll be happy to answer as

many as I can. I took m other meds with my meals. I take Trental which is for

circulation and must be taken with food. I also take my vitimans with my

breakfast (B complex and calcium). If you have any problems with consipation use

Milk of Magnesia (sp) just before bed followed with a cupof water.I

use 1 tsp. but you'll have to experiment with what works for you. Maybe 2tsp.

Hope that helps.

If you have any more questions plese don't hesitate to ask but I'll be away

Sun. thru Thurs.

Sue

Sue, one more question. At what time do you take your other meds?

I'm only on one, and I took it this morning an hour after the CSM.

I'm going to try to follow your schedule, 6:30am, 11am, 4pm, and then

9pm.

Thanks,

Beth

>

>

> Hi Beth, I got very sick the fall of 2003 and began taking CSM in

Dec. I

> took it 4 times a day and NEVER missed a dose. I am still taking it

twice a day

> and am 100% better than I was.

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[Guest guest]

Beth,

I am NOT AN EXPERT on this but this is how I understand it. Guaranteed, I

will make some mistakes with this.. so use it as a starting point ONLY to

actualy finding out what happens elsewhere..

Many (but not all) mycotoxins are what are called " low molecular weight "

chemicals which means that they behave like water in the body, they are able

to go between cells and penetrate cell walls. When they are inhaled - (most

are on dust like particles, not just in spores, BTW,) or absorbed through

the skin (say, through your hands or feet or from your scalp when you wash

your hair with a shampoo with sodium laurel sulphate, etc. some can

actually go THROUGH the skin enter the bloodstream and MANY of them can

cause massive levels of many different kinds of damages as they travel

around the body. (They can even destroy the integrity of the blood brain

barrier and get into your brain, as well as letting other things that

shouldn't get in there get in to your brain's blood supply) They can damage

cells directly, they can damage their DNA, making them make errors when they

try to divide, they can make them commit suicide needlessly, they can make

the cells burn themselves out.. Probably others..

Those mycotoxins SHOULD NOT BE THERE but they are so they circulate around

your body and its the job of the liver, mostly to remove them but it does so

at a huge cost in that many cells must die in order to do this. (The kidneys

and several other organs are also involved in removing toxins but again,

they all pay a price when they have to deal with very toxic substances.)

One cost that I think mycotoxins have is that they age you by causing cells

to be used up to repair damage.. there is a finite number of times those

cells can divide.. (thats why we age..) Others involve the creation of free

radicals, toxic chemicals that damage things..

Just thinking about this is making me tired..

Then the liver sends these bad things into your bile. The bile is used to

digest food and thats how it ends up in the stomach, after going into your

gall bladder for storage first (if you still have one) The bile is released

when you eat food to aid in its digestion.

The cholestyramine is supposed to mix with the bile and bind with it, which

makes the bile into an inert substance that you just poop out. If that is

not done, then the bile gets RE-USED and the mycotoxins go along for the

ride, and when you are getting mold exposures they can build up and keep

doing more and more damage.. If they get excreted, the body just makes more

bile, fresh bile that hopefully (if by then you have gotten away from the

mold) doesnt have the toxins in it.. But it takes a while for them to work

their way out..

Whew...

On 7/12/07, Beth <bethlakey@...> wrote:

>

>

> Another question, how do the mold spores get in the colon in the first

> place? I thought they were inhaled and stayed in the lungs? And

> last,what do you think is a good trial period to see if this is

> helping? My problems are neurological, and I am guessing those take a

> long time to get better.

>

> Thanks so much,

> Beth

>

>

[Guest guest]

sounds to me doing a few good liver flushes/cleanses would serve the

same purpose as Cholestyramine....but that's just me. :-)

> >

> >

> > Another question, how do the mold spores get in the colon in the first

> > place? I thought they were inhaled and stayed in the lungs? And

> > last,what do you think is a good trial period to see if this is

> > helping? My problems are neurological, and I am guessing those take a

> > long time to get better.

> >

> > Thanks so much,

> > Beth

> >

> >

>

>

>

[Guest guest]

I don't know about mycotoxin actions but one correction, bile mixes

with food in the small intestine:

" The liver produces yet another digestive juice—bile. The bile is

stored between meals in the gallbladder. At mealtime, it is squeezed

out of the gallbladder into the bile ducts to reach the intestine

and mix with the fat in our food. The bile acids dissolve the fat

into the watery contents of the intestine, much like detergents that

dissolve grease from a frying pan. After the fat is dissolved, it is

digested by enzymes from the pancreas and the lining of the

intestine. "

http://digestive.niddk.nih.gov/ddiseases/pubs/yrdd/

--- In , LiveSimply <quackadillian@...>

wrote:

>

> Beth,

>

> I am NOT AN EXPERT on this but this is how I understand it.

Guaranteed, I

[Guest guest]

The toxins just circulate around your body.via the cells.

Toxins bind to the CSM in your colon then elimanated. I don't know what a

good trial period is. Everyone is different and our exposures are not the same.

The first thing that improved for me was my brain fog!! In just about 2

weeks I felt like I had come out from a dark cave and was sleeping better.

Joint

pain improved steadily but elbows ached for a long time. As for the

neurological problems that took some time. I will never be 100% but I am 100%

better

than I was. I had the 60 min.MRS last fall. taking Procrit has helped. Still

have some memory loss which will probably never get better. When I was at my

worst I couldn't remember my students names or spell simple words on the

board and misplaced EVERYTHNG!!! I even found my check book in the frig once

and

couldn't remember simple verbal directions.Absolutley frightening!

It does get better but it takes a long time. I think it took me a year to

start feeling good. For about a yr. I slept most of the time. After about a yr.

I felt like I was coming out of a coma.

Sue

This is so helpful, thanks. That is what I've been doing today. I've

taken it at 6:30, 11am, 4pm, all an hour before meals. My last dose

will probably be before bedtime. It doesn't seem to be bothering me.

So far, I am not having the constipation problems that I was warned

about.

Another question, how do the mold spores get in the colon in the first

place? I thought they were inhaled and stayed in the lungs? And

last,what do you think is a good trial period to see if this is

helping? My problems are neurological, and I am guessing those take a

long time to get better.

Thanks so much,

Beth

>

>

> I can only tell you that I followed Dr. Shoemaker's protocol to the

letter!!

> Always took mine prior to eating. 1/2 to an hour before. It must be

on an

> empty stomach for it to work. I have been doing that since 2003 and

all I can

> say is it has done it's job.I followed the Drs. orders and am

thankful for the

> results.

> Sue

>

************************************** Get a sneak peak of the all-new AOL at

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[Guest guest]

Beth, YES, I did feel worse before I began to feel better.I was extremely

tired, everything hurt and I honestly thought I was going to die. It took me a

long time and I wasn't working so hang in there and try really hard to get 4

doses every day. It is really important. I know it's hard but keep it up and

hopefully you'll see light at the end of the tunnel like I did! Even

when you think you can't drink one more sip of the powder, just close your eyes

and GULP IT DOWN!!!!!

Sue

Sue, thank you so much! I will check into the containers. I have

been carting my huge container of CSM to work with me. When you

started it, did you feel you got a little worse initially? I started

taking it last week, and it seems I have a little brain fog. I do

have neurological problems, but haven't experienced brain fog in a

very long time. I am hoping the CSM will allow me to keep working.

You've inspired me to try for 4 times a day. If I can get that early

morning dose in, the rest won't be so bad.

thanks so much,

Beth

>

>

> Hi Beth, I got very sick the fall of 2003 and began taking CSM in

Dec. I

> took it 4 times a day and NEVER missed a dose. I am still taking it

twice a day

> and am 100% better than I was. I developed a pretty good routine.

I know it

> is difficult but the medication worked wonders for me!!!!!! I got

the little

> plastic sippy jugs that kids take in their lunch boxes. They have

a plastic

> straw inside them that I remove. I fill it about 3/4 with water

or crystal

> lite tea add the CSM and put it by my bed and an extra one with

water. Set my

> alarm (or take it when my husband gets up) shake it up, drink it

down

> followed by a cup of water and go back to bed. Sometimes I even

took it at 3AM if I

> woke up that early.

> Then you can do back to sleep or wait a half hr. before eating.

Take the

> next dose about 11am or an hr. before eating. 3rd dose about 3 or

4PM and the

> last one at 9 or 10PM. I had other meds that I had to take with

food so this

> schedule worked for me. I was religious about taking it and yes,

my entire day

> centered around my medication and still does.

> The little sippy jugs also are great to take with you if you have

to go out.

> Just mix it before leaving put it in a zip lock bag or thermal

lunch bag and

> off you go. I also had an extra one to take extra water along.

That way you

> have no mixing to do. Don't waste your money or time with the

Dollar Store

> brands because they leak. I got mine at

> WalMart, Rubbermaid I think and they wash well in the Dishwasher or

I use a

> bottle brush.

>

> Good luck and if you want to talk more I can call you anytime.

> Sue

>

************************************** Get a sneak peak of the all-new AOL at

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[Guest guest]

Sue, do you take the CSM as it comes normally or do you get it

compounded without sweetner and color?

>

>

> Beth, YES, I did feel worse before I began to feel better.I was

extremely

[Guest guest]

Here is the protocol I received from Dr. Shoemaker in April 2007:

1. On an empty stomach, take one scoop of CSM (9 grams), mix with

water, or juice, 4-6 oz

2. Stir well and swallow. Add more liquid, repeat 1 above until done.

3. Drink an extra 4-6 oz of liquid

4. After 30 minutes, you may eat or take meds (wait at least 2 hours

before taking thyroxine, digitalis, theophylline, coumadin and others, ask

your doctor for information)

5. Take CSM 4 times a day!

6. If you eat first, wait at least 60 minutes before taking your next

CSM

7. Reflux, constipation, bloating and bowel distress are to be expected

8. Use acid blocking medications as needed

9. Use sorbitol, 70% solutions, 1 TBSP 3-4 times a day to relieve

constipation

The following routine works really well for me: When I get up I take thyroid

meds, then wait an hour before eating breakfast. After I finish eating I

wait another hour before taking CSM (which adheres to the 2 hours after

thyroid meds). I take my first dose of CSM, then wait an hour and take my

second dose of CSM. According to the protocol I can eat again after 30

minutes. After I finish dinner I wait an hour to take the 3rd dose, then

wait another hour for the 4th and final dose. In another half hour I have my

evening snack. This way I really only have to think about when/how to take

CSM twice a day. I don't have a fixed schedule for breakfast, lunch or

dinner so this suits my variable situation.

Often I use the kitchen timer (or other timer) to help remind me when the

hour has passed.

As they used to say in my youth, there's more than one way to skin a cat.

[Guest guest]

Thanks, for posting the protocol!!! I haven't found mine yet so now I can

stop looking.

Sue

[Guest guest]

SOME neuro problems never get better, gang. My spinal cord is demyelinated due

to molds....NOT curable.

V.

Re: [] Sue: Cholestyramine question

The toxins just circulate around your body.via the cells.

Toxins bind to the CSM in your colon then elimanated. I don't know what a

good trial period is. Everyone is different and our exposures are not the

same.

The first thing that improved for me was my brain fog!! In just about 2

weeks I felt like I had come out from a dark cave and was sleeping better.

Joint

pain improved steadily but elbows ached for a long time. As for the

neurological problems that took some time. I will never be 100% but I am 100%

better

than I was. I had the 60 min.MRS last fall. taking Procrit has helped. Still

have some memory loss which will probably never get better. When I was at my

worst I couldn't remember my students names or spell simple words on the

board and misplaced EVERYTHNG!!! I even found my check book in the frig once

and

couldn't remember simple verbal directions.Absolutley frightening!

It does get better but it takes a long time. I think it took me a year to

start feeling good. For about a yr. I slept most of the time. After about a

yr.

I felt like I was coming out of a coma.

Sue

This is so helpful, thanks. That is what I've been doing today. I've

taken it at 6:30, 11am, 4pm, all an hour before meals. My last dose

will probably be before bedtime. It doesn't seem to be bothering me.

So far, I am not having the constipation problems that I was warned

about.

Another question, how do the mold spores get in the colon in the first

place? I thought they were inhaled and stayed in the lungs? And

last,what do you think is a good trial period to see if this is

helping? My problems are neurological, and I am guessing those take a

long time to get better.

Thanks so much,

Beth

>

>

> I can only tell you that I followed Dr. Shoemaker's protocol to the

letter!!

> Always took mine prior to eating. 1/2 to an hour before. It must be

on an

> empty stomach for it to work. I have been doing that since 2003 and

all I can

> say is it has done it's job.I followed the Drs. orders and am

thankful for the

> results.

> Sue

>

************************************** Get a sneak peak of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Thank you very much. I am hopeful this will work.

thanks,

Beth

>

>

> Beth, YES, I did feel worse before I began to feel better.I was

extremely

> tired, everything hurt and I honestly thought I was going to die.

It took me a

> long time and I wasn't working so hang in there and try really

hard to get 4

> doses every day. It is really important. I know it's hard but keep

it up and

> hopefully you'll see light at the end of the tunnel like I

did! Even

> when you think you can't drink one more sip of the powder, just

close your eyes

> and GULP IT DOWN!!!!!

[Guest guest]

wow, it seems the neurological stuff can be really bad. I'm hoping

I can get to see Dr. Shoemaker after my insurance switches over in

January. I have mild brain fog, mostly a problem with sometimes

saying or writing a different word than what I am thinking, but the

biggest problem is numbness and tingling in my face and nose.

thanks,

Beth

> >

> >

> > I can only tell you that I followed Dr. Shoemaker's protocol to

the

> letter!!

> > Always took mine prior to eating. 1/2 to an hour before. It

must be

> on an

> > empty stomach for it to work. I have been doing that since 2003

and

> all I can

> > say is it has done it's job.I followed the Drs. orders and am

> thankful for the

> > results.

> > Sue

> >

>

>

>

>

>

>

>

>

> ************************************** Get a sneak peak of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

>