Sue: Cholestyramine question

[Guest guest]

Sue, thank you so much! I will check into the containers. I have

been carting my huge container of CSM to work with me. When you

started it, did you feel you got a little worse initially? I started

taking it last week, and it seems I have a little brain fog. I do

have neurological problems, but haven't experienced brain fog in a

very long time. I am hoping the CSM will allow me to keep working.

You've inspired me to try for 4 times a day. If I can get that early

morning dose in, the rest won't be so bad.

thanks so much,

Beth

>

>

> Hi Beth, I got very sick the fall of 2003 and began taking CSM in

Dec. I

> took it 4 times a day and NEVER missed a dose. I am still taking it

twice a day

> and am 100% better than I was. I developed a pretty good routine.

I know it

> is difficult but the medication worked wonders for me!!!!!! I got

the little

> plastic sippy jugs that kids take in their lunch boxes. They have

a plastic

> straw inside them that I remove. I fill it about 3/4 with water

or crystal

> lite tea add the CSM and put it by my bed and an extra one with

water. Set my

> alarm (or take it when my husband gets up) shake it up, drink it

down

> followed by a cup of water and go back to bed. Sometimes I even

took it at 3AM if I

> woke up that early.

> Then you can do back to sleep or wait a half hr. before eating.

Take the

> next dose about 11am or an hr. before eating. 3rd dose about 3 or

4PM and the

> last one at 9 or 10PM. I had other meds that I had to take with

food so this

> schedule worked for me. I was religious about taking it and yes,

my entire day

> centered around my medication and still does.

> The little sippy jugs also are great to take with you if you have

to go out.

> Just mix it before leaving put it in a zip lock bag or thermal

lunch bag and

> off you go. I also had an extra one to take extra water along.

That way you

> have no mixing to do. Don't waste your money or time with the

Dollar Store

> brands because they leak. I got mine at

> WalMart, Rubbermaid I think and they wash well in the Dishwasher or

I use a

> bottle brush.

>

> Good luck and if you want to talk more I can call you anytime.

> Sue

>