Guest guest Posted February 11, 1999 Report Share Posted February 11, 1999 Hi everyone.I've been reading the postings for a few weeks now and finally decided to write you about my daughter. Her name is Cassy and she has had multiple medical problems since birth. She is now 16 and ACM is just the latest in this long story.She was first diagnosed with ACMI in November of 1995 when an MRI was done because she was having headaches.The doctor didn't propose that anything be done at that time. Since last fall she's been having headaches every morning and the headaches started increasing in December along with a host of other symptoms.She has dizziness,nausea,fatigue,neck and head pain,etc.etc. Most recently she has had difficulty swallowing and has had numbness and tingling in her right arm along with some decreased pain sensation in her hands. She went to see a neurologist on Jan.27 and I felt like he pretty much blew us off.He said Chiari I was usually asymptomatic and that her neurological exam was normal.I was referred to him by my daughter's orthopedist since she had been seeing him for another problem. He was quite concerned when he saw she had been diagnosed with ACMI and got us in to see the neurologist within a week so I was surprised at the neurologist's reaction. She had another MRI done however and this showed that a syrinx has developed.She is scheduled to see a neurosurgeon on Feb.22 and I'm hoping this guy has a different attitude.My question is can you guys give me some advice on what to ask the nsg and how likely do you think it is that they will operate based on her condition now? Sorry this is so long. ______________________________________________________ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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