Re: Use O2 all the time???

[Guest guest]

I was diagnosed with IPF in 12/04. I carry oxygen with me when I go out and I use it in my car. I usually have it around 2L – sometimes I feel that I need more. I usually sleep with my O2 on.Is it to my advantage to have my O2 on all of the time??? For example, now I'm on my computer and have been for a couple hours without my O2 I need to replace the batteries in my Pulsox-2 (I just replaced the batteries less than 2 weeks ago!), so I don't know what my level is. I do know that I get very tired, very quickly. The mind is willing, but the body isn't able – if you know the old saying.Any info you could give me would be appreciated.Thanks.Nelda

I started out like you, not really needing it...tagging it along, just in case. (2004) For me...as time went on...I needed it...or the more active and the more exhertion I put out, the need for 02 increasingly became evident. I am on it 24/7 now. When I get up from my recliner and walk a few steps out the front door to my suburban, I take off my home 02 and am steadily reaching for the travel 02. I have become so dependent on it. I do pretty good if I am sitting...doing nothing at all. But honestly, I believe its also a mind thing besides a physical necessity. I am exhausted all the time...I hear that alot from most of you...so I know I am going through the same symptoms as most. Thank ou all for sharing.

~Ginger~

[Guest guest]

Nelda - I am a nurse and I am on oxygen all the time. You should be evaluated to know when your oxygen level drops....with me, it's mostly anything I do gets me very short of breath...without oxygen and doing minimal activity, my oxygen level is in the mid 70's. It is supposed to be over 95%. Your body needs to be oxygenated all the time...it isn't something that it can store up....so if your level goes down, you need to be on oxygen. It's a simple thing to see if you need it...it just clips onto your finger and has a digital readout. When I was first diagnosed they tested me and I was in the high 80's....then they had me walk down the hall and it just kept dropping.

It is important to understand that your brain and organs need to be oxygenated or they will start shutting down.....your body will literally start sacrificing less important organs, like your kidneys...because it considers your brain and heart to be the most important. This doesn't happen overnight....it takes awhile for this to happen...but you will feel better on the oxygen. Someone on this list equated it with drinking a cool glass of water when you are thirsty...So, call that doctor and have him check, OK? Good luck and God Bless.

Diane

--Diane Quinlan dianequinlan@...

-------------- Original message -------------- Hi, again.I'm really not clear and I don't feel that I've received definitive answers from my doctors because I don't know that I've insisted on them.I was diagnosed with IPF in 12/04. I carry oxygen with me when I go out and I use it in my car. I usually have it around 2L – sometimes I feel that I need more. I usually sleep with my O2 on.Is it to my advantage to have my O2 on all of the time??? For example, now I'm on my computer and have been for a couple hours without my O2 I need to replace the batteries in my Pulsox-2 (I just replaced the batteries less than 2 weeks ago!), so I don't know what my level is. I do know that I get very tired, very quickly. The mind is willing, but the body isn't able – if you know the old saying.Any info you could give me would be appreciated.Thanks.Nelda

[Guest guest]

Yes, leave that 02 on your face. Especially when sleeping. That is usually when oxygen levels drop most dramatically. Do you have a concentrator at home? When I wore a 24 hour monitor, my levels dropped more while I was sleeping, eating and talking. All my favorite things!

Hugs,

Joyce>> Hi, again.> > I'm really not clear and I don't feel that I've received definitive > answers from my doctors because I don't know that I've insisted on > them.> > I was diagnosed with IPF in 12/04. I carry oxygen with me when I go > out and I use it in my car. I usually have it around 2L – sometimes > I feel that I need more. I usually sleep with my O2 on.> > Is it to my advantage to have my O2 on all of the time??? For > example, now I'm on my computer and have been for a couple hours > without my O2 I need to replace the batteries in my Pulsox-2 (I > just replaced the batteries less than 2 weeks ago!), so I don't know > what my level is. I do know that I get very tired, very quickly. > The mind is willing, but the body isn't able – if you know the old > saying.> > Any info you could give me would be appreciated.> > Thanks.> > Nelda>

[Guest guest]

Janne, I am lucky. While my sat drop when sleeping and eating, it goes up when I talk (unless I am upset). Therefore, part of my daily medicine is to talk and laugh with myf friends on a daily basis. When I miss this morning talk (replete with laughter), I have more difficulty with my exercise program! Go figure!!!! maryjanne5303 wrote: Yes, leave that 02 on your face. Especially when sleeping. That is usually when oxygen levels drop most dramatically. Do you have a concentrator at home? When I wore a 24 hour monitor, my levels dropped more while I was sleeping, eating and talking. All my favorite things! Hugs, Joyce>> Hi, again.> > I'm really not clear and I don't feel that I've received definitive > answers from my doctors because I don't know that I've insisted on > them.> > I was diagnosed with IPF in 12/04. I carry oxygen with me when I go > out and I use it in my car. I usually have it around 2L – sometimes > I feel that I need more. I usually sleep with my O2 on.> > Is it to my advantage to have my O2 on all of the time??? For > example, now I'm on my computer and have been for a couple hours > without my O2 I need to replace the batteries in my Pulsox-2 (I > just replaced the batteries less than 2 weeks ago!), so I

don't know > what my level is. I do know that I get very tired, very quickly. > The mind is willing, but the body isn't able – if you know the old > saying.> > Any info you could give me would be appreciated.> > Thanks.> > Nelda>

marymassung

Yahoo! Mail Use Photomail to share photos without annoying attachments.

[Guest guest]

Dianne, When my angiogram was done, my 02 sat was in the mid 70's. After I was put on 02, I was warned that I could have lost brain cells because of the 02 deprivation. At the time, I felt I was fine (memory-wise). Then, about a month ago, my niece contacted me asking if I would put all my memories of family stories (told to me by my grandmothers) onto a digital tape recorder. It was only then that I realized what part of my brain had been damaged by the lack of 02! I could recall very little. Some of my long term memory had been lost! marydianequinlan@... wrote: Nelda - I am a nurse and I am on oxygen all the time. You should be evaluated to know when your oxygen level drops....with me, it's mostly anything I do gets me very

short of breath...without oxygen and doing minimal activity, my oxygen level is in the mid 70's. It is supposed to be over 95%. Your body needs to be oxygenated all the time...it isn't something that it can store up....so if your level goes down, you need to be on oxygen. It's a simple thing to see if you need it...it just clips onto your finger and has a digital readout. When I was first diagnosed they tested me and I was in the high 80's....then they had me walk down the hall and it just kept dropping. It is important to understand that your brain and organs need to be oxygenated or they will start shutting down.....your body will literally start sacrificing less important organs, like your kidneys...because it considers your brain and heart to be the most important. This doesn't happen overnight....it takes awhile for this to happen...but you will feel better on the oxygen. Someone on this list equated it with drinking a cool

glass of water when you are thirsty...So, call that doctor and have him check, OK? Good luck and God Bless. Diane --Diane Quinlan dianequinlan@... -------------- Original message -------------- Hi, again.I'm really not clear and I don't feel that I've received definitive answers from my doctors because I don't know that I've insisted on them.I was diagnosed with IPF in 12/04. I carry oxygen with me when I go out and I use it in my car. I usually have it around 2L – sometimes I feel that I need more. I usually sleep with my O2 on.Is it to my advantage to have my O2 on all of the time??? For example, now I'm on my computer and have been for a couple

hours without my O2 I need to replace the batteries in my Pulsox-2 (I just replaced the batteries less than 2 weeks ago!), so I don't know what my level is. I do know that I get very tired, very quickly. The mind is willing, but the body isn't able – if you know the old saying.Any info you could give me would be appreciated.Thanks.Nelda

marymassung

Relax. Yahoo! Mail virus scanning helps detect nasty viruses!