Re: Seeking testing/treatments for mold colonization in the body

[Guest guest]

Well, if you've had mold exposure, there are actually two kinds of issues

possible. (Someone please correct my explanations if I'm not saying this

correctly!)

The first are mycoses, fungal infections, the kind of thing he's talking about.

'Fraid I don't know how they are diagnosed, but there are a handful of doctors

who specialize in it, but I don't know who they are in California (despite

having lived there most of my life - lol). I assume you'll need an antifungal

drug to kill a fungal infection, if that's what it is.

You're question about whether the *cure* for that is worse than the disease (in

terms of whether or not you can tolerate drugs due to MCS) is way out of my

league. Perhaps someone with MCS can say whether they've had trouble with such

drugs.

The other set of problems people can have are mycotoxicoses from mycotoxins

produced by mold - this poison is distinct from infection - a whole different

can of worms. According to Dr. Shoemaker in his book Mold Warriors,

genetically, some of us don't produce the antibodies that help remove them from

the body efficiently. (I think the odds are that if you've found this list

you're in this camp because we tend to be the ones who have health consequences

from mold exposure.) There do, however, seem to be a small variety of meds and

supplements that can serve as biotoxin binders to get them out of the body - Dr.

Shoe has created a protocol with the drug CSM to bind to the toxins to get them

out of the body. Dr. Shoe's site: http://moldwarriors.com/

Dr. Vodjani's lab in Beverly Hills was able to do a lot of checking of this

sort, but last I knew, the state had him closed up - I think I heard he's back

in biz... His work is pretty cutting edge and they go after him a lot. Here's

a web link: http://www.immuno-sci-lab.com/aboutus.html I'd call them and ask

your questions there since it's relatively close by.

You may also want to contact Real Time Lab in Dallas:

http://www.realtimelab.com/

Good luck - it's an interesting journey...

~Haley

amandajsnyder <amandajsnyder@...> wrote:

Hello All,

I saw Dr. Marinkovich, an allergist/immunologist in California know and he

diagnosed me as having mold colonizations in my nasal

passages, skin and possibly my sinuses. He diagnosed me based on my

symptoms and IgE and IgG allergy tests that showed I was sensitive to

many molds.

I am in the process of looking at my treatment options. He prescribed

Nizoral spray and I am going to try it in a few weeks. I am a little

nervous that I won't tolerate (due to my chemical sensitivities).

I am wondering if anybody knows of any testing to confirm there is

mold in my body and what kind of mold. I also am exploring my options

for treatments of all types that will help rid my body/kill the mold

colonies.

Any recommendations would be greatly appreciated.

Thanks!

Mandy.

[Guest guest]

Mandy,

Haley does make some good points and hopefully I can add a bit to

it. I also saw Dr.M and was given Nizoral, I am severely chemically

sensitive, (throat closes up almost all the way, no voice for

several days, etc) I had no problem with the spray except for some

burning. When I called the office they said to cut it back (the

amount of sprays per nostril.)

As far as Immunoscience Labs in California, what I and others are

being told Dr.V's lab is no longer open and will not reopen for any

type of mold testing.

Hope this helps a little,

Sharon

>

> Well, if you've had mold exposure, there are actually two kinds of

issues possible. (Someone please correct my explanations if I'm not

saying this correctly!)

>

> The first are mycoses, fungal infections, the kind of thing he's

talking about. 'Fraid I don't know how they are diagnosed, but

there are a handful of doctors who specialize in it, but I don't

know who they are in California (despite having lived there most of

my life - lol). I assume you'll need an antifungal drug to kill a

fungal infection, if that's what it is.

>

> You're question about whether the *cure* for that is worse than

the disease (in terms of whether or not you can tolerate drugs due

to MCS) is way out of my league. Perhaps someone with MCS can say

whether they've had trouble with such drugs.

>

> The other set of problems people can have are mycotoxicoses from

mycotoxins produced by mold - this poison is distinct from

infection - a whole different can of worms. According to Dr.

Shoemaker in his book Mold Warriors, genetically, some of us don't

produce the antibodies that help remove them from the body

efficiently. (I think the odds are that if you've found this list

you're in this camp because we tend to be the ones who have health

consequences from mold exposure.) There do, however, seem to be a

small variety of meds and supplements that can serve as biotoxin

binders to get them out of the body - Dr. Shoe has created a

protocol with the drug CSM to bind to the toxins to get them out of

the body. Dr. Shoe's site: http://moldwarriors.com/

>

> Dr. Vodjani's lab in Beverly Hills was able to do a lot of

checking of this sort, but last I knew, the state had him closed up -

I think I heard he's back in biz... His work is pretty cutting

edge and they go after him a lot. Here's a web link:

http://www.immuno-sci-lab.com/aboutus.html I'd call them and ask

your questions there since it's relatively close by.

>

> You may also want to contact Real Time Lab in Dallas:

http://www.realtimelab.com/

>

> Good luck - it's an interesting journey...

>

> ~Haley

>

> amandajsnyder <amandajsnyder@...>

wrote: Hello All,

>

> I saw Dr. Marinkovich, an allergist/immunologist in California

know and he diagnosed me as having mold colonizations in my nasal

> passages, skin and possibly my sinuses. He diagnosed me based on

my

> symptoms and IgE and IgG allergy tests that showed I was

sensitive to

> many molds.

>

> I am in the process of looking at my treatment options. He

prescribed

> Nizoral spray and I am going to try it in a few weeks. I am a

little

> nervous that I won't tolerate (due to my chemical sensitivities).

>

> I am wondering if anybody knows of any testing to confirm there is

> mold in my body and what kind of mold. I also am exploring my

options

> for treatments of all types that will help rid my body/kill the

mold

> colonies.

>

> Any recommendations would be greatly appreciated.

>

> Thanks!

>

> Mandy.

>

>

>

>

>

>

>

[Guest guest]

Haley and Sharon,

Thanks for your responses.

Thanks for the heads up about the Nizoral.

Sharon, was it helpful for you?

Mandy.

---------------------------------

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[Guest guest]

Mandy,

Yes I do believe it was for my lungs. I've never had a sinus

infection, but I used it anyway because the doctor had said it would

coat the throat and go into the lungs. It did irriate my lungs, but

I figured that was a good thing and it just showed it was doing

something. What, no exactly sure. My guess, hopefully it was

destroying any live colonization or prevent further infection. It

did that for awhile, not any more. But I still use it every now and

then as a preventative, like when I take a mold hit.

Hope this helps,

Sharon

>

> Haley and Sharon,

>

> Thanks for your responses.

>

>

> Thanks for the heads up about the Nizoral.

>

> Sharon, was it helpful for you?

>

> Mandy.

>

>

> ---------------------------------

> Take the Internet to Go: Go puts the Internet in your

pocket: mail, news, photos & more.

>

>