Re: ultrasound, nodules, possible adenoma, looking at TT, questions!

[Guest guest]

Vicki, I had RA I about a month ago. The worst part for me was the 6 weeks without thyroid medication. I really have not had any problems from the RAI with the exception of constant diarrhea. I also developed a leg rash from the forced hypothyroidism. I have had some toe and hand muscle spasms after the TT as I had to have one parathyroid reimplanted. I had a multinodular goiter and was told it was probably not cancerous, but after TT I was found to have multifocal follicular variant of papillary carcinoma in both lobes. They really cannot be sure you don't have cancer without a pathology of your thyroid. The FNA was negative for me. The only reason I opted for TT was a nodule was hemorrhagic. I am so glad that I did. BunnySent from my iPad

i posted this on TT FB Group page, but not here. After having Hypothyroidism all my life with all its symptoms (and I am 69), I finally got an ultrasound of thyroid.

Report says 4 nodules, one possible large one an adenoma (which can turn cancerous). Not wanting a biopsy every six months that might not catch cancer anyway on "cancer watch" the rest of my life, I was going to have a Total Thyroidectomy after calming down a few days, and reading recommendations from 2 people with extreme knowledge I trust.

Then I see Integrative doc who says, He wouldn't do it, it's a "nodular thyroid goiter" that PCP can't even feel, and "most adenomas don't turn into cancer (adeno-carcinoma), and if they mess up your parathyroids, you will have trouble w/calcium the rest of your life" -- whatever that means).

"MOST?" I've already had 5 epithethial cell cancer surgeries (skin cells lining a body cavity - (uterus, vagina x 3 kept coming back, lung + skin), plus have fibrocystic breasts, had ovarian cysts b4 hystero, not a good track record on epithelial stuff, which is what thyroid cancer is too.

I haven't talked to PCP yet, that's Monday, will report back. Then I find out usually TT is followed by RAI depending on path report and surgeon's opinion...when I was going to have it out anyway. I must convince PCP first, if he agrees with Integrative doc, tho, he's the "gatekeeper". I was going to fly to Dallas and use DD's thyroid surgeon, the majority of her practice, small hands really get in to be careful of parathyroids and vocal cords, small scar, ratings above average to excellent, no sanctions, no lawsuits, no reprimands by Tx Bd.

Need to know more about RAI, was going to overrule, but nicely, Integrative doc and have TT anyway -- better safe than sorry!. But what will RAI do to my body? I need input from you guys, you are always so helpful. Thanks!

Vicki K

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