Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hi Cassie, It is a frustrating disease, and I really don't think most doctors have a clue about what it is. Fortunately, the pulmonary doctor I was seeing when I was diagnosed gave me print outs from some web sites and I have done a lot of research on my own and every other problem that has come out of it. These include pulmonary hypertension, dilated esophagus and immunoglobulin deficiency (can't take antibiotics or cortisone anymore) Just type in whatever condition you want to research in the search bar or in Google, and you will get tons of good stuff. Merck manual is a good resource. Best wishes, MarilynStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
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