Re: new to group; looking for MCS suggestions

[Guest guest]

sorry to hear of your struggles. I don't live in the Philly area so

don't know of any doctors there but maybe if you research

preventitive doctors in your area you may find one that will treat

you naturally with herbs or even IV treatments may help. I can't

tolerate many drugs either so I try to stick with naturall remedies

but even some of those I'm allergic to and can not tolerate. Also,

try to find things that will help boost your immune system and help

your digestive system; that helped me with my sensitivities and my

weight lose.

Good Luck,

Dana

[Guest guest]

thanks for responding, Dana...

this area is like the dark ages in terms of medical care (I used to live in

SF)...

tried IVs and am not sure if I was reacting to the substances or their

preservatives... even the alternative docs are afraid to try things with me

because my reactivity is so great... aargh...

can tolerate some basic supplements orally... but every day brings a new set of

symptoms...

I have no idea how people manage this for years...

peace to you,

arlene

[Guest guest]

#1 find some way of detox. This is essential (underline this

statement)as long as you continue to carry mold toxins, you will be in

trouble. #1a get out of any exposure and cross contamination. #2 IMO

you will have to forget about the typical yogic diet. Your ability to

utilize nutrients and synthesize essential compounds has been

compromised. I found I had to swithc to a high protein and high fat

diet. As I adjusted my diet, I was better equipped to deal with any

triggering exposures and or figure out how to avoid them. Being in a

weakened state leads to general vulnerability,

I have some reactions to CSM but for me at the moment the benefits far

outweigh the problems especially given the protection that CSM

provides from furthere exposures. A friend of mine cannot tolerate it

at all but manages on Welchol. If you need to, find an herbal method

that works for you. But I can't see bypassing a toxin binding regimen.

My first bout of severe MCS lasted 5 years and then moderated for

years. I considered myself mostly cured for a long time. I then had

some serious toxic exposure and am much worse than ever. All systems

pretty messed up. You may or may not be able to get better. There is

plenty of evidence that inhalation of mycos causes direct brain damage

and there is no sure way to determing who will improve and/or how long

it take.

YMMV

Peace and Best Wishes,

S