Re: Re: Fibro

[Guest guest]

Ava I think you do everything I do except I use an electric blanket and that

helps . You need to see a Dr I use the Doxipin, Neurontin and Zanaflex and

within twenty minutes I am out under the wonderful warm blanket My legs bother

me too Ava and sometimes I can't stand to be touched on the leg others I am

fine

Re: Fibro

DEAR SHERRY--I'm so sorry about your fibro! Yes, after surgery, mine

flared up something terrible. The doctors in California have to use

a 'triple prescription' to prescribe anything stronger than extra-

strength Vicodin (and my surgeon--nice as he was--does not

treat 'other' conditions. He didn't understand that the fibro WAS

aggravated by the surgery!) So, my pain was drastically undertreated

for 2 years. I finally went to a great pain doc in San Diego who gave

me Oramorph (time-release morphine) and that finally ended the flare

up; I was pain free for several months moving up here.

Unfortunately, this cold weather has aggravated it again and I am

miserable; I am taking massive amounts of Aleve/Motrin/Excedrin for

my only relief. (I'm sure the doctors would much rather see me ruin

my liver/kidneys/pouch etc. than take even a small chance of giving

me adequate narcotics--and if I sound bitter about it, I am. I've

NEVER had even a slight addiction problem, and I certainly have

adequate documentation of THAT, but that doesn't matter to them...)

I sure HATE to have to make the rounds of doctors here and go through

the mess of trying to convince them I'm REALLY in pain and not to

undertreat it with as few narcotics as possible; that only has me

chasing more. When I WAS given enough morphine, I was able to

discontinue it on my own after just 3 months (that sure beats 12

YEARS on tylenol #3 and Vicodin!) Sometimes, I feel very hopeless...

Yes, I am just starting magnesium supplements too; that seems to

help. Neurontin for sleep helps too, but I've been out of that for

months; I REALLY need to get a doctor here--so far, I've just been

avoiding it. Not overdoing it helps too, but currently, I haven't

been able to do much, so it's hard to overdo ANYTHING LOL! Heat DOES

help--and keeping my legs warm enough--but I can't spend my life in a

bathtub...! I don't have too many suggestions that help besides

those. I sure hope YOU get some relief! You'll be in my prayers for

sure--sorry I'm such a downer about this!

Love, Ava Lee

In GastricBypass-InfoCentral@y..., " sherijacobs87 " <sjacobs3@t...>

wrote:

>

> My fibro ISN'T being benevolent; /Ethel/ how is yours?

(Who

> > else has fibromyalgia here?) Prayers for all of you for sure!

>

> Good Morning Ava,

>

> I have fibro, too. And like yours, mine isn't being benevolent.

> That's why I am home today. I was up and down all night last with

the

> pain.

>

> About a month ago, I was doing a 3 hour home visit with

grandparents

> who had adopted their grandsons. They both chain smoked and we were

> in a small place. Normally I would have asked that we go outside

> because I just don't like to be around that much smoke, but we were

> in the middle of an intense discussion/counseling session, so I

just

> let it go. By evening, in addition to smelling terrible, having

> watering eyes, a sore throat, and aching lungs, my fibro kicked in

> full force. I haven't really gotten it back under control since in

> spite of my doctor adding a new medication that has helped some.

>

> Currently I am taking Effexor XR, Mobic and Ultram, along with a

> Magnesium supplement. I know the Effexor will have to be changed to

> regular instead of extended release after my surgery, but do you

> think I will be able to take these medications post-op? Also, did

the

> surgery itself kick in a flare-up for you? I know that often

physical

> trauma can cause fibro to flare. While I understand that it is a

very

> individual thing, what have you found that helps? For me, avoiding

> sugar, using heat on the muscles that hurt really bad, and keeping

my

> exercise moderate rather than heavy duty seems to help me out. Any

> other suggestions for medications to try or tips to ease the pain?

>

> Thanks and gentle hugs to you.

>

> Sheri

> In Sunny Florida

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[Guest guest]

I was speaking with my ma last night about her Fibro and she takes the

Neurotin and swears by it she says she hasn't complained about hers flaring

up at all.

Love,

Theresa

*The great pleasure in life is doing what people say you cannot do*~Valter

Bagehot~

[Guest guest]

Yes, it can make you feel so lost and alone that nobody in the medical profession wants you well, because it really isn't in their best interests if you are well. I found a doctor who perscribes T3 in 2003, and traveled 200 miles 5 times before I finally got him to quit doing blood tests and give me the T3.

It's interesting to hear it isn't just me having problems.

Pat

Re: Re: Fibro

If I had a nickel for every DOLLAR I have spent on pharmaceuticals, labs and doctors to treat what is wrong with me, I could retire comfortably today. Instead I will have to work till I drop and can never afford to retire due to all the money spent in surviving this long. My illness not only robbed any chance of ever retiring but it also took my quality of life for 30 years. But I was able to barely work through it all, so that keeps the money going and THAT is the whole point of not treating this disease properly. It turns us into DUMB cows that pay every cent we earn in trying to keep alive, and yet doesn't quite kill us which would stop the money flow. Win win for everyone except US. I would liek to see this stopped in my lifetime.-- Artistic Grooming- Hurricane WVhttp://www.stopthethyroidmadness.com/http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/http://health.groups.yahoo.com/group/RT3_T3/

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