Re: Dr. Croft's paper--3 Stages of Mycotoxicosis (follow-up comments)

[Guest guest]

, I REALLY appritiate you posting this again. As always There is always

more to learn. I do have some specific question in lite of this that I will

address later but just from what I have read so many things are fitting like a

puzzle and gives me the info to further investigate some recent things. Let me

first say that I try to help and give help to others based on what I am going

through but I just don't explain myself well nor do I really have the

information to really be of much help. Sometimes my help might not be that

helpful.

I have noticed several things I have not seen before. I am very interested

since the hospital wants to do an MRI because of some slight damage found in my

liver. And it is the second time I have been refered for a stress test on the

heart which will be don this or next week. Many things make sence based on what

I was told this weekend in the hospital this weekend enough to again further

investigate. I was told that the fat in my blood was almost visible to the eye

and that is from high cholesteral. I wonder if it from the aspergillus suspected

in the lungs? I don't know, Anyway I have some further investigation to do

before I say much else.

Again Thank you so much for re posting this. I have not seen this before and

in lite of recent, past events and comments It makes so much sence.

Thank you thank you.

Chris...

[Guest guest]

,

It's nice to hear from you, it's been a while. Sorry to hear that

you are still having problems, but this is one we can definately

relate to. Sharon has been having problems with both her liver and

kidneys. It's horrifying at times just not knowing or even know what

to do any more. She has experienced many times the lower back pain

to the left and right of the spine, which we know is most likely her

kidneys. The milk thistle has helped and most of the time, not all

the time, in releaving the pain. What's causing the pain, who knows.

It's not getting rid of the cause of the problem, but it seems to be

keeping it at bay. But the quick results from the milk thistle seems

to be less at times and taking much longer, with much higher doses.

As far as her liver, who's to say. Many times first thing in the

morning I have seen and finally my daughter has too, the color of

her eyes. The whites of her eyes can either be a dark gray and the

skin tone under her eyes, or a dark yellow. We've noticed this in

her skin coloring also. People say you need to see a doctor, but

they don't realize that it's not that easy, especially when you know

the cause. We're not going to subject ourselves to more abuse and

ignorance that surrounds this issue. Many won't pay attention any

way and if they ask I've come to the point of not mentioning what

caused this infection.

This includes family and friends that just don't seem to get it.

They seem more interested in offering advice that has nothing to do

with the situation or the effects of. Along with a little bit of

attitude and snip to their tone. They ask, but they don't want to

hear it (the truth) and in the end WE have a problem. Which they are

quick to mention. Yet they say they understand, but we know they

really don't.

Over the years I can count on one hand how many relatives or friends

of our members have come onto this board and tried to learn what is

or isn't taking place with this issue or condition. But yet they

will make snide remakes or accusations. Again, you'd think they

would spend a little time to come on here to read what we are

saying! I don't have time, I don't need to read that, we all have to

die from something. I get sick of it, these pat answers. People ask

how you are doing, but they really don't care. They will never

understand because their life is too easy and full of joy. But one

day when their health starts to fail even with recongized

conditions, conditions that were not forced intentionally or

unintentionally upon them and they fail to see how poor are medical

community is in treatment and diagnosis, will they then start to

listen and realize. When their health insurance fails to pay the

claim or disregards their condition or informs them with every

excuse in the book not to cover their cost, THEN they may listen and

start to realize.

These are also the people that will whine until the cows come home

and still will not get involved. They will never experience what you

and I have. It's not just the illness I often tell them, it's many

of our physicians that are not educated and even if they were they

disregard it and say you are crazy. This is an illness that has been

swept under the carpet for many, many years that has caused many to

be in denial. Oh, our medical community wouldn't do that, that's

just your imagination. They seem to forget THE THREE YEARS I did not

know what was causing my wife's condition, two years as she was

being exposed and was suffering some of the worst symptoms and

another year after she left (was terminated) that toxic environment.

Where all of her symptoms at that time my imagination before she was

diagnosed properly? I guess my kids and myself were making these up

in our own minds. Family and friends seem to forget this part of the

story when things were at there worse. We didn't know what was going

to happen the next day or if she was even going to be with us.

Many times I feared when my kids were at home, attending school and

I was at work I was going to get that one phone call I dreaded.

Other than Dad something is wrong with mom, come home. I just found

out recently that my kids hated coming home from school because they

were always afraid she would not be alive. Who considers this

normal?! I hated at that time having to prepare my kids for the

worse. How many have had to do that, not thinking of the members

here per se, but thinking of my immediate family. How many have

attended hospice meetings in order to understand and handle this

type of condition? I have, another real joy.

I had to do this for myself and the members of this board in order

to understand our situation better and continue to try to help

others. The real kicker, they said I'm sorry we really can't help

you because we don't understand and to look on the internet for a

support group. One main question I wanted answered, not by me, but

by one of the other counselors, is why have family and friends

disappeared when you need them the most. I think I knew the answer,

but I needed to hear it from someone else and it's just what I

expected. They don't know what to say or do because they don't

understand and it bothers them so they tend to ignore. I could

accept that, but why couldn't they say just that, what are they

afraid of, our reality?! I think they tell us to get on with our

lives not fully understanding, but this is only so that they can get

on with theirs. I wish it were that easy.

One friend that is in the medical field, one that I thought

understood and I spoke to alot because I thought he was concerned

and wanted to learn more. Boy was I wrong. He finally said to me one

day speaking of Sharon, don't you think this it's about time this

should be over with? I couldn't believe my ears. I wonder how often

he would think of saying that to other patients that have

a " recognized " illness. Has anybody found that secret switch that

might turn this on and off, if you have please send it to me.

It seems to me every industry in this country connected to this

issue, builders, manufacturers, pharmacuticals, HVAC are trying to

make changes to prevent this condition within our living

environment, ALL for except the medical institution. Where the hell

are they and they should have been the first ones on board. They are

supposed to be trying to save lives, not destroy them. What is it

going to take and how many more lives are going to have to be lost?

We all know the science, data is there and has been available. If

it's not, as the CDC claims, then why haven't they received funding

for tracking this condition or the symptoms/illnesses that are

connected? Oh, excuse me, they do have a tracking system and has had

one for years for every condition out there, but they refuse to use

it. Eighty percent of the calls coming into the health department,

from what I understand, are concerns people have about mold. But yet

the majority of these departments don't have any set standard of

information that they can offer. They just past the buck from one

agency to another.

My rant for the day. I know the answers to many of my own questions,

so I really don't need them to be explained to me.

Thanks to Sharon Kramer for doing what she has done to help move

this issue forward for future generations, at least they may have a

chance and many, many others behind the scenes for all their hard

work.

KC

--- In , Patilla DaHun <glypella@...>

wrote:

>

> Hi

>

> I wonder how many others have had their livers affected by

mycotoxins.

[Guest guest]

Hi KC,

I went off daily mail because I couldn't handle the volume of it, but

see some of the important things I was missing. I'm sorry Sharon is

experiencing these problems too. It's all so scary.

I also take milk thistle and was taking colloidal silver, which helped

immensely, but now I'm afraid that my liver might not be able to

handle it. I'm doing research on that.

The skin under my eyes has been dark for years. I hear you about the

doctor issue. My PA through all of this has been pretty good, but

still not understanding of the mold issue. He, at least does read my

e-mails and use some homeopathic remedies. The zombies will realize

one day that they've not only been made ill by mold, but that they've

been continually zapped by microwaves that are cooking them from the

inside out - from cell phones, wireless devices, GWEN towers and radar

stations that are beaming high decibel waves to probably control

weather or for some other Bush agenda.

Most of us have had the same reaction or non-reaction from family and

friends. I have very few friends anymore because I just don't have the

energy to participate in outside activities now. I reminded my family

about the time I needed money to have out-of-pocket expenses for my

testing at Mt. Sinai which might have made a difference in getting WC.

My wealthy sister gives thousands of dollars to animal causes yet

never offered help with my health.

Forget the medical profession. It's run and brainwashed by the

pharmaceuticals who also sit on the boards of the FDC and FDA. Then

you have the " parts " doctors who can't see beyond their specialty to

piece the whole body together. They also are afraid of homeopathic

remedies because the AMA has poisoned them against it. The

pharmaceuticals have literally silenced researchers who would expose

their greedy agendas. We're just beginning to see some scientific

breakthrough now by some brave souls.

Thanks for putting up with my rant, too. Thank you for all you've done

through this list through the years. It's a blessing to many.

My Best,

Barth

[Guest guest]

There are a lot of papers on immunotoxic effects of trichothecene mycotoxins

on PubMed.

You can do the search yourself by going to

http://www.ncbi.nlm.nih.gov/sites/entrez

and typing in

immunotoxic trichothecene

and other similar phrases.. (make a note of ones you find in searches you

don't understand and look them up)

The pulldown on the left can be used to read abstracts, you can email the

results to yourself or others, etc.. Some of the papers are available

online for free.. (the icons they display them with are different)

This is a good way to find out about things medical.

[Guest guest]

KC, I have to say ditto and amen! I know exactly how you feel. Your work on

Sickbuildings is amazing and you have helped so many of us in so many different

way. Keep up the good fight....we will win!!

tigerpaw2c <tigerpaw2c@...> wrote:

,

It's nice to hear from you, it's been a while. Sorry to hear that

you are still having problems, but this is one we can definately

relate to.

[Guest guest]

Thank you , it's definately been a long road. By the

information and articles that I post, along with some other members, I

hope everyone will benefit. Not only to inform everyone how widespread

this issue is, but hopefully it will help them in their own

situtation. It's never cut and dry even though it ought to be. I'm

convienced of the affects of toxic mold. The term that many

professionals hate, but let's say it like it is and that's exactly

what it is. At least a term that everyone seems to understand from all

levels.

Thanks again,

KC

>

> ,

>

> It's nice to hear from you, it's been a while. Sorry to hear that

> you are still having problems, but this is one we can definately

> relate to.

>

[Guest guest]

Sharon, Thank you, that was extremely infomative, may have to print &

take to my primary!

Hugs, Cheryl

[Guest guest]

OOps, sorry meant thnx !

Hugs, Cheryl