Question on protocals and meds.

[Guest guest]

I would also like to ask the group a question. I have been reading

some posts on another group. It seems that I am hearing some

protocals and medications that I have never heard mentioned here or

from Dr. Shoemaker or anywhere else. like Vfend, Sporonax, Chromyln

sodium, Xopenex and Caspofungin. I have read that there is a regular

use of steroids in this group also. It seems nobody there has heard

of Dr. Shoemaker which is not a problem, I am just curious as to the

different types of treatment and since Dr. Shoemaker has not ever

mentioned these medications to me and I have never read anything

about them I am just wondering if anyone else has either. It appears

that it is a doctor on this group that is talking about them. To be

honest it also seems that this group has a large understanding and

knowlede that makes complete sence to me as well.

Maybe I am just being nieve but I kind of got the idea that the

people that have gotten this illness figured out seem to use for the

most part alot of the the same meds and treatment methods until I

began to read things such as this elswhere. I will ask the same

questions in that group as well but I was wondering if I could get

some feedback on this from you all. Especially any of the doctors and

proffesionals that are a part of this group. I would like to add that

I am not doubting anything I am reading but I am certainly interested

to know if there are other ways to treat this illness that I am un

aware of and am really interesated to know if any of you have heard

of any of this as well.

If I have not been specific enough just let me know and I will try to

be more detailed. Your comments are greatly appritiated.

Chris...

[Guest guest]

Those are drugs for aspergillosis, mucormycosis, and other mycoses,

mold illnesses, colonizations of the body, like when somebody has

mold growing in their lungs or sinuses and then it penetrates into

their brain or causes a systemic infection of their bloodstream. They

are NOT uncommon, and they are very dangerous and frequently kill

people.

In the Bible, (Genesis. 3:19) when God casts Adam and Eve out of the

Garden of Eden, he condemns us to a fate of being eaten by mold at the

end of our lives. The Bible also tells us to remediate our homes and

if we are not successful to tear them down 'stone from stone' (or

something like that)

Bleach is not mentioned.

So, clearly, anything that threatens people so crucially ill is a

potential moneymaker to some. The drug companies make a lot of money

off of antifungal medications. The drugs that they use to mycoses are

expensive and profitable.

Many antifungals are themselves based on the structures originally

discovered in the mold toxins that most molds use to increase their

chances of reproduction by killing and then eating other living

things, including us, as God described.

The drug companies have estimated that globally, aspergillosis and

other mycoses are a profitable, rising business trend for them and

that the number of cases they treat will continue to grow and become

even more profitable.

[Guest guest]

I went to Dr. Johanning and he said I should take Sporonax but I

waited 8 months for appointment and after visit he resigned, so he

wrote to me suggesting Sporonax. I couldn't get any of my local doctors

to give it to me. I think a few on this site have taken Sporonax. Can

you imagine waiting 8 months to see Dr. Shoemaker and then him

resigning right after visit and all money, traveling expenses, etc

wasted.

[Guest guest]

http://en.wikipedia.org/wiki/Antifungal

also try search " antifungals and steroid synthesis

>

> I would also like to ask the group a question. I have been reading

> some posts on another group. It seems that I am hearing some

> protocals and medications that I have never heard mentioned here or

> from Dr. Shoemaker or anywhere else. like Vfend, Sporonax, Chromyln

> sodium, Xopenex and Caspofungin. I have read that there is a

regular

> use of steroids in this group also. It seems nobody there has heard

> of Dr. Shoemaker which is not a problem, I am just curious as to

the

> different types of treatment and since Dr. Shoemaker has not ever

> mentioned these medications to me and I have never read anything

> about them I am just wondering if anyone else has either. It

appears

> that it is a doctor on this group that is talking about them. To be

> honest it also seems that this group has a large understanding and

> knowlede that makes complete sence to me as well.

> Maybe I am just being nieve but I kind of got the idea that the

> people that have gotten this illness figured out seem to use for

the

> most part alot of the the same meds and treatment methods until I

> began to read things such as this elswhere. I will ask the same

> questions in that group as well but I was wondering if I could get

> some feedback on this from you all. Especially any of the doctors

and

> proffesionals that are a part of this group. I would like to add

that

> I am not doubting anything I am reading but I am certainly

interested

> to know if there are other ways to treat this illness that I am un

> aware of and am really interesated to know if any of you have heard

> of any of this as well.

> If I have not been specific enough just let me know and I will try

to

> be more detailed. Your comments are greatly appritiated.

> Chris...

>

[Guest guest]

Good heavens no. That is crazy. Did you finally find a doctor to help with this?

I don't know what these meds I listed are. I will do some looking.

ldelp84227 <ldelp84227@...> wrote:

I went to Dr. Johanning and he said I should take Sporonax but I

waited 8 months for appointment and after visit he resigned, so he

wrote to me suggesting Sporonax. I couldn't get any of my local doctors

to give it to me. I think a few on this site have taken Sporonax. Can

you imagine waiting 8 months to see Dr. Shoemaker and then him

resigning right after visit and all money, traveling expenses, etc

wasted.

__________________________________________________

[Guest guest]

Thanks Jeanine. I will look at this. My curiosity is wondering why one group of

people would use this type medication when Dr. Shoemaker is so admitedly against

steroids. If I inderstand correctly he won't use them because they are harmful

for this condition? The conflicting differences are interesting.

who <jeaninem660@...> wrote:

http://en.wikipedia.org/wiki/Antifungal

also try search " antifungals and steroid synthesis

[Guest guest]

Just FYI, guys--you should ALL read the book of Leviticus 14 in your Bible.

V.

Re: [] Question on protocals and meds.

Those are drugs for aspergillosis, mucormycosis, and other mycoses,

mold illnesses, colonizations of the body, like when somebody has

mold growing in their lungs or sinuses and then it penetrates into

their brain or causes a systemic infection of their bloodstream. They

are NOT uncommon, and they are very dangerous and frequently kill

people.

In the Bible, (Genesis. 3:19) when God casts Adam and Eve out of the

Garden of Eden, he condemns us to a fate of being eaten by mold at the

end of our lives. The Bible also tells us to remediate our homes and

if we are not successful to tear them down 'stone from stone' (or

something like that)

Bleach is not mentioned.

So, clearly, anything that threatens people so crucially ill is a

potential moneymaker to some. The drug companies make a lot of money

off of antifungal medications. The drugs that they use to mycoses are

expensive and profitable.

Many antifungals are themselves based on the structures originally

discovered in the mold toxins that most molds use to increase their

chances of reproduction by killing and then eating other living

things, including us, as God described.

The drug companies have estimated that globally, aspergillosis and

other mycoses are a profitable, rising business trend for them and

that the number of cases they treat will continue to grow and become

even more profitable.

[Guest guest]

WHO SAYS DR JOHANNING HAS RESIGNED????????????

V.

Re: [] Re: Question on protocals and meds.

Good heavens no. That is crazy. Did you finally find a doctor to help with

this? I don't know what these meds I listed are. I will do some looking.

ldelp84227 <ldelp84227@...> wrote:

I went to Dr. Johanning and he said I should take Sporonax but I

waited 8 months for appointment and after visit he resigned, so he

wrote to me suggesting Sporonax. I couldn't get any of my local doctors

to give it to me. I think a few on this site have taken Sporonax. Can

you imagine waiting 8 months to see Dr. Shoemaker and then him

resigning right after visit and all money, traveling expenses, etc

wasted.

__________________________________________________

[Guest guest]

You know what . It all fits like a puzzle. I have been looking under the

microscope and found some very descriptive web pages all the sudden tonight.

Along with my belief in God one thing I know is information can be withheld and

sometimes your eyes are all the sudden opened wide and you see things you did

not notic e previosly.

Maybe I am just starting to freak out but I believe more likely I think things

are begining to fit together like a puzzle. Between this group and now the other

group added. (I will list the group if it is ok with everyone else) I believe I

am really figureing this out. (At least what I am dealing with.) I will be

talking to Dr. Shoemaker in the morning but I am wondering if aspergillis of the

lungs might be part of this illness he has not delt with yet. If he has then

maybe it is only now after the bioscapy that tteatment will change. These things

are only speculation at this point but I can only attest what I am coughing up

to aspergillus based on the descriptions and stuff I have found tonight.

Parinoid maybe but I am thinking not.

http://pathweb.uchc.edu/eAtlas/RESP/816.htm

http://www.aspergillustrust.org/files/reduce_the_risk.pdf

http://www.emedicine.com/med/topic246.htm

Anyway, thank you very much for your post . I will update everyone

tommorow and as I find out more. We in this house are about to put it in high

gear. When it makes sence, it just makes sence.

Chris...

[Guest guest]

>

> I would also like to ask the group a question. I have been reading

> some posts on another group. It seems that I am hearing some

> protocals and medications that I have never heard mentioned here or

> from Dr. Shoemaker or anywhere else. like Vfend, Sporonax, Chromyln

> sodium, Xopenex and Caspofungin. I have read that there is a

regular

> use of steroids in this group also. It seems nobody there has heard

> of Dr. Shoemaker which is not a problem, I am just curious as to

the

> different types of treatment and since Dr. Shoemaker has not ever

> mentioned these medications to me and I have never read anything

> about them I am just wondering if anyone else has either. It

appears

> that it is a doctor on this group that is talking about them. To be

> honest it also seems that this group has a large understanding and

> knowlede that makes complete sence to me as well.

> Maybe I am just being nieve but I kind of got the idea that the

> people that have gotten this illness figured out seem to use for

the

> most part alot of the the same meds and treatment methods until I

> began to read things such as this elswhere. I will ask the same

> questions in that group as well but I was wondering if I could get

> some feedback on this from you all. Especially any of the doctors

and

> proffesionals that are a part of this group. I would like to add

that

> I am not doubting anything I am reading but I am certainly

interested

> to know if there are other ways to treat this illness that I am un

> aware of and am really interesated to know if any of you have heard

> of any of this as well.

> If I have not been specific enough just let me know and I will try

to

> be more detailed. Your comments are greatly appritiated.

> Chris...

>

Hi Chris: Sporanox is used frequently out here in Texas. It is a very

strong ani-fungal and is hard on the liver. I have never tried it for

that reason as my liver is suffering. Dont know about the others. D

[Guest guest]

I just know I went to Dr. Johanning at the Environmental Center in

Albany in 2000 I believe and after waiting 8 months for appointment

my mom flew up from Florida and we took an exhausting train ride to

Albany. Had a two hour visit and a month later when I called to get

my report he had resigned. I spoke to him on the phone several times

and he typed up a report but charged me 250.00 to get the report even

though I had already paid, and said I was partially permanently

disabled and I should take sporanox but I couldn't get anyone to give

it to me. Finally many months later I convinced my ENT to give me

Diflican for 8 months and by then my husband got ill and we lost

insurance. The end of medical help for me. I went to University of

Penn and they blew off candida and said just get a job, yeast won't

hurt you. My infectious disease doctor said you are borderline

imunosuppresive, just go on low carb diet, and he released me. My

family doctor said it was out of his realm of expertise. So after a

while I gave up trying to get help.

>

> WHO SAYS DR JOHANNING HAS RESIGNED????????????

> V.

>

[Guest guest]

he has NOT resigned.....i talk to his office ALL the time.

victoria

[] Re: Question on protocals and meds.

I just know I went to Dr. Johanning at the Environmental Center in

Albany in 2000 I believe and after waiting 8 months for appointment

my mom flew up from Florida and we took an exhausting train ride to

Albany. Had a two hour visit and a month later when I called to get

my report he had resigned. I spoke to him on the phone several times

and he typed up a report but charged me 250.00 to get the report even

though I had already paid, and said I was partially permanently

disabled and I should take sporanox but I couldn't get anyone to give

it to me. Finally many months later I convinced my ENT to give me

Diflican for 8 months and by then my husband got ill and we lost

insurance. The end of medical help for me. I went to University of

Penn and they blew off candida and said just get a job, yeast won't

hurt you. My infectious disease doctor said you are borderline

imunosuppresive, just go on low carb diet, and he released me. My

family doctor said it was out of his realm of expertise. So after a

while I gave up trying to get help.

>

> WHO SAYS DR JOHANNING HAS RESIGNED????????????

> V.

>

[Guest guest]

YOU'RE VERY VERY WELCOME, CHRIS. FOR THOSE WHO HAVEN'T DONE SO YET, READ

LEVITICUS CHAPTER 14 IN YOUR BIBLE. AND YES, ASPIRGILLUS AND THE LUNGS IS VERY

POSSIBLE, THE WAY I UNDERSTAND IT. A PERSON EXPOSED TO THE BUILDING WHERE I GOT

SICK WAS ASKED IF HE WAS " PLAYING IN A WET, MOLDY BARN?! " THEY FOUND " SOMETHING

IN HIS CHEST, " WHICH I'M SURE IS/WAS AN ASPIRGILLUS BALL.

AND THIS FRICKING PLACE IS A SO-CALLED " HOSPITAL!!!!!!!!!!!!!!!!!!!!!!!!!! " ITS

AN OUTRAGE, & THOSE PEOPLE WHO KEEP THE PLACE OPEN ARE DOWNRIGHT CRIMINAL, AT

LEAST IN MY EYES!!!!!!!!!!!!!!!!!

TAKE CARE, CHRIS.

VICTORIA

Re: [] Question on protocals and meds.

You know what . It all fits like a puzzle. I have been looking under

the microscope and found some very descriptive web pages all the sudden tonight.

Along with my belief in God one thing I know is information can be withheld and

sometimes your eyes are all the sudden opened wide and you see things you did

not notic e previosly.

Maybe I am just starting to freak out but I believe more likely I think things

are begining to fit together like a puzzle. Between this group and now the other

group added. (I will list the group if it is ok with everyone else) I believe I

am really figureing this out. (At least what I am dealing with.) I will be

talking to Dr. Shoemaker in the morning but I am wondering if aspergillis of the

lungs might be part of this illness he has not delt with yet. If he has then

maybe it is only now after the bioscapy that tteatment will change. These things

are only speculation at this point but I can only attest what I am coughing up

to aspergillus based on the descriptions and stuff I have found tonight.

Parinoid maybe but I am thinking not.

http://pathweb.uchc.edu/eAtlas/RESP/816.htm

http://www.aspergillustrust.org/files/reduce_the_risk.pdf

http://www.emedicine.com/med/topic246.htm

Anyway, thank you very much for your post . I will update everyone

tommorow and as I find out more. We in this house are about to put it in high

gear. When it makes sence, it just makes sence.

Chris...

[Guest guest]

Well I would like to hear about it because he resigned when I went to

him. I had heard he was in research a few years back. Does he work for

the Environmental Occupational Center in Albany. I can't remember the

correct name. I even have the documents his office wrote to me that he

resigned. He is supposed to be a great doctor but I didn't get any help

except him linking my illness to the home and the results of my

bloodwork. I wanted medical help. It even made my local doctors

nervous when he called them to give me sporanax. Are you being treated

by him?

>

> he has NOT resigned.....i talk to his office ALL the time.

> victoria

>

>

[Guest guest]

Half awake and awaiting my phone consult with Shoemaker here is my conclusion to

what I read lastnight. While I am confused it seems to me that aspergillus of

the lungs and sinus cavities appears to be recognized illnesses. And it appears

there are three different forms of it. has it nailed that it seems to

be a profit thing due to the fact that the meds for it are indead expensive and

hard on the body and also looks like it is an ongoing treatment protocal based

on other posts I have read. (read the last four sights I have isted in prior

posts) Especially the one from Merch. If you put your mouse over the meds listed

on this page you will see the common names I have listed previously. I have

mentioned before that Dr. Shoemaker found brain damage in my cat scans and on

the Merch page it explains in a severe case the aspergillus can go beyond the

lung and/or sinus invasion to begin damage and/or breakdown on other organs to

include the kidneys and brain. The UK

seems to be the leading source of information on this but now I have read about

it from several American sights as well.

I am still looking at all of this so I don't want to sound like I know

something I don't but it is getting very interesting to say the least. I will

have much more to say about this later and as I study this but it looks as if

this is going to sparck much conversations and questions both in the group and

with me personaly. I fail to underastand how the aspergillus issue can be so

recognized but sick building syndrome, chronic fatuige etc. continues to be

evasive and in our heads. I am really begining to see that it is all a known

illness but the government and pharmacutical companys are going to milk us all

dry before it becomes an illness that the health insurance and government has to

start picking up the costs to treat it. I don't know, check it out and tell me

what you get out of the information I am talking about.

dianebolton52 <dianebolton@...> wrote:

>

Hi Chris: Sporanox is used frequently out here in Texas. It is a very

strong ani-fungal and is hard on the liver. I have never tried it for

that reason as my liver is suffering. Dont know about the others. D

__________________________________________________

[Guest guest]

I left Johanning's office years ago with a very negative impression of

him. I won't go into detail.

Barth

---

l> Well I would like to hear about it because he resigned when I went to

l> him. I had heard he was in research a few years back. Does he work for

l> the Environmental Occupational Center in Albany. I can't remember the

l> correct name. I even have the documents his office wrote to me that he

l> resigned. He is supposed to be a great doctor but I didn't get any help

l> except him linking my illness to the home and the results of my

l> bloodwork. I wanted medical help. It even made my local doctors

l> nervous when he called them to give me sporanax. Are you being treated

l> by him?

>>

>> he has NOT resigned.....i talk to his office ALL the time.

>> victoria

>>

>>

[Guest guest]

YOU said a mouthful and then some, Chris. Did I ever tell you that a neuro I

know said to me " Vicki, its COMMON KNOWLEDGE, THAT ASPIRGILLUS & PENICILLIUM CAN

INVADE THE CNS!!!!!!!!!!!!!!! " The CNS is the brain & spinal cord. My spinal

cord is VERY damaged.

:>(

Re: [] Re: Question on protocals and meds.

Half awake and awaiting my phone consult with Shoemaker here is my conclusion

to what I read lastnight. While I am confused it seems to me that aspergillus of

the lungs and sinus cavities appears to be recognized illnesses.

[Guest guest]

NOT TREATED......JUST DIAGNOSED.

V.

Re: [] Re: Question on protocals and meds.

I left Johanning's office years ago with a very negative impression of

him. I won't go into detail.

Barth

---

l> Well I would like to hear about it because he resigned when I went to

l> him. I had heard he was in research a few years back. Does he work for

l> the Environmental Occupational Center in Albany. I can't remember the

l> correct name. I even have the documents his office wrote to me that he

l> resigned. He is supposed to be a great doctor but I didn't get any help

l> except him linking my illness to the home and the results of my

l> bloodwork. I wanted medical help. It even made my local doctors

l> nervous when he called them to give me sporanax. Are you being treated

l> by him?

>>

>> he has NOT resigned.....i talk to his office ALL the time.

>> victoria

>>

>>

[Guest guest]

Hi

I am a member of the aspergillus site also, I believe

I have allergic fungal sinusitis. I have not been

officially diagnosed and I am not currently taking

sporonox or vfend.

take care,

Val