Guest guest Posted February 1, 2003 Report Share Posted February 1, 2003 Hi Rosieann, I was diagnosed with RA 15 years ago. There has also been some indication that there is a PA connection. My own inflammatory condition had taken years to get real bad. I had only been on naproxen and when MTX was offered I refused it, and then, as fortune would have it I came upon this group and started the AP nearly two years ago. I am very close to being well, clinically, and my blood work has shown amazing improvement. I tell you this to let you know that i am living proof that the AP works. One year ago I looked for a rheumatologist with whom I could work in supporting me in the AP. I found a doctor in New Jersey (I live in Colorado) and flew out for our first appointment, since then I have seen him a second time, and consulted with him numerous times via e-mail and phone. It's worked very well. I would encourage you to find a rheumatologist from Chris's list, and see him even if that means a journey as in my case. King rosieann69 wrote: > Hi all, > I don't believe I've ever posted to this group before. I 'm very > good at lurking most of the time. And usually don't post to most of > the RA and PA sites. > > I just started (late last summer or early fall)down this strange > path of RA/Pa, my rheumy doctor can't or won't state, for insurance > reasons, he said. > > I got so bad while I was waiting months to get into see my Rheumy, > that I could barely walk or use my hands to do everyday things. > So I was quite ready to start MTX when he offered it to me at the > very first appointment. (I had did some research on it, on the > internet sites) > > I was very willing to take the risk, at first because, my life had > so quickly went down hill. I had trouble dressing , eating, walking > and I decided I had no quality of life. > > I've been on 12.5 mg. of MTX and 5mg of prednisone, along with folic > acid since Nov 21. At first the prednisone kicked in and I could > walk and only had a fraction of the pain in the rest of my body that > I had before. And I could actually sleep again. > > That really good feeling only lasted til xmas. Since then things are > going down hill again. Oh I can still walk , but my hands are going > bad daily. Every week I have a new knuckle that wants to turn blue > and rebel, and I can't sleep again. > > Since then I found this group and have been reading with interest. > Although I must admit I would want to start the Ap treatment and > still take MTX , just at first, to keep the damage down, then wean > down. > > One big problem is that I have always had problems with yeast.Long > before I had RA/PA(over 25 years). > > I also,found with interest that the one Dr. that was on the list for > AP treatment in my state, was a regular M.D. (not a Rheumy) that I > had already gone to last fall for some answers for a more natural > method to control these RA problems. Then, He never mentioned the AP > treatment . > > This week I had a follow up appointment with him, asked him about > the AP treatment but reminded about my yeast problem. > I had just come from my 2nd rheumy. appointment, where he had > increased my MTX dose to 6 cc., because it is not working yet. > > I told the Naturopath M.D I 'd like to continue on some DMARD, > either MTX or Enbrel, with the AP. He was agreeable. But warned me > that once I got to the point that I had taken in 9000 grams of MTX I > would have irreverible liver damage. I don't know how he calulated, > but at 12.5 mg. a dose and 10 doses , he said I already had taken, > since Nov., 1000 grams of MTX. > > But before I could even start the AP treatment, we would have to > bring my yeast under control, with sporonax ?(never heard of it) and > Nystatin, which I use to take years ago. > > I am so confused and scared to continue on the MTX,I don't know who > to believe, the other doctor, the rheumy, would not even consider > the AP treatment. > > I know this is long but I don't know what to do .I know MTX is toxic > but I felt at the time I started it I had no other choice. Others > have taken it for years without needing a liver transplant. > > I think my rheumy is a little lack in monitoring my blood work, for > just starting MTX, only once every 8-10 weeks. But I've not had any > really bad side effects yet, just some itching and little discomfort > on my right side. And my blood work has been normal. > > Is the naturopath dr. just trying to scare me into stopping the MTX? > I can't go back to not walking again. > > Thanks for any input > Rosieann > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 Wow I don't know what to tell you...why not email Dr M and see what he says again ? How could it ruin your lift ? But I would think a mammo would be painful after your explant. Good Luck karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 Leyna . . . Ask Dr. Melmed to provide a letter (not an email) describing the procedure he did on you, the results of any lab tests, and restate his instructions NOT to get a mammogram for a certain period of time. I cannot believe they would demand a mammogram with such a letter. Rleyna1964 <leyna1964@...> wrote: Hello everyone! Hope ya'll are having a good Thanksgiving!Well, I have a problem, and wanted everyone's opinion on what I should do.Some of you may remember me posting about a white, pus looking discharge coming from my left nipple that I had about a week BEFORE I had my explant on September 26th. I had the same discharge about 2 more times a week AFTER my surgery too.Went to my Gyno, who did a Prolactive level and a hormone level. Both came back completely normal.For nearly 2 months, I had no more discharge.Last week or so, the discharge came back, and now it is yellow, brown, and bloody. I cannot squeeze the discharge out, but it is in my bra when I wake up every day.I panicked and went back to my Gyno, who examined my breasts and said that he could not tell if I had a lump or not because I have the most Fiborcystic breasts that he has seen in a long time! Very bad!He said that he thinks it's a Hematoma (sp?) from my surgery, even though I had a white discharge BEFORE my surgery.He wants me to get an MRI to be on the safe side, since I take large amounts of estrogen every day, and my insurance has approved it, but here's the problem.....The clinic that does the MRI's has a policy that they refuse to bend....they require a Mammogram before any MRI. Dr. Melmed said that I CANNOT have a mammogram before March, or it will ruin my lift, plus I would be too sore. I am scheduled for my yearly mammogram in the middle of March, but my insurance will cover one in December.Dr. Melmed said that he did not see any cancer in me when he did my surgery 2 months ago, but this daily nipple discharge is really scaring me! My mother had breast cancer at my age now!So what do you girls think? Should I get the Mammogram in December, and ruin my lift, and experience a lot of pain in the meantime, since my breasts are very sore due to the Fibrocystic breast disease? It would surely ease my mind about cancer! Or should I listen to what Dr. Melmed said about the fact that he did not see any cancer in me when he did my surgery? Should I go ahead and get the mammogram so I can get the MRI, and ruin my lift that I spent so much money on?!!I don't know what to do......I just want to know what is causing the bloody discharge in my bra every night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 I would contact Dr. Melmed and ask his opinion. If there is a chance you do have cancer, I would not wait. Kenda > Hello everyone! Hope ya'll are having a good Thanksgiving! > > Well, I have a problem, and wanted everyone's opinion on what I > should do. > > Some of you may remember me posting about a white, pus looking > discharge coming from my left nipple that I had about a week BEFORE I > had my explant on September 26th. > > I had the same discharge about 2 more times a week AFTER my surgery > too. > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > came back completely normal. > > For nearly 2 months, I had no more discharge. > > Last week or so, the discharge came back, and now it is yellow, > brown, and bloody. I cannot squeeze the discharge out, but it is in > my bra when I wake up every day. > > I panicked and went back to my Gyno, who examined my breasts and said > that he could not tell if I had a lump or not because I have the most > Fiborcystic breasts that he has seen in a long time! Very bad! > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > though I had a white discharge BEFORE my surgery. > > He wants me to get an MRI to be on the safe side, since I take large > amounts of estrogen every day, and my insurance has approved it, but > here's the problem..... > > The clinic that does the MRI's has a policy that they refuse to > bend....they require a Mammogram before any MRI. > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > will ruin my lift, plus I would be too sore. I am scheduled for my > yearly mammogram in the middle of March, but my insurance will cover > one in December. > > Dr. Melmed said that he did not see any cancer in me when he did my > surgery 2 months ago, but this daily nipple discharge is really > scaring me! > > My mother had breast cancer at my age now! > > So what do you girls think? Should I get the Mammogram in December, > and ruin my lift, and experience a lot of pain in the meantime, since > my breasts are very sore due to the Fibrocystic breast disease? It > would surely ease my mind about cancer! > > Or should I listen to what Dr. Melmed said about the fact that he did > not see any cancer in me when he did my surgery? Should I go ahead > and get the mammogram so I can get the MRI, and ruin my lift that I > spent so much money on?!! > > I don't know what to do......I just want to know what is causing the > bloody discharge in my bra every night. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 I think you need ot find a way to get the MRI, and let nothing stop you. I suspect Dr. Melmed would say the same. And his warning against a mammogram right now sure sounds like sound advice to me. In fact, it has been two and a half years since my explant and I am having an MRI as soon as I get to the lab. I will not have another mammogram. The last one ruptured my implants, I am sure of it - 5 years before my explant. I just cannot bring myself to have another, that was so very painful. > > I would contact Dr. Melmed and ask his opinion. If there is a chance you do > have cancer, I would not wait. > > Kenda > > > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > > > Well, I have a problem, and wanted everyone's opinion on what I > > should do. > > > > Some of you may remember me posting about a white, pus looking > > discharge coming from my left nipple that I had about a week BEFORE I > > had my explant on September 26th. > > > > I had the same discharge about 2 more times a week AFTER my surgery > > too. > > > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > > came back completely normal. > > > > For nearly 2 months, I had no more discharge. > > > > Last week or so, the discharge came back, and now it is yellow, > > brown, and bloody. I cannot squeeze the discharge out, but it is in > > my bra when I wake up every day. > > > > I panicked and went back to my Gyno, who examined my breasts and said > > that he could not tell if I had a lump or not because I have the most > > Fiborcystic breasts that he has seen in a long time! Very bad! > > > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > > though I had a white discharge BEFORE my surgery. > > > > He wants me to get an MRI to be on the safe side, since I take large > > amounts of estrogen every day, and my insurance has approved it, but > > here's the problem..... > > > > The clinic that does the MRI's has a policy that they refuse to > > bend....they require a Mammogram before any MRI. > > > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > > will ruin my lift, plus I would be too sore. I am scheduled for my > > yearly mammogram in the middle of March, but my insurance will cover > > one in December. > > > > Dr. Melmed said that he did not see any cancer in me when he did my > > surgery 2 months ago, but this daily nipple discharge is really > > scaring me! > > > > My mother had breast cancer at my age now! > > > > So what do you girls think? Should I get the Mammogram in December, > > and ruin my lift, and experience a lot of pain in the meantime, since > > my breasts are very sore due to the Fibrocystic breast disease? It > > would surely ease my mind about cancer! > > > > Or should I listen to what Dr. Melmed said about the fact that he did > > not see any cancer in me when he did my surgery? Should I go ahead > > and get the mammogram so I can get the MRI, and ruin my lift that I > > spent so much money on?!! > > > > I don't know what to do......I just want to know what is causing the > > bloody discharge in my bra every night. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 I agree. Such a letter would put them on notice. Leyna, I would also find out what other labs your insurance will cover. Also, call your insurance company and tell them you want to send them this letter as well. Put everyone on notice. Then see how willing they are to refuse you service. > Hello everyone! Hope ya'll are having a good Thanksgiving! > > Well, I have a problem, and wanted everyone's opinion on what I > should do. > > Some of you may remember me posting about a white, pus looking > discharge coming from my left nipple that I had about a week BEFORE I > had my explant on September 26th. > > I had the same discharge about 2 more times a week AFTER my surgery > too. > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > came back completely normal. > > For nearly 2 months, I had no more discharge. > > Last week or so, the discharge came back, and now it is yellow, > brown, and bloody. I cannot squeeze the discharge out, but it is in > my bra when I wake up every day. > > I panicked and went back to my Gyno, who examined my breasts and said > that he could not tell if I had a lump or not because I have the most > Fiborcystic breasts that he has seen in a long time! Very bad! > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > though I had a white discharge BEFORE my surgery. > > He wants me to get an MRI to be on the safe side, since I take large > amounts of estrogen every day, and my insurance has approved it, but > here's the problem..... > > The clinic that does the MRI's has a policy that they refuse to > bend....they require a Mammogram before any MRI. > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > will ruin my lift, plus I would be too sore. I am scheduled for my > yearly mammogram in the middle of March, but my insurance will cover > one in December. > > Dr. Melmed said that he did not see any cancer in me when he did my > surgery 2 months ago, but this daily nipple discharge is really > scaring me! > > My mother had breast cancer at my age now! > > So what do you girls think? Should I get the Mammogram in December, > and ruin my lift, and experience a lot of pain in the meantime, since > my breasts are very sore due to the Fibrocystic breast disease? It > would surely ease my mind about cancer! > > Or should I listen to what Dr. Melmed said about the fact that he did > not see any cancer in me when he did my surgery? Should I go ahead > and get the mammogram so I can get the MRI, and ruin my lift that I > spent so much money on?!! > > I don't know what to do......I just want to know what is causing the > bloody discharge in my bra every night. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2006 Report Share Posted November 23, 2006 Dear Leyna, I think it's much more likely that this is related to the f---ing implants that to anything else. Still, the answer is to get your doctors to help you get the MRI now! Another MRI provider? A letter from Melmed? Push people to get the MRI done! You tell them! > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > Well, I have a problem, and wanted everyone's opinion on what I > should do. > > Some of you may remember me posting about a white, pus looking > discharge coming from my left nipple that I had about a week BEFORE I > had my explant on September 26th. > > I had the same discharge about 2 more times a week AFTER my surgery > too. > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > came back completely normal. > > For nearly 2 months, I had no more discharge. > > Last week or so, the discharge came back, and now it is yellow, > brown, and bloody. I cannot squeeze the discharge out, but it is in > my bra when I wake up every day. > > I panicked and went back to my Gyno, who examined my breasts and said > that he could not tell if I had a lump or not because I have the most > Fiborcystic breasts that he has seen in a long time! Very bad! > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > though I had a white discharge BEFORE my surgery. > > He wants me to get an MRI to be on the safe side, since I take large > amounts of estrogen every day, and my insurance has approved it, but > here's the problem..... > > The clinic that does the MRI's has a policy that they refuse to > bend....they require a Mammogram before any MRI. > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > will ruin my lift, plus I would be too sore. I am scheduled for my > yearly mammogram in the middle of March, but my insurance will cover > one in December. > > Dr. Melmed said that he did not see any cancer in me when he did my > surgery 2 months ago, but this daily nipple discharge is really > scaring me! > > My mother had breast cancer at my age now! > > So what do you girls think? Should I get the Mammogram in December, > and ruin my lift, and experience a lot of pain in the meantime, since > my breasts are very sore due to the Fibrocystic breast disease? It > would surely ease my mind about cancer! > > Or should I listen to what Dr. Melmed said about the fact that he did > not see any cancer in me when he did my surgery? Should I go ahead > and get the mammogram so I can get the MRI, and ruin my lift that I > spent so much money on?!! > > I don't know what to do......I just want to know what is causing the > bloody discharge in my bra every night. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 Thanks for everyone's replies! Well, I'm not that worried about the PAIN of a mammogram so much, as the fact that it would supposedly ruin my lift. I don't understand how, but I guess it would. I'm not sure that Dr. Melmed would write a letter at all-he would not help me with an MRI when I asked him before, right after my surgery. > > Dear Leyna, > I think it's much more likely that this is related to the f---ing > implants that to anything else. Still, the answer is to get your > doctors to help you get the MRI now! Another MRI provider? A letter > from Melmed? Push people to get the MRI done! You tell them! > > > --- In , " leyna1964 " <leyna1964@> wrote: > > > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > > > Well, I have a problem, and wanted everyone's opinion on what I > > should do. > > > > Some of you may remember me posting about a white, pus looking > > discharge coming from my left nipple that I had about a week BEFORE I > > had my explant on September 26th. > > > > I had the same discharge about 2 more times a week AFTER my surgery > > too. > > > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > > came back completely normal. > > > > For nearly 2 months, I had no more discharge. > > > > Last week or so, the discharge came back, and now it is yellow, > > brown, and bloody. I cannot squeeze the discharge out, but it is in > > my bra when I wake up every day. > > > > I panicked and went back to my Gyno, who examined my breasts and said > > that he could not tell if I had a lump or not because I have the most > > Fiborcystic breasts that he has seen in a long time! Very bad! > > > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > > though I had a white discharge BEFORE my surgery. > > > > He wants me to get an MRI to be on the safe side, since I take large > > amounts of estrogen every day, and my insurance has approved it, but > > here's the problem..... > > > > The clinic that does the MRI's has a policy that they refuse to > > bend....they require a Mammogram before any MRI. > > > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > > will ruin my lift, plus I would be too sore. I am scheduled for my > > yearly mammogram in the middle of March, but my insurance will cover > > one in December. > > > > Dr. Melmed said that he did not see any cancer in me when he did my > > surgery 2 months ago, but this daily nipple discharge is really > > scaring me! > > > > My mother had breast cancer at my age now! > > > > So what do you girls think? Should I get the Mammogram in December, > > and ruin my lift, and experience a lot of pain in the meantime, since > > my breasts are very sore due to the Fibrocystic breast disease? It > > would surely ease my mind about cancer! > > > > Or should I listen to what Dr. Melmed said about the fact that he did > > not see any cancer in me when he did my surgery? Should I go ahead > > and get the mammogram so I can get the MRI, and ruin my lift that I > > spent so much money on?!! > > > > I don't know what to do......I just want to know what is causing the > > bloody discharge in my bra every night. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 Leyna, I'm very sad about what's happening with your breasts. That's terrible. I noticed a few posts already with advice, and mine would be " ditto " ....just wanted to let you know I'm praying for you! If you're concerned about cancer, drinking Aloe Vera juice may help. It cools cancer cells and slows down the growth. They use it in some cancer clinics in the U.S. now. Hope your Thanksgiving was good to you. I am very thankful for you ladies here! Lots of Love, Sunny --- In , " leyna1964 " <leyna1964@...> wrote: > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > Well, I have a problem, and wanted everyone's opinion on what I > should do. > > Some of you may remember me posting about a white, pus looking > discharge coming from my left nipple that I had about a week BEFORE I > had my explant on September 26th. > > I had the same discharge about 2 more times a week AFTER my surgery > too. > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > came back completely normal. > > For nearly 2 months, I had no more discharge. > > Last week or so, the discharge came back, and now it is yellow, > brown, and bloody. I cannot squeeze the discharge out, but it is in > my bra when I wake up every day. > > I panicked and went back to my Gyno, who examined my breasts and said > that he could not tell if I had a lump or not because I have the most > Fiborcystic breasts that he has seen in a long time! Very bad! > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > though I had a white discharge BEFORE my surgery. > > He wants me to get an MRI to be on the safe side, since I take large > amounts of estrogen every day, and my insurance has approved it, but > here's the problem..... > > The clinic that does the MRI's has a policy that they refuse to > bend....they require a Mammogram before any MRI. > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > will ruin my lift, plus I would be too sore. I am scheduled for my > yearly mammogram in the middle of March, but my insurance will cover > one in December. > > Dr. Melmed said that he did not see any cancer in me when he did my > surgery 2 months ago, but this daily nipple discharge is really > scaring me! > > My mother had breast cancer at my age now! > > So what do you girls think? Should I get the Mammogram in December, > and ruin my lift, and experience a lot of pain in the meantime, since > my breasts are very sore due to the Fibrocystic breast disease? It > would surely ease my mind about cancer! > > Or should I listen to what Dr. Melmed said about the fact that he did > not see any cancer in me when he did my surgery? Should I go ahead > and get the mammogram so I can get the MRI, and ruin my lift that I > spent so much money on?!! > > I don't know what to do......I just want to know what is causing the > bloody discharge in my bra every night. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 I wonder what would happen if you had a pocket of infection? Wouldn't a mammogram risk spreading it further? I would ask Dr . Melmed for a letter . . . the worst he can do is say "no". Rogene leyna1964 <leyna1964@...> wrote: Thanks for everyone's replies! Well, I'm not that worried about the PAIN of a mammogram so much, as the fact that it would supposedly ruin my lift. I don't understand how, but I guess it would. I'm not sure that Dr. Melmed would write a letter at all-he would not help me with an MRI when I asked him before, right after my surgery.> >> > Hello everyone! Hope ya'll are having a good Thanksgiving!> > > > Well, I have a problem, and wanted everyone's opinion on what I > > should do.> > > > Some of you may remember me posting about a white, pus looking > > discharge coming from my left nipple that I had about a week BEFORE I > > had my explant on September 26th. > > > > I had the same discharge about 2 more times a week AFTER my surgery > > too.> > > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > > came back completely normal.> > > > For nearly 2 months, I had no more discharge.> > > > Last week or so, the discharge came back, and now it is yellow, > > brown, and bloody. I cannot squeeze the discharge out, but it is in > > my bra when I wake up every day.> > > > I panicked and went back to my Gyno, who examined my breasts and said > > that he could not tell if I had a lump or not because I have the most > > Fiborcystic breasts that he has seen in a long time! Very bad!> > > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > > though I had a white discharge BEFORE my surgery.> > > > He wants me to get an MRI to be on the safe side, since I take large > > amounts of estrogen every day, and my insurance has approved it, but > > here's the problem.....> > > > The clinic that does the MRI's has a policy that they refuse to > > bend....they require a Mammogram before any MRI. > > > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > > will ruin my lift, plus I would be too sore. I am scheduled for my > > yearly mammogram in the middle of March, but my insurance will cover > > one in December.> > > > Dr. Melmed said that he did not see any cancer in me when he did my > > surgery 2 months ago, but this daily nipple discharge is really > > scaring me! > > > > My mother had breast cancer at my age now!> > > > So what do you girls think? Should I get the Mammogram in December, > > and ruin my lift, and experience a lot of pain in the meantime, since > > my breasts are very sore due to the Fibrocystic breast disease? It > > would surely ease my mind about cancer! > > > > Or should I listen to what Dr. Melmed said about the fact that he did > > not see any cancer in me when he did my surgery? Should I go ahead > > and get the mammogram so I can get the MRI, and ruin my lift that I > > spent so much money on?!!> > > > I don't know what to do......I just want to know what is causing the > > bloody discharge in my bra every night.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 Leyna, You should call Melmed's office and also write him, asking for a letter. If you don't get some help from him, let me know, and I'll bug him for you. We former explant patients help Melmed immensely by recommending him to other women and getting business for him. The least he could do is write the occasional letter, etc. I always got what I needed from him-- records, etc. Keep trying. I'd bet that there is some old infection brewing in there that hasn't healed up. I would try not to worry about it too much. I believe Melmed would have seen evidence of cancer during the explant. But definitely get the MRI. It will help ease your mind, if nothing else. What I worry about more are the hormones. Do you absolutely need to take a high level of hormones? I wonder if they could be complicating things in your breasts. Keep positive! You'll get to the bottom of this. You are strong and motivated. I am still so impressed at how quickly you went back to work right after explant! Bindi What should I do? Hello everyone! Hope ya'll are having a good Thanksgiving!Well, I have a problem, and wanted everyone's opinion on what I should do.Some of you may remember me posting about a white, pus looking discharge coming from my left nipple that I had about a week BEFORE I had my explant on September 26th. I had the same discharge about 2 more times a week AFTER my surgery too.Went to my Gyno, who did a Prolactive level and a hormone level. Both came back completely normal.For nearly 2 months, I had no more discharge.Last week or so, the discharge came back, and now it is yellow, brown, and bloody. I cannot squeeze the discharge out, but it is in my bra when I wake up every day.I panicked and went back to my Gyno, who examined my breasts and said that he could not tell if I had a lump or not because I have the most Fiborcystic breasts that he has seen in a long time! Very bad!He said that he thinks it's a Hematoma (sp?) from my surgery, even though I had a white discharge BEFORE my surgery.He wants me to get an MRI to be on the safe side, since I take large amounts of estrogen every day, and my insurance has approved it, but here's the problem.....The clinic that does the MRI's has a policy that they refuse to bend....they require a Mammogram before any MRI. Dr. Melmed said that I CANNOT have a mammogram before March, or it will ruin my lift, plus I would be too sore. I am scheduled for my yearly mammogram in the middle of March, but my insurance will cover one in December.Dr. Melmed said that he did not see any cancer in me when he did my surgery 2 months ago, but this daily nipple discharge is really scaring me! My mother had breast cancer at my age now!So what do you girls think? Should I get the Mammogram in December, and ruin my lift, and experience a lot of pain in the meantime, since my breasts are very sore due to the Fibrocystic breast disease? It would surely ease my mind about cancer! Or should I listen to what Dr. Melmed said about the fact that he did not see any cancer in me when he did my surgery? Should I go ahead and get the mammogram so I can get the MRI, and ruin my lift that I spent so much money on?!!I don't know what to do......I just want to know what is causing the bloody discharge in my bra every night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 Dear Leyna, Your insurance approved the MRI. There must be another place to have an MRI besides the one that has the protocol about having a mammo done first!! You should be able to get the GYN to help with this. But there may be something here I don't get. Perhaps you have to go to the MRI place because it's the one your insurance is contracted with. So even 'though the insurance approved the MRI....well you see how it can be a big mess! I'm trying to think here. Basically if your medical doctors think you should have the MRI without a mammo first (for medical reasons) then their orders should override the protocol set up by the MRI provider. That's for someone who hasn't just had breast surgery etc, etc. You are an exception! But how to get your 2 doctors to coordinate their efforts to make this happen...that's the issue. The GYN doctor needs to talk with Dr. Melmed...not likely to happen unless you insist on it! By now you've probably done something to try to get this worked out. Keep us informed. I feel so frustrated for you! And it's a holiday weekend besides....jeez! Don't panic about the long shot that it's cancer, Leyna. Likely it's something else. Try to stay calm and work this through to get what you need. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 Lenya, I know it must be scary and hard but I would listen to Dr. Melmed. He is very good if he says he didn't see any cancer try not to worry and get it done when you are scheduled, Try not to panic and just trust in god and Melmed, let yourself heal and don't mess with the nipple. It will be here before you know it. If it was cancer he would have seen it and done what was necessary. I know you must be freaked out but I think your breasts have been through enough for right now. That is just my opinion try to relax and just heal. I have to rein myself in still because I too still have got alot of stuff going on in my body, I was sceduling every test imaginable lately. But now I am just going to calm myself down and trust God. Keep us posted sweet Lenya, Aloha, Terri P --- In , " leyna1964 " <leyna1964@...> wrote: > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > Well, I have a problem, and wanted everyone's opinion on what I > should do. > > Some of you may remember me posting about a white, pus looking > discharge coming from my left nipple that I had about a week BEFORE I > had my explant on September 26th. > > I had the same discharge about 2 more times a week AFTER my surgery > too. > > Went to my Gyno, who did a Prolactive level and a hormone level. Both > came back completely normal. > > For nearly 2 months, I had no more discharge. > > Last week or so, the discharge came back, and now it is yellow, > brown, and bloody. I cannot squeeze the discharge out, but it is in > my bra when I wake up every day. > > I panicked and went back to my Gyno, who examined my breasts and said > that he could not tell if I had a lump or not because I have the most > Fiborcystic breasts that he has seen in a long time! Very bad! > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > though I had a white discharge BEFORE my surgery. > > He wants me to get an MRI to be on the safe side, since I take large > amounts of estrogen every day, and my insurance has approved it, but > here's the problem..... > > The clinic that does the MRI's has a policy that they refuse to > bend....they require a Mammogram before any MRI. > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > will ruin my lift, plus I would be too sore. I am scheduled for my > yearly mammogram in the middle of March, but my insurance will cover > one in December. > > Dr. Melmed said that he did not see any cancer in me when he did my > surgery 2 months ago, but this daily nipple discharge is really > scaring me! > > My mother had breast cancer at my age now! > > So what do you girls think? Should I get the Mammogram in December, > and ruin my lift, and experience a lot of pain in the meantime, since > my breasts are very sore due to the Fibrocystic breast disease? It > would surely ease my mind about cancer! > > Or should I listen to what Dr. Melmed said about the fact that he did > not see any cancer in me when he did my surgery? Should I go ahead > and get the mammogram so I can get the MRI, and ruin my lift that I > spent so much money on?!! > > I don't know what to do......I just want to know what is causing the > bloody discharge in my bra every night. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2006 Report Share Posted November 24, 2006 Dear Bindi, You say just the right words here! And how kind of you to offer to help. I feel much better now! :-) > > Leyna, > You should call Melmed's office and also write him, asking for a letter. If you don't get some help from him, let me know, and I'll bug him for you. We former explant patients help Melmed immensely by recommending him to other women and getting business for him. The least he could do is write the occasional letter, etc. > I always got what I needed from him-- records, etc. Keep trying. > > I'd bet that there is some old infection brewing in there that hasn't healed up. I would try not to worry about it too much. I believe Melmed would have seen evidence of cancer during the explant. But definitely get the MRI. It will help ease your mind, if nothing else. > > What I worry about more are the hormones. Do you absolutely need to take a high level of hormones? I wonder if they could be complicating things in your breasts. > > Keep positive! You'll get to the bottom of this. You are strong and motivated. I am still so impressed at how quickly you went back to work right after explant! > Bindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 Bindi, Thanks so much for your reply....I switched my email to " web only " because I had joined some other -and I forget to check in as much as I was when I was getting mail every day. lol Well, I don't think a letter from Melmed would do much good-I mean, I have the operative report that explains everything he did, and if he wrote some letter saying that a mammogram would ruin my lift, I think the mammogram office couldn't care less...they just want to follow their stupid protocol. I don't understand how it would ruin my lift though-can anyone explain that to me? Would it make me saggier or something? My breasts feel so incredibly lumpy...the side with the discharge does especially. It feels like rocks in there-like I still have implants! Yeah...I've tried going without the large doses of HRT...it took months and months for me to get on the right dosage-and yeah, it is large, but before I got on that dose, it was a nightmare for me- horrible panic attacks and crying spells, severe acne, weight gain,screaming tantrums, and brain fog so bad that I would wander around in a daze, forgetting everything. I was taking a CNA course at that time, and the teacher kicked me out becuase of my crying spells and inability to learn anything. Estrogen fixed all that for me, thank God. So you think I should go ahead and get the mammogram? I'm not that worried about how bad it will hurt, I'm just worried about ruining my lift. > > > > Leyna, > > You should call Melmed's office and also write him, asking for a > letter. If you don't get some help from him, let me know, and I'll bug > him for you. We former explant patients help Melmed immensely by > recommending him to other women and getting business for him. The > least he could do is write the occasional letter, etc. > > I always got what I needed from him-- records, etc. Keep trying. > > > > I'd bet that there is some old infection brewing in there that > hasn't healed up. I would try not to worry about it too much. I > believe Melmed would have seen evidence of cancer during the explant. > But definitely get the MRI. It will help ease your mind, if nothing else. > > > > What I worry about more are the hormones. Do you absolutely need to > take a high level of hormones? I wonder if they could be complicating > things in your breasts. > > > > Keep positive! You'll get to the bottom of this. You are strong and > motivated. I am still so impressed at how quickly you went back to > work right after explant! > > Bindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 Sunny, Thanks for the advice about Aloe Vera...actually I just bought some for the first time a few days ago...it's weird because it tastes just like I'm drinking water! I didn't know it helped slow cancer growth though-that's nice to know! I'm also still doing my 2 tablespoons of flaxseed and my 10 apricot kernels-both of those are supposed to help cancer. > > > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > > > Well, I have a problem, and wanted everyone's opinion on what I > > should do. > > > > Some of you may remember me posting about a white, pus looking > > discharge coming from my left nipple that I had about a week BEFORE > I > > had my explant on September 26th. > > > > I had the same discharge about 2 more times a week AFTER my surgery > > too. > > > > Went to my Gyno, who did a Prolactive level and a hormone level. > Both > > came back completely normal. > > > > For nearly 2 months, I had no more discharge. > > > > Last week or so, the discharge came back, and now it is yellow, > > brown, and bloody. I cannot squeeze the discharge out, but it is in > > my bra when I wake up every day. > > > > I panicked and went back to my Gyno, who examined my breasts and > said > > that he could not tell if I had a lump or not because I have the > most > > Fiborcystic breasts that he has seen in a long time! Very bad! > > > > He said that he thinks it's a Hematoma (sp?) from my surgery, even > > though I had a white discharge BEFORE my surgery. > > > > He wants me to get an MRI to be on the safe side, since I take > large > > amounts of estrogen every day, and my insurance has approved it, > but > > here's the problem..... > > > > The clinic that does the MRI's has a policy that they refuse to > > bend....they require a Mammogram before any MRI. > > > > Dr. Melmed said that I CANNOT have a mammogram before March, or it > > will ruin my lift, plus I would be too sore. I am scheduled for my > > yearly mammogram in the middle of March, but my insurance will > cover > > one in December. > > > > Dr. Melmed said that he did not see any cancer in me when he did my > > surgery 2 months ago, but this daily nipple discharge is really > > scaring me! > > > > My mother had breast cancer at my age now! > > > > So what do you girls think? Should I get the Mammogram in > December, > > and ruin my lift, and experience a lot of pain in the meantime, > since > > my breasts are very sore due to the Fibrocystic breast disease? It > > would surely ease my mind about cancer! > > > > Or should I listen to what Dr. Melmed said about the fact that he > did > > not see any cancer in me when he did my surgery? Should I go ahead > > and get the mammogram so I can get the MRI, and ruin my lift that I > > spent so much money on?!! > > > > I don't know what to do......I just want to know what is causing > the > > bloody discharge in my bra every night. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 Diane, Yes, it's very frustrating to me too. Actually, there are two or three places that will take my insurance-two of them only does mammograms-no MRI's at all. And then this one has that stupid protocol. Wonder if I can threaten to sue them for the amount of my lift that the would probably ruin if I have to have the mammogram? LOL My breast is very hard and lumpy-my Gyno said that I have really bad Fibrocystic breasts-they've always been like that though. Makes it very difficult to detect any lumps-and you sure can't feel them, he says! Seems like I read somewhere that Fibrocystic Breast Disease can cause discharge from nipples...maybe it's something as simple as that-I hope! > > Dear Leyna, > Your insurance approved the MRI. There must be another place to have an > MRI besides the one that has the protocol about having a mammo done > first!! You should be able to get the GYN to help with this. But > there may be something here I don't get. Perhaps you have to go to the > MRI place because it's the one your insurance is contracted with. So > even 'though the insurance approved the MRI....well you see how it can > be a big mess! I'm trying to think here. Basically if your medical > doctors think you should have the MRI without a mammo first (for medical > reasons) then their orders should override the protocol set up by the > MRI provider. That's for someone who hasn't just had breast surgery > etc, etc. You are an exception! But how to get your 2 doctors to > coordinate their efforts to make this happen...that's the issue. The > GYN doctor needs to talk with Dr. Melmed...not likely to happen unless > you insist on it! > By now you've probably done something to try to get this worked out. > Keep us informed. I feel so frustrated for you! And it's a holiday > weekend besides....jeez! Don't panic about the long shot that it's > cancer, Leyna. Likely it's something else. Try to stay calm and work > this through to get what you need. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 Dear Leyna, just writing to say I am thinking of you soo much - I would think that Dr. Melmed would have indeed seen something wrong during explant if there was anything to see? I wonder if it could be a disorder of the nipple itself? My mother had a similiar experience that turned out not to be serious. I googled this and it appears that discharge in the nipples as you discribed seems to be cancer in less than 10%, and is usually an endricone issue. Have you heard of that? perhaps your OBGYN can refer you to an endriconoligst? before going thru with the mammogram? XOXO > > > > > > Hello everyone! Hope ya'll are having a good Thanksgiving! > > > > > > Well, I have a problem, and wanted everyone's opinion on what I > > > should do. > > > > > > Some of you may remember me posting about a white, pus looking > > > discharge coming from my left nipple that I had about a week > BEFORE > > I > > > had my explant on September 26th. > > > > > > I had the same discharge about 2 more times a week AFTER my > surgery > > > too. > > > > > > Went to my Gyno, who did a Prolactive level and a hormone level. > > Both > > > came back completely normal. > > > > > > For nearly 2 months, I had no more discharge. > > > > > > Last week or so, the discharge came back, and now it is yellow, > > > brown, and bloody. I cannot squeeze the discharge out, but it is > in > > > my bra when I wake up every day. > > > > > > I panicked and went back to my Gyno, who examined my breasts and > > said > > > that he could not tell if I had a lump or not because I have the > > most > > > Fiborcystic breasts that he has seen in a long time! Very bad! > > > > > > He said that he thinks it's a Hematoma (sp?) from my surgery, > even > > > though I had a white discharge BEFORE my surgery. > > > > > > He wants me to get an MRI to be on the safe side, since I take > > large > > > amounts of estrogen every day, and my insurance has approved it, > > but > > > here's the problem..... > > > > > > The clinic that does the MRI's has a policy that they refuse to > > > bend....they require a Mammogram before any MRI. > > > > > > Dr. Melmed said that I CANNOT have a mammogram before March, or > it > > > will ruin my lift, plus I would be too sore. I am scheduled for > my > > > yearly mammogram in the middle of March, but my insurance will > > cover > > > one in December. > > > > > > Dr. Melmed said that he did not see any cancer in me when he did > my > > > surgery 2 months ago, but this daily nipple discharge is really > > > scaring me! > > > > > > My mother had breast cancer at my age now! > > > > > > So what do you girls think? Should I get the Mammogram in > > December, > > > and ruin my lift, and experience a lot of pain in the meantime, > > since > > > my breasts are very sore due to the Fibrocystic breast disease? > It > > > would surely ease my mind about cancer! > > > > > > Or should I listen to what Dr. Melmed said about the fact that he > > did > > > not see any cancer in me when he did my surgery? Should I go > ahead > > > and get the mammogram so I can get the MRI, and ruin my lift that > I > > > spent so much money on?!! > > > > > > I don't know what to do......I just want to know what is causing > > the > > > bloody discharge in my bra every night. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2006 Report Share Posted November 25, 2006 Leyna, Did you ask Melmed what he thought you ought to do about the discharge problem? I think the the chance of ruining the lift has to do with the internal stitching he did-- since a mammogram squeezes the breasts it might burst the stitches. It hasn't been that long, really, since you had the surgery. Your tissues are still healing. If Melmed says to wait I'd wait-- he is pretty loose about a lot of things and I don't think he would tell you to do that if he wasn't truly concerned about the risk. That may also be why you are having some discharge-- you may have a small hematoma. I would still pursue the letter from Melmed. I doubt that the insurance company or whoever is making you jump through those hoops would want to risk messing up your surgery if your PS says a mammogram might mess it up. They'd be liable for the result. My breasts were also very lumpy after surgery. It gradually went away over several months. Is there a way to get a second opinion? Can't they do some sort of testing of the fluid to see what's up with it? I'd keep looking into your options and take your time. I know its hard when you are worried, but taking some extra time to think carefully will help you make the right decision. Bindi Re: What should I do? Bindi,Thanks so much for your reply....I switched my email to "web only" because I had joined some other -and I forget to check in as much as I was when I was getting mail every day. lolWell, I don't think a letter from Melmed would do much good-I mean, I have the operative report that explains everything he did, and if he wrote some letter saying that a mammogram would ruin my lift, I think the mammogram office couldn't care less...they just want to follow their stupid protocol.I don't understand how it would ruin my lift though-can anyone explain that to me? Would it make me saggier or something?My breasts feel so incredibly lumpy...the side with the discharge does especially. It feels like rocks in there-like I still have implants!Yeah...I've tried going without the large doses of HRT...it took months and months for me to get on the right dosage-and yeah, it is large, but before I got on that dose, it was a nightmare for me-horrible panic attacks and crying spells, severe acne, weight gain,screaming tantrums, and brain fog so bad that I would wander around in a daze, forgetting everything. I was taking a CNA course at that time, and the teacher kicked me out becuase of my crying spells and inability to learn anything. Estrogen fixed all that for me, thank God.So you think I should go ahead and get the mammogram? I'm not that worried about how bad it will hurt, I'm just worried about ruining my lift.> >> > Leyna,> > You should call Melmed's office and also write him, asking for a> letter. If you don't get some help from him, let me know, and I'll bug> him for you. We former explant patients help Melmed immensely by> recommending him to other women and getting business for him. The> least he could do is write the occasional letter, etc. > > I always got what I needed from him-- records, etc. Keep trying.> > > > I'd bet that there is some old infection brewing in there that> hasn't healed up. I would try not to worry about it too much. I> believe Melmed would have seen evidence of cancer during the explant.> But definitely get the MRI. It will help ease your mind, if nothing else.> > > > What I worry about more are the hormones. Do you absolutely need to> take a high level of hormones? I wonder if they could be complicating> things in your breasts.> > > > Keep positive! You'll get to the bottom of this. You are strong and> motivated. I am still so impressed at how quickly you went back to> work right after explant! > > Bindi> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 Leyna, I wouldn't be concerned about lumpiness right now . . .that's likely the healing process from your explant . .it very well could be mistaken for cysts. I am concerned about the discharge - particularly if it's pus colored . . . Would the doctor collect, and test, some of this material? Rogeneleyna1964 <leyna1964@...> wrote: Bindi,Thanks so much for your reply....I switched my email to "web only" because I had joined some other -and I forget to check in as much as I was when I was getting mail every day. lolWell, I don't think a letter from Melmed would do much good-I mean, I have the operative report that explains everything he did, and if he wrote some letter saying that a mammogram would ruin my lift, I think the mammogram office couldn't care less...they just want to follow their stupid protocol.I don't understand how it would ruin my lift though-can anyone explain that to me? Would it make me saggier or something?My breasts feel so incredibly lumpy...the side with the discharge does especially. It feels like rocks in there-like I still have implants!Yeah...I've tried going without the large doses of HRT...it took months and months for me to get on the right dosage-and yeah, it is large, but before I got on that dose, it was a nightmare for me-horrible panic attacks and crying spells, severe acne, weight gain,screaming tantrums, and brain fog so bad that I would wander around in a daze, forgetting everything. I was taking a CNA course at that time, and the teacher kicked me out becuase of my crying spells and inability to learn anything. Estrogen fixed all that for me, thank God.So you think I should go ahead and get the mammogram? I'm not that worried about how bad it will hurt, I'm just worried about ruining my lift.> >> > Leyna,> > You should call Melmed's office and also write him, asking for a> letter. If you don't get some help from him, let me know, and I'll bug> him for you. We former explant patients help Melmed immensely by> recommending him to other women and getting business for him. The> least he could do is write the occasional letter, etc. > > I always got what I needed from him-- records, etc. Keep trying.> > > > I'd bet that there is some old infection brewing in there that> hasn't healed up. I would try not to worry about it too much. I> believe Melmed would have seen evidence of cancer during the explant.> But definitely get the MRI. It will help ease your mind, if nothing else.> > > > What I worry about more are the hormones. Do you absolutely need to> take a high level of hormones? I wonder if they could be complicating> things in your breasts.> > > > Keep positive! You'll get to the bottom of this. You are strong and> motivated. I am still so impressed at how quickly you went back to> work right after explant! > > Bindi> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hello, At present, I live in a moldy home that is making me ill. The problem is, I live in a damp area and homes are often moldy. (Please - no suggestions that I move out of the area - I don't have the money). What can I do to make sure that my next home will not be moldy? You can't always smell mold. Mold detection companies have told me that they will charge $500 just to see if mold is a problem in an apartment. Yes, I know about those cheapie $20 mold kits. But they take 2 weeks to work, and by then, the lease will be signed. Thanks, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.