You really are terrific people!

[Guest guest]

I just want to say THANK YOU to everyone who responded to my ranting and raving!

I KNEW you all would understand.....I've seen and felt your frustrations as

well.

I need to send a BIG THANK YOU to Bruce in Ruidoso who said to me " get every

medical record with Rick's name on it! Get the notes, the disks, the films, the

videos, etc. etc. " I have become enlightened reading this reports. And yet,

I feel like we're just now getting the whole story....the docs were only telling

us half of what they wrote down!!

So, now, I have a few more questions. Some words and stuff that I didn't

recognize the appeared many times in several of the reports.

Has anyone heard of/have knowledge of Lhermitte's sign? Is that a condition

or.........?!?! How 'bout " stenosis of the spinal cord? " I understand that

a " stenosis " is a narrowing......is this a normal (?) chiari thing, or a

whole new " thing " in itself?! And please.....a definition for myleopathy?

I also found out that the first neurologist that performed the EMG for

carpal tunnel, also suggested that we have an MRI (he did not suggest this to

US, he suggested it to the ortho-surgeon who NEVER mentioned it to us!). He

seemed to think that the shooting pains Rick was getting down his arm when he

coughed was related to something else besides the carpal tunnel. Had we KNOWN

this, we would've gotten the MRI, and probably would've gone straight to the

decompression surgery and not messed with the carpal tunnel released. Rick

feels that the carpal tunnel was never actually carpal tunnel, but a " chiari

thing. " I tend to agree since the release did not alleviate the symptoms.

hehehehe.....and by the way, I AM going to copy that sheet that says the

syrinx collapsed and send it to that stupid neurologist with a little " love "

note!! (Not really to achive anything, just personal gratification.) *GRIN*

Thanks bunches!!

Wendi--New Mexico

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