rebecca update

[Guest guest]

rebecca is feeling fine tonight , the young man who was to drive her to the

er totally flaked , bad news .....so we got her a ride to town tonight ( and

her hubby ) where they will stay with friends , and she will go to the er as

dirrected tomorow , to get a referal back up here to her childhood neuro

hopefully :-)

thanks for all those prayers , and the suport , prayer does wonders . im very

thankful the headache is gone , and that she has agreed to see a doctor .

im calm now too , i was really frightened , and it helped so much , to know

you were all there to pray and suport us .

ill post an update as i know anything , she thinks these are migraines like

she had as a child ....im thinking i wont be a rest till ive seen an mri with

my own eyes !

the good news , is this neuro is very good in many ways , he doesnt have the

total respect of the local doctors , so is not the one i saw for years ,

since my old primary felt he wasnt the best choice here , but he is the neuro

i saw the first 2 years after dx with chiari and ms ...he thought i would

progress to dificulties faster than i did , and i stoped seeing him when

nothing signifant had gotten worse over those first couple years , feeling i

didnt need a neuro .

he is from eastern europe , and was both a psychiatrist and neurologist ,

heading a large hospital there , then was able to emigrate as a jewish refuge

.....and to be licienced here in the states , did another residency in

neurology ! as i recall his medical education was much more rigerous than

that here in the us , and he had wide open abilities to study/treat what he

chose there . sweet natured too , i liked him then , but let my former

primarys judgement lead to the jerk neuro :-(

......he thought the ms chiari stuff in me was worse then , than i did ..but

mris were new then , and i think not as much about reading them ,for either

condition was really understood ...funny to have all these memories surface

now !

anyway he felt then , that the complex migraines she was having ,with vision

loss as a precursor to intense headache , were related to her brain and

growth ratio, and she would most likely outgrow them by mid teens , she

seemed to have done so ;-)

after she woke today i asked her about what was happening while she was just

laying there with tears seeping out , and her hands constantly moving but

pressing on the forehead and eyes ect ...she said moving even a fraction of

an inch made it flare more , this is the same as what has happen to me

several times since surgery ....the nausea too ......so im really wondering

now ! she didnt have vision involvment or light phobia last night , and this

headache was very much stronger and a different sort than shes had before !

ah well ....shes agreed to go to the doctor , thats an answer to much prayer

, thank you all for those prayers on our behalf!

sarah in paradise

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