looking for a doctor in Kansas City, Tulsa, or SW Missouri

[Guest guest]

I tried posting the following message to the group from the web, but I

apparently did something wrong, since it did not show up in the message

listing, so I am sending again. If this shows up twice, I apologize. --

Please help!

I have a friend who very likely has an Arnold-Chiari malformation. She has

persistent headaches and some mild neuro symptoms, and her CT scan showed

some tonsillar herniation. She also has a mild spina bifida occulta. However,

her local doctor claims that she does not have " enough " tonsillar herniation

to diagnose Arnold-Chiari malformation (he did not tell her how many mm

herniation) and that her headaches are not related to the herniation and

are just regular headaches. This, of course, does not make sense. If she

has a documented tonsillar herniation and she is symptomatic, then it

really should be evaluated further.

Since this doctor apparently is not very knowledgeable about Arnold-Chiari

malformation, I am hoping that someone can recommend a doctor for her. Does

anyone know of a good doctor who is familiar with Arnold-Chiari malformation

in the Tulsa, Oklahoma; Springfield, Missouri; or Kansas City areas? I am not

sure how this group works, and I would very much appreciate private e-mail

responses, if possible, if anyone has a doctor recommendation (I'm afraid I

will

miss some responses otherwise). My e-mail address is dkvander@...

Thanks!

Kathleen

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[Guest guest]

Kathleen,

Take a look at this:

<A HREF= " http://www.surgery.missouri.edu/ns/Research/aaa.html " >Neurosurgery

Research</A>

The Missouri University is doing a search for people like your friend.

Dr. Oro has been mentioned in previous posts.

Beth Bucholz

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