Re: twitching/reflexes,ect.

[Guest guest]

so sorry that you have to deal with that,I cant help but wonder if I

to will end up in a whellchair.my night twitching has mellowed out

quitw a bit, lug jurks and twicthing, a few spasms off and on but

much better than it used to be.

but with the mcs/mci it doesnt take much to turn my legs to jello and

some chemical or mold/myco exposures can bring me down pretty quick.

the range of effects they can cause is unpredictable. if I go outside

or anywhere its always a ? as to what shape I will be in when I get

back. its pretty strange how some things affect different parts of

your body. normal people get dierrhia and think it was something

they ate but I can get it from a smell with my mcs/mci

hypersensitivitys/reactions, so I know just how much smells alone

have to affect even normal people and they always blame it on

something else. at the same time it gets aggervateing because they

dont understand mcs/mci and if you mention a smell is getting to you

they say yes, me too, but they have no clue how different it is for

someone with mcs/mci. even if they see you go down to the ground, or

notice that your speech has become slurred and you become brain dumb,

or even if they can here your stomach rolling and growling right

before you have to make a make a mad rush for the bathroom, they

still have a hard time understanding. I get so tired of people not

understanding and try to get you to go do things that you may or

maynot get through depending on the smells. I'm tired of them getting

aggervated at me because I'm not up to trying to act like I'm still

normal. sorry, this has turned into a bit of a rant. I'm just getting

really tired of haveing it and people not understanding.

--- In , " " <toriaquilts@...>

wrote:

>

> I sleep with a body pillow between my legs, so the tremors don't

keep me awake so much at night anymore......!

> V.

>

>

[Guest guest]

, have you had any improvement at all with this condiction?

> >

> > I sleep with a body pillow between my legs, so the tremors don't

> keep me awake so much at night anymore......!

> > V.

> >

> >

>

[Guest guest]

YES, WHO....I WASN'T EVEN ABLE TO STAND UP, OR EVEN ROLL OVER IN A HOSPITAL BED,

WITHOUT PULLING MY LEGS OVER WITH MY HANDS. NOW I'M WALKING!!!!!!!!!!!!!!!!!!!!

I USE A CANE 99% OF THE TIME (NOT SAFE WITHOUT IT!), BUT THANK GOD I'M

WALKING........THOUGH IT TOOK ABOUT 8 MOS. OF THE HARDEST PHYSICAL THERAPY IN

THE WORLD, TO ACCOMPLISH THAT!! MY DOC CALLS ME HIS WALKING MIRACLE.

VICTORIA

[Guest guest]

CONGRATULATIONS VICTORIA WE ARE ALL VERY HAPPY FOR YOU THAT IS VERY

VERY GOOD NEWS!

On Nov 17, 2007 11:10 AM, <toriaquilts@...> wrote:

>

> YES, WHO....I WASN'T EVEN ABLE TO STAND UP, OR EVEN ROLL OVER IN A HOSPITAL

> BED, WITHOUT PULLING MY LEGS OVER WITH MY HANDS. NOW I'M

> WALKING!!!!!!!!!!!!!!!!!!!! I USE A CANE 99% OF THE TIME (NOT SAFE WITHOUT

> IT!), BUT THANK GOD I'M WALKING........THOUGH IT TOOK ABOUT 8 MOS. OF THE

> HARDEST PHYSICAL THERAPY IN THE WORLD, TO ACCOMPLISH THAT!! MY DOC CALLS ME

> HIS WALKING MIRACLE.

> VICTORIA

>

>

>

[Guest guest]

YES, THATS GREAT NEWS V. WAY TO GO GIRL!

> >

> > YES, WHO....I WASN'T EVEN ABLE TO STAND UP, OR EVEN ROLL OVER IN

A HOSPITAL

> > BED, WITHOUT PULLING MY LEGS OVER WITH MY HANDS. NOW I'M

> > WALKING!!!!!!!!!!!!!!!!!!!! I USE A CANE 99% OF THE TIME (NOT

SAFE WITHOUT

> > IT!), BUT THANK GOD I'M WALKING........THOUGH IT TOOK ABOUT 8

MOS. OF THE

> > HARDEST PHYSICAL THERAPY IN THE WORLD, TO ACCOMPLISH THAT!! MY

DOC CALLS ME

> > HIS WALKING MIRACLE.

> > VICTORIA

> >

> >

> >

>

[Guest guest]

thanks, live....NEVER in my life did i dream something of that magnitude would

happen to me, you know?

victoria

Re: [] Re: twitching/reflexes,ect.

CONGRATULATIONS VICTORIA WE ARE ALL VERY HAPPY FOR YOU THAT IS VERY

VERY GOOD NEWS!

On Nov 17, 2007 11:10 AM, <toriaquilts@...> wrote:

>

> YES, WHO....I WASN'T EVEN ABLE TO STAND UP, OR EVEN ROLL OVER IN A HOSPITAL

> BED, WITHOUT PULLING MY LEGS OVER WITH MY HANDS. NOW I'M

> WALKING!!!!!!!!!!!!!!!!!!!! I USE A CANE 99% OF THE TIME (NOT SAFE WITHOUT

> IT!), BUT THANK GOD I'M WALKING........THOUGH IT TOOK ABOUT 8 MOS. OF THE

> HARDEST PHYSICAL THERAPY IN THE WORLD, TO ACCOMPLISH THAT!! MY DOC CALLS ME

> HIS WALKING MIRACLE.

> VICTORIA

>

>

>

[Guest guest]

thanks......it took ALL i had, though, to accomplish walking again.....it was a

TRUE nightmare!

victoria

[] Re: twitching/reflexes,ect.

YES, THATS GREAT NEWS V. WAY TO GO GIRL!

> >

> > YES, WHO....I WASN'T EVEN ABLE TO STAND UP, OR EVEN ROLL OVER IN

A HOSPITAL

> > BED, WITHOUT PULLING MY LEGS OVER WITH MY HANDS. NOW I'M

> > WALKING!!!!!!!!!!!!!!!!!!!! I USE A CANE 99% OF THE TIME (NOT

SAFE WITHOUT

> > IT!), BUT THANK GOD I'M WALKING........THOUGH IT TOOK ABOUT 8

MOS. OF THE

> > HARDEST PHYSICAL THERAPY IN THE WORLD, TO ACCOMPLISH THAT!! MY

DOC CALLS ME

> > HIS WALKING MIRACLE.

> > VICTORIA

> >

> >

> >

>