Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 I would say, ok, I have allergic fungal sinusitis but I dont have any thick yellow mucus, I really dont have any mucus. a few years back the mayo clinic diagnosed me with chronic rhinositis and chronic sinusitis, leisons in my sinuses that they failed to tell me was going to keep getting worse and become these cysts/mucivele things that keep swelling, leaking and swelling again with a mind of their own, no matter what I do. they also noted a spot of what they said was cataracts in my left eye. now I've tried steriod nasal sprays and me and steriods just dont get along, and I've tried antibiotics, both a few times and its nor working. the liquid that comes out of these cysts things is clear. recently I was haveing both frontal headacke and the dreaded back of the head headackes and went to a ER a few hours away and they actually did CAT scan. by the time I got there the lungs and back of the head headacke was doing better and the frontal headacke and sinuses was worse. I was in dumb land pretty good so when the doc on call came out saying I needed to get to a expert ent and my sister said she knew one, well you know, anyway this ent looked at the dvd of my cat scan and came back and said he wanted to do his own cy scans because he didn'r like this dvd.??? I try telling him what I've been through thinking he would understand better what he saw on that dvd. but he didn't and I didn't have the headackes at that time and his ct's omly showed 1 cyst above my left eye sinus. not the ones between my eyes or under my eyes in my sinuses or whats going on in my head. so despite me telling him I CANT TOLERATE STERIODS, he gives some samples and a prescription just in case I can and tells me they usually dont remove cysts if they can keep them from swelling. AND I'M SETTING THERE TELLING HIM THEY KEEP SWELLING AND I'VE ALREADY TRIED ANTIBIOTICS AND STERIODS! THIS IS EFFECTING MY BRAIN AND LOOK AT MY EYES! so anyway, I guess theres ent and than theres expert ent's??? now that spot of " cataracts the mayo noted in my left eye is a whole lot worse, I no longer see out of that eye and my right eye is fastly catching up. I have manages compare my cat scan with both normal cat scams of the brain and ct's of chronic rhinositis,ect. my olfactory bulbs are missing and some of the track, I have chronic rhinitis, my amygdalas are lite up like lightbulbs, my ear canals dont look normal and other things that dont appear in nirmal cat scans I looked at, but I'm no expert and somethings showed up better with inverted cat scan than in normal mode, its 3d but my puter isn't the greatest. and you can see what appears the be infection in the csf in my head because I think it should be clear but you can see swirls of it.now I also have limbic seizures and mcs/mci so I'm very worried about just letting anyone do surgery if they dont reconize what their sealing with. the cyst things look to be growing off the bones and there appears to be paths in my bones that go into my eye sockets so I do think the floresant green stuff in my pupils is not in my lens but actually is in front of my lens and its called fungal endothalmitis and would probibaly grow the mold if removed and tested. and I have a felling that the liquid that is in these cysts/,ucoceles might test possitive for mycotoxins. this is getting bad. I'm a tough gal but this is getting very bad. I cant research anymore, I have to enlarge everything so big to see that I than have to scroll back and forth to read it and that messes with my head and eyes and I just cant do it anymore. now my mom is kind of getting it and well help me get somewhere but I need someone who understands the mcs, reaccureing infections,ect. I have medicare and medicad. I had money when I had my first lawyer but I dont have any now. he was a cob and I dont mind saying that because it's the truth. he claimed to be a expert on toxic mold cases and didn't know shit, he repeated told me my case was going great and he couldn't wait ti get it to court, well he was lieing his ass off, bull does walk and insurance money talks. I fell sorry for anyone who deals with him, even if I shouldn't, MJ. now I have a new lawyer and lets face it, I'm in missouri. I cant tell you how many lawyers I called while looking for a new lawter that thought you just get better after getting out of the mold. I am sick from toxic mold exposure, I'm tough but this is wearing me down. and need sinus and eye surgery and somewhere safe to do it vecause of the mcs/mci. any help would be greatly appresheated. I really need my eyes and brain. now it wears mr out to type this much so I wont be up to answering alot of questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 was hopeing this well wait tell I get to shoemaker but I just dont know, at this point someone would have to go with me. maybe its both,allergic and toxic. I think 1 or 2 of those cysts are polups and the others are mucoveles. maybe allergies affect you somewhat different when you have mcs. seems mcs is mci with allergies. I'm more sure about my tocin exposure related illness than the allergy part. they supposedly know the protuen envolved with peanut allergy so I suppose there is a difference, as in a true allergy. I have ate peanutbutter and been ok, but quite a while back I was eating peanuts out of the shell and my nose was running, they just happen to be talking about peanut allergies on tvm whay I realized is that the shells are moldly and thats what was makeing my nose run. same way with sunflower seeds. that has been my only sign of possible true allergy to mold. it's just all confusing, I dont think a mold allergy to a whole celled wall spore can cause infection, but mycosis or mycotoxicosis can. if the mold spore is soluable that too would be mycosis or mycotoxicosis. so U just dont get where allergy would play much of a role in this nightmare maybe if you didn't wash your sinuses but I do. Quote Link to comment Share on other sites More sharing options...
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