Re: How does one get a diagnoses of MCS? or does it just go along with MOLD ILLNESS?

[Guest guest]

I was diagnosed by a asthma,allergy and immunologest doctor, a member

of aaem, which is Dr. Rea's method.

a combination of allergy,food akkergy and specific IgE and IgG for

mcs tests. plus I was suffering when I gor there and he notes dilated

pupils,dry rale lungs, balance ect. I know what you mean about the

confusion of which symptoms go with which illness. what I've noticed

with me is that with mcs some low level exposures can bring on the

cfs and fibromyalgia type effects, so I believe that people who dont

have mcs but have cfs amd/or fibro are still haveing that from some

form of toxin exposure wiether its a virus or whayever, so I believe

mcs is cfs,fibro(which is pns damage) and with mcs you also have cns

and cranial nerve damage so it goes way beyond fibro. I used to think

the limbic seizures were part of the mcs but I guess that part of

toxic encephalopathy. however what some refer to as brain fog is part

of the mcs. I also have some permenant tbi effects that are related

to haveing fungal meningitis(brain swelling and csf leaks. which in

part is csf thinorrhia which I knew I had before I knew there was a

actual name for it. and now that I've found info. on it I have found

on my cat scan where those leaks are. I also tie the heart

probkems,vascular and cholesterol/weight gain,ect. in with the mcs

because I can fell the effects in my viens of some toxin exposures

and even the bad reactions I get with some drugs, I relate to the

chemical toxin intolerance. confussed yet? I think TE and MCS pretty

well covers it all, and with me the csf rhinorrhia was just a little

extra result of my exposure.

>

> It seems I've had MCS shortly after I began working for my employer

> approx 18 yrs ago! And just now as I wasn't sure just how many

> symptoms MCS included, I went to wikipedia and read the symptoms

> list. I HAVE EVERY SINGLE SYMTOM! Let me say I depise weekends. I

> live in a house down wind from a lundrymat. there is no way to

avoid

> everyones detergent and dryer sheets smell. My startle response is

> off the charts, if there were any charts... I was exposed during my

> work duties, to a HUGE SOLID THICK MOLD GROWTH by going in and out

of

> a dark closed up room, intermittanlty for over a year. I had no

idea

> MOLD could make you sick. I saw this MOLD back in Feb. of this

year.

> It was LONG-THICK-BLACK-GREEN and HAIRY. I was recently diagnosed

> with Fibromyalgia due to: PAIN everywhere! Started out with my feet

> and ankles and at the inside of my elbows, then came Nightmares and

> Migraines. Prior years back, I had numbness with intermittant

> electrical like buzzing in my lower extremities, I thought it was

due

> to my back condition, although I didn't really have but slight low

> back pain, which more than half America has right? I had burning

skin

> rashes which I thought I wasn't rinsing the soap from me well. Many

> allergy attacks that were discussed with co-workers. I'd always

say "

> It's funny I only have these attacks at work, never at home! Boils,

> and abscesses. Sever Heartburn, Constant sinus pressure w/

headaches.

> Light sensitivity, just to name a few. And as my body and mind

still

> discover's the illness MOLD can cause, it seems MOST of my co-

workers

> had/ have symptoms too. I have been unable to work now for 5 months

> and the reason being is due to painful elbows and loss of muscle

> stength, I went from being " able to climb a mountain " to " un-able

to

> walk " in a matter of a few weeks. right before my muscles gave out,

I

> had what I'd call an ATTACK ON MY MENTAL STATE! a total change in

> personality, I became a sarcastic " B " , balance and gait problems,

> loss of short term memory, forgetting my passwords all the time and

> calling for new ones, focus went out the window, I becam dyslexic,

> unable to multi-task, extreme sleepiness, chestpain just a bit

under

> the left clavicle, short weird dizzy spells w/ heart beating fast

> then skipping beats, holding my breath, whispering?? I remember my

co-

> worker asking me " why are you whispering " what was bad was, I WAS

SO

> SICK, and I DIDN'T EVEN REALIZE I WAS SICK! I't was like I was in

an

> auto-response mode, and one big nerve, and was bieng irritated by

> anything and everything and I continued this way until I BECAME

> BROKEN! I had even forgotten about the MOLD! it wasn't untill

Sept./

> Oct., while looking for causes of my newly diagnosed illness of

> Fibro, that I came across a post I had made back in Feb. regarding

> the MOLD. -- In 2004/5?(Mem. lapse, I still have horrible mem.

> prob's) I saw commercials describing Restless Leg Syndrome and

thoght

> thats what I have! but NO, it was TWITCHING which I still have. I

> also had my head start to wobble, with the Dr saying they were

> TREMORS and " SOME PEOPLE JUST GET UM " now I have BIG WOBBLES. My

knee

> hurt something fierce in 2004/5? and an MRI was done... the report

> was " Yellow fatty bone marrow leaking from my femur! I asked what

> would cause that and the Dr said " I dunno, fill out a surgery card

> and I'll scope it and take a look... HUH??? So now, I'm wondering,

do

> I have all 3 conditions? OR is it MOLD ILLNESS? I was told also I

> have Thyroid Prob's and last week told I have Asthma, my skin

itches

> all the time and constantly stings like I've been dipped in an acid

> bath...other than that...well I could continue....

>

[Guest guest]

ps. I guess it depends on how you look at it, I guess some can get TE

without haveing MCS, or the other way around.

plus I forgot to list the mycosis and mycotoxicosis.

you can have mycotoxicosis from exposure to just one type of

mycotoxin, I ne;oeve to even low level amounts. for me that meant

reaccuring mycotoxin infections in my lungs, spinal cords,dieerhia,

and nervous system effects which I mistook as some rather strange

anixity attacks.

the sponal cord infection radiated down my legs to my toes and down

my arms to my fingers causeing numbness,tingleing,spasms ect. and

really it included the fibro like symptoms from the start, the one

thing I know for a fact is that it was all a resukt od exposure to

mycotoxins.

and I stress this because I'm very possitive that this exposure in my

first home was straight that, minus the other chemicals that multiple

molds can produce as it was a 3 story victorian home and if that was

going on it was mainly on the third floor were I hardly ever ventered.

totally different than my second home exposure where there was a high

moisture problem throughout, under and above me and multiple toxic

molds in high amounts and no dought bacteria which I'm thinging

played a big role in both mcs,te and tbi from that exposure. I know I

keep harping about this but I think many,many people out there are

suffering back pain or other illnesses from a low and/or maybe one

main type of mycotoxin, or group of one type of mycotoxin like

trichathecenes and not see the mold or have noticeable moisture

problems and not have a clue as to whats happening to them.

[Guest guest]

Happy,

Thank you for posting all the symptoms that you have experienced

from your exposure. I wish more would do this, especially

the " newbies " . Everything you mentioned my wife can relate to and

I'm sure many others on this board can also. Without experiencing

this firsthand or a spouce observing the affects it has had on you,

no one can fully grasp the seriousiness of this syndrome. Even

though some have tried.

We know there is no possible way anyone could make up many of

these " odd ball " , off the wall and sometimes ridiculous symptoms. If

it was just one of two of us, yeah maybe they could call us crazy,

but it's not, it's hundreds, thousands and I will even go as far as

saying millions that have experienced the same symptoms that many

refuse to acknowledge or misdiagnose.

Thank you,

KC

--- In , " happyruiam " <happyru@...>

wrote:

>

> It seems I've had MCS shortly after I began working for my

employer

> approx 18 yrs ago! And just now as I wasn't sure just how many

> symptoms MCS included, I went to wikipedia and read the symptoms

> list. I HAVE EVERY SINGLE SYMTOM! Let me say I depise weekends. I

> live in a house down wind from a lundrymat. there is no way to

avoid

> everyones detergent and dryer sheets smell. My startle response is

> off the charts, if there were any charts... I was exposed during

my

> work duties, to a HUGE SOLID THICK MOLD GROWTH by going in and out

of

> a dark closed up room, intermittanlty for over a year. I had no

idea

> MOLD could make you sick. I saw this MOLD back in Feb. of this

year.

> It was LONG-THICK-BLACK-GREEN and HAIRY. I was recently diagnosed

> with Fibromyalgia due to: PAIN everywhere! Started out with my

feet

> and ankles and at the inside of my elbows, then came Nightmares

and

> Migraines. Prior years back, I had numbness with intermittant

> electrical like buzzing in my lower extremities, I thought it was

due

> to my back condition, although I didn't really have but slight low

> back pain, which more than half America has right? I had burning

skin

> rashes which I thought I wasn't rinsing the soap from me well.

Many

> allergy attacks that were discussed with co-workers. I'd always

say "

> It's funny I only have these attacks at work, never at home!

Boils,

> and abscesses. Sever Heartburn, Constant sinus pressure w/

headaches.

> Light sensitivity, just to name a few. And as my body and mind

still

> discover's the illness MOLD can cause, it seems MOST of my co-

workers

> had/ have symptoms too. I have been unable to work now for 5

months

> and the reason being is due to painful elbows and loss of muscle

> stength, I went from being " able to climb a mountain " to " un-able

to

> walk " in a matter of a few weeks. right before my muscles gave

out, I

> had what I'd call an ATTACK ON MY MENTAL STATE! a total change in

> personality, I became a sarcastic " B " , balance and gait problems,

> loss of short term memory, forgetting my passwords all the time

and

> calling for new ones, focus went out the window, I becam dyslexic,

> unable to multi-task, extreme sleepiness, chestpain just a bit

under

> the left clavicle, short weird dizzy spells w/ heart beating fast

> then skipping beats, holding my breath, whispering?? I remember my

co-

> worker asking me " why are you whispering " what was bad was, I WAS

SO

> SICK, and I DIDN'T EVEN REALIZE I WAS SICK! I't was like I was in

an

> auto-response mode, and one big nerve, and was bieng irritated by

> anything and everything and I continued this way until I BECAME

> BROKEN! I had even forgotten about the MOLD! it wasn't untill

Sept./

> Oct., while looking for causes of my newly diagnosed illness of

> Fibro, that I came across a post I had made back in Feb. regarding

> the MOLD. -- In 2004/5?(Mem. lapse, I still have horrible mem.

> prob's) I saw commercials describing Restless Leg Syndrome and

thoght

> thats what I have! but NO, it was TWITCHING which I still have. I

> also had my head start to wobble, with the Dr saying they were

> TREMORS and " SOME PEOPLE JUST GET UM " now I have BIG WOBBLES. My

knee

> hurt something fierce in 2004/5? and an MRI was done... the report

> was " Yellow fatty bone marrow leaking from my femur! I asked what

> would cause that and the Dr said " I dunno, fill out a surgery card

> and I'll scope it and take a look... HUH??? So now, I'm wondering,

do

> I have all 3 conditions? OR is it MOLD ILLNESS? I was told also I

> have Thyroid Prob's and last week told I have Asthma, my skin

itches

> all the time and constantly stings like I've been dipped in an

acid

> bath...other than that...well I could continue....

>

[Guest guest]

You have mold-all those symptoms I have had-growing worse for years-get

away from it -take CSM-maybe in a year you will start to feel better.

> and I'll scope it and take a look... HUH??? So now, I'm wondering, do

> I have all 3 conditions? OR is it MOLD ILLNESS? I was told also I

> have Thyroid Prob's and last week told I have Asthma, my skin itches

> all the time and constantly stings like I've been dipped in an acid

> bath...other than that...well I could continue....

>