Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 We have been out for 3 1/2 years and I recently concluded the same for my family--the brain problems are horrible. I know that one can get diagnosed, but I didn't know treatment is possible. Would you be willing to share that doctor's name? - > > Hello Everyone, > > We are four years out from our mold exposure and as the " dust " > settles, (if that is even completly possible) we now know what we are > left with in terms of health effect. Beside the obvilous..we can't be > around mold..very hypersensitive and have developed asthma and new > allergies what's really created choas in our lives is the brain > damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hello Family, I am so sorry to hear what your family has been through. Thank you for sharing what you have learned about Brain Damage. I am wondering what resources that you have found. You mentioned the Neurotoxicity Community. What makes up this community? Are there any e-mail list-serves or websites that you would recommend? Also, a woman had posted on this list previously a protocol that was very helpful for her neurological symptoms. It included sauna and ozone/oxygenation use. Let me know if you want me to forward the information to you. Blessings on your journey, Mandy. --- In , " hotsandonmyfeet " <hotsandonmyfeet@...> wrote: > > Hello Everyone, > > We are four years out from our mold exposure and as the " dust " > settles, (if that is even completly possible) we now know what we are > left with in terms of health effect. Beside the obvilous..we can't be > around mold..very hypersensitive and have developed asthma and new > allergies what's really created choas in our lives is the brain > damage. > We are blessed to be working with a doctor (not very known in the > mold community) but who has been studying the brain and the effects > of neurotoxins on the brain for the past 30 years. You will be > suprised but when you go outside of the mold community into the > neurosciene field, there is no one arguing that neurotoxins can alter > you brains (they alter the DNA make of your brain) and cause > irreversible damage. They call this Traumactic Brain Injury. (Note: > you do not have to had a blow to your head to have traumatic brain > injury. One of the biggest onefor us is damage to the Executive > function part of the brain. If you take the time to reseach what the > excecutive funtion part of the brain does many of you will be shock > that you have a deficiet. Nueropsych testing was the beginning to us > figureing this out but when all of us got PET scans done at UC Irvine > Brain Imaging Center and all of us had abnormal scans showing signs > of brain damage. For us that is when it hit home. This is very real. > Take the time to research this. Look up Traumatic Brain Injury or > aquired Brain injury, you will be suprised to find that you are most > likely suffering from many of the symptoms. I would be more than > happy to answer questions about this. We are having to go away from > the mold community and enter into the TBI (traumactic brain injury) > community to find answers and solutions on how to help our family > cope. There is no easy answer but there is hope that new neurons can > be created and change can occur. Just expect a new normal because the > damage is permanant, it is not irreversable. that's all for now. I > tire easy trying to put my thoughts to paper:) With much appreciation > for all the help this group has done for us, we hope to give back > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 I feel more positive about the reversal of brain damage-after a year on Cholestrymine, I felt my brain was back in good working order- livig outside and CSM got me in good shape to move from the moldy east coast to moldy NM. After exposures I can be confused for long periods, but things are much better than the first year. I believe there is research showing the brain does repair itself. There is hope, > Hello Everyone, > > We are four years out from our mold exposure and as the " dust " > settles, (if that is even completly possible) we now know what we are > left with in terms of health effect. Beside the obvilous..we can't be > around mold..very hypersensitive and have developed asthma and new > allergies what's really created choas in our lives is the brain > damage. > We are blessed to be working with a doctor (not very known in the > mold community) but who has been studying the brain and the effects > of neurotoxins on the brain for the past 30 years. You will be > suprised but when you go outside of the mold community into the > neurosciene field, there is no one arguing that neurotoxins can alter > you brains (they alter the DNA make of your brain) and cause > irreversible damage. They call this Traumactic Brain Injury. (Note: > you do not have to had a blow to your head to have traumatic brain > injury. One of the biggest onefor us is damage to the Executive > function part of the brain. If you take the time to reseach what the > excecutive funtion part of the brain does many of you will be shock > that you have a deficiet. Nueropsych testing was the beginning to us > figureing this out but when all of us got PET scans done at UC Irvine > Brain Imaging Center and all of us had abnormal scans showing signs > of brain damage. For us that is when it hit home. This is very real. > Take the time to research this. Look up Traumatic Brain Injury or > aquired Brain injury, you will be suprised to find that you are most > likely suffering from many of the symptoms. I would be more than > happy to answer questions about this. We are having to go away from > the mold community and enter into the TBI (traumactic brain injury) > community to find answers and solutions on how to help our family > cope. There is no easy answer but there is hope that new neurons can > be created and change can occur. Just expect a new normal because the > damage is permanant, it is not irreversable. that's all for now. I > tire easy trying to put my thoughts to paper:) With much appreciation > for all the help this group has done for us, we hope to give back > Quote Link to comment Share on other sites More sharing options...
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