sleeping problems

[Guest guest]

Hi Lee Ann -

I'm very new to this site but when I read your post I just had to write back.

I also have trouble sleeping because of the PA in my shoulder and hands.

After about 4 hours in bed..the pain in my back starts up too. I also have a

SNORING husband and four children (ages 14, 11, 8 and 5) so I know just what

you're going through. My Rheumatologist prescribed ATARAX for me to take at

night to help me sleep. He says it isn't a sleeping pill ... it's an

anti-histamine so it's safe to use long term. You start with a small dose

and increase the dosage as necessary. I found that I need 5 pills (10 mg

each) to get a minimum of 5-6 hours rest. Sleep is very important for busy

Moms like us so I urge you to ask your Dr. for help.

Please let me know how things turn out. Good Luck!

; - ) Rivky

[Guest guest]

Hey Lee Ann!

The heating pad thing works well for me too. I used to have a plug in type

but that made me too hot after a while of sleeping with it. Mine wasn't an

automatic turn off kind. I now use the kind where it is just a cloth bag that

you microwave. It is wonderful to sleep with, especially in the winter. It

really helps me feel comfortable. I make my own out of fleece, but you can

use flannel or just some cotton. Just sew a bag about 8inches by 12 inches

and fill it with about 2 - 3 cups of rice or flax seed or dried corn, dried

beans all of those work. Don't overfill it. It is inexpensive and will go

with you wherever without a plug. You can buy these types at craft fairs but

you really can do it yourself. Besides, the ones at the fairs have herbs and

smells that I can't stand. I find that two minutes in the microwave on high

will last for about 2 hours of heat. It feels really good on any sore areas

that you have and helps me sleep too. Also if you want to try maybe just a

Tylenol PM to see if that helps it may be an option. A long hot shower right

before bed is also one of my things.

The husband snoring thing I have had mucho experience with too. I had him

tested in a sleep study a few years back and found that, yes, he did snore

very loudly but not enough for the ins to pay for a medical intervention.

Last year he was given an hypnotic suggestion to make him stop snoring and

now he doesn't snore anymore!! It really worked! I don't know how long it

will last but it has been great! A good nights sleep goes a long way to

helping anyone feel better physically and emotionally. Four kids here too.

Seems like I have noticed a lot of people on this list with a foursome of

kids in the pack. When you have kids it usually doesn't work to " go take a

nap " .

Good luck! Happy sleeping!

Shelli

[Guest guest]

Lee Ann Walter wrote:

> does any one else have sleeping problems? I am having a terrible

> time. It seems no matter how I position myself I am just too

> uncomfortable to get a good nights sleep. To make matters worse

> my husband SNORES. Right in my ear! I hate to find another place

> to sleep - he would not like the idea either - but I am getting

> pretty tired.

> any one else have this problem?

OH YEAH!!! What helps me is that I have one ear that doesn't hear as well;

so I go to sleep on that side. My hubby has gotten easier to move, too, so

whenever I touch his shoulder or side, he turns on his side and stops the

racket. But there have been times when I've been tempted to go to another

bed or sofa.

Could you girls try ear plugs? Of course that probably wouldn't work with

little children unless you just use one. The " white noise " is a workable

idea. Our younger son uses a fan to muffle sounds outside his room. Soma

has helped me a lot in times past when I could get it. Best night's rest

ever.

I awaken several times during the night but no longer remain awake for long

periods. Part of this is due to my absolute refusal to allow myself to

'think' of anything other than some quiet place conducive to restful sleep

(imagery). In the past, I used to pray but then I'd get to thinking of all

those who needed prayers, etc. and got myself more awake. A small part of

our trouble is what goes on in our minds that disturb us. I refuse to allow

myself to dwell on what hurts, too. I know that sounds odd but it can be

done to a certain extent with the smaller hurts, not the major pain. I

guess what I'm trying to say is, I'm DETERMINED to sleep!

Looks like Margaretha has the ultimate solution. It may come to separate

beds and/or rooms one day in our house, but not just yet. I still like

snuggling against a warm body as long as he keeps his arm off my ribs.

Have you ladies discussed your difficulty with your hubbies? Mine has

learned to be more considerate even if he is asleep. In the early days, it

was all I could do to keep my corner of the blanket and there were times I

had my own, but not any more. They CAN learn new tricks.

It has begun to rain for which I'm very thankful after a long drought BUT

it's freezing onto the trees in the Pineywoods of East Texas creating a

winter wonderland that's beautiful but treacherous.

[Guest guest]

At 10:08 AM 1/27/00 -0500, you wrote:

> From: " " <>

>

> I am having a terrible

> It seems no matter how I position myself I am just too

> To make matters worse

> Right in my ear! I hate to find another place

> to sleep - he would not like the idea either - but I am getting

> I can go for two weeks or so without a good nights

> rest.

> any one else have this problem?

>

> Lee Ann

> Wife of Steve;

> Mom to: 16; Krystle 14;

> Caleb 3; 3; 1yr.

>

> hi, this is mo, i have a tough time sleeping also, rarely through the

night. taking the indocin sr about 2 hrs. before bedtime helps and also i

have a heating pad to sooth whatever aches the most...lately knees once i'm

off them. hubby snores and stops breathing and recently tested bad enough

for sleep apnea that he has a c pap machine to wear. it provides a " white

noise " benefit for me...perhaps some white noise may be of help to you .

the heating pad automatically shuts off after 2 hours. hope this

helps.........mo

>

>Please click above to support our sponsor

>

> Please visit our new web page at:

> http://www.wpunj.edu/icip/pa

>

[Guest guest]

Hi Jayne,

Do you think most people with PA struggle with sinus problems? I

have wondered if I have PA in my head! I always have sinus

troubles. I also think it could be the Sjogrens causing

problems. My lips and nose and tongue are so dry.

I know my husband would not like me not being in the same bed

with him. I put a twin bed in my 3 year old daughters room with

the intention of using it for me when my husband got too loud.

Well, my little daughter, who was still in a crib, saw that bed

and claimed it for herself! She refuses to get into that crib!

I have to say that I am very happy about that. I finally got her

potty trained this month and now she is in a big girl bed! She

is doing so well!!

But now I am back to wondering where I can go when the snoring

gets too loud!

Lee Ann

-----Original Message-----

From: sherman.fam@... [mailto:sherman.fam@...]

Sent: Thursday, January 27, 2000 12:27 PM

[Guest guest]

> hi, this is mo, i have a tough time sleeping also, rarely

HI Mo,

The heating pad is a good idea. I use Ben Gay too. I like the

smell. It clears my sinuses! And the heat feels good!

My husband needs to get checked out too. I am sure he is not

getting a restful nights sleep because his snoring wakes even HIM

up! And I poke him every once in a while to get him to turn onto

his tummy. c pap machine - is this a machine that forces air

into the nostrils?

Lee Ann

[Guest guest]

>>>I'm very new to this site but when I read your post I just had

Hi Rivky,

That you for the information. I do think from your post and the

others that it is time for me to ask for something to help me at

night. 4 hours is just not enough sleep! I can not easily take

a nap during the day either. If I do I have an even harder time

falling asleep at night.

Lee Ann

[Guest guest]

Just about a month ago I bought a heated mattress pad. What a fabulous

device! It really helps with my aching joints and muscles. I love it.

Patty

[Guest guest]

Lee Ann,

> The heating pad is a good idea. I use Ben Gay too. I like the

> smell. It clears my sinuses! And the heat feels good!

I use Vicks to help my nose and sinuses, especially to keep them from drying

out.

Patty Bacon in the Pineywoods of East Texas

[Guest guest]

I have used the " Chi " teas. They also work well for me.

Sheryl

[ ] Sleeping Problems

> I just thought of some more possible sleep aids. One is a product I

> heard of on the CFS list. It's 'Seacure " made from fish. Take it about

> an hour before dinner.

>

> The other is a device called the " Chi Machine " . There's much discussion

> of them on the symphonic list. I've ordered one;figured it will help my

> body detoxify and assist with lymph drainage. They can help with sleep.

>

> Phil

>

>

>

>

[Guest guest]

Hi Phil,

Where might I find Seacure? This is something I haven't tried.........

Chinese Herbalist?

Or could I find it in a Health Food store?

I also have never tried a Chi Machine..........what is that exactly........

Thanks,

Connie nwnj

Leave no stone unturned.......and ask questions!

[Guest guest]

Hi Sheryl,

What are Chi Teas? Chinese herbal teas?, containing, sleep inducing,

calming herbs?

Connie

Leave no stone unturned.......and ask questions!

[Guest guest]

Dear Connie,

Have you ever checked out www.immunesupport.com ? The supplements and

vitamins are actually aimed toward ME/CFS and FM, but perhaps they have

something that you have not tried yet. They categorize them as sleep aids,

energy, etc.

You can have them send you a catalog and/or order online. If this is a

duplicate, please accept my apology, fog is heavy, sleep has been not so

good (temporary), and just got a new puter so can't even check my sent

item folder!!

I am praying that you will find something soon, perhaps I should send you my

rubber mallet, lol?

Sending Hugs (((((Connie))))) and zzzzzzzzzzzzzzz's,

Michele (with no signature yet :-(

[Guest guest]

Connie,

Yes they are calming teas, sorry I spelled it wrong before, it's Chai Teas.

Check out www.chaitea.com. I hope they help.

Sheryl

Re: [ ] Sleeping Problems

> Hi Sheryl,

> What are Chi Teas? Chinese herbal teas?, containing, sleep inducing,

> calming herbs?

> Connie

> Leave no stone unturned.......and ask questions!

>

>

>

>

[Guest guest]

Connie

See my previous post about 'Seacure " The " Chi machine " you can find by

doing a search on the internet. The " sun harmony " is a MLM product.

There are others I'm told just as good but cost less. I'm buying mine

from a natural practioner I working with. Also E bay auctions them.

You can also sign up on the symphonic health list at for

more discussion. That group focuses more on energetic medicine.

Here are some machine sites:

http://allaboutmassagers.com/omassagers.html

http://www.chimachinenow.com/?source=goto

Phil

conniek wrote:

> Hi Phil,

> Where might I find Seacure? This is something I haven't tried.........

>

> Chinese Herbalist?

> Or could I find it in a Health Food store?

> I also have never tried a Chi Machine..........what is that

> exactly........

> Thanks,

> Connie nwnj

> Leave no stone unturned.......and ask questions!

[Guest guest]

In a message dated 10/7/01 10:08:26 AM Pacific Daylight Time,

jkeuning@... writes:

> My sons sleeping problems were caused by hypoglycemea. Restricting sugars

> did wonders for us. He went from waking 6 or 7 times a night to just once in

> a week.

>

>

>

>

>

,

What is hypoglycemea? He doesn't eat alot of sugar stuff..I don't like

feeding him alot of fatty/sugary foods cause don't want him to have weight

problems like me and dad..thanks for any information about hypoglycemea..take

care,

Sue..

[Guest guest]

Hi, I used to have sleeping problems also. I have a ton of pillows on my bed

and a down comforter. Sometimes I have two or three comforters piled on top

of eachother. In order to get to sleep I don't take naps any more like I used

to and avoid any caffeine after 5:00. Chamomile helps also. I let my Beagle

sleep on my legs. All the pillows and deep pressure on top is a sensory

thing. Christy

[Guest guest]

Hi Coleen,

You touched on a few points I forgot...the chills and fever at night

drive me batty! Never connected the switch to chills beginning with

the " drifting off, " necessarily, but I still alternate between sweats

and chills all night. My head is always drenched at night, even with

my short hair. I wear brushed cotton nities, and my chest is always

drenched. THEN I get cold. I often have to change nities during the

night.

You also mentioned the cramps...I'll get foot cramps that can spread

up the leg and contract the calf muscles til I think it will split!

The only way to relieve it, I've found, is to get out of bed QUICKLY

and press the foot flat on the floor...put my whole weight on that

leg until the spasms stop. Hasn't happened in awhile, but it's murder

when it happens. That's another reason for sleeping on top of the

covers, so I don't get tangled trying to get out of bed.

Also, even in winter when it can get cold, I HAVE to have one leg out

for ventilation. Otherwise I'll get too hot.

Sorry to hear about your flu. I thought mine was flu at first (lots

of people here in the Dallas/Ft. Worth area seem to be having it),

but mine was definately bronchitis. Was almost afraid it was on the

verge of going into pneumonia, but thank goodness it didn't. We're

having a lot of ozone stuff in the air, and high pollen counts.

I'd sure hate to have to buy TWO a/c units, but with the summer it

looks like we're going to be having, it's better to be safe than

sorry later. Cheaper on the electric bill, too, with new units, I'll

bet.

Let us know how the rife works for you.

Love ya,

Rose

> Rose,

> Quite a bit of what all it takes for your sleeping " cocoon " is very

> simular to mine. Only my body is half and half, better keep bottom

half

> cool whereas top half gets the cold chills. Another weird thing is

when

> I am having a problem getting to sleep I stay hot all over but when

I

> start the drifting off to sleep THAT is when the chills start. AS

long

> as I lay there and no sleep coming, no chills, but as soon as sleep

is

> coming, chills, isn't that weird! Right now its a flannel sheet

covering

> all body except for that part of the bad leg from ankle length to

foot

> that has to be uncovered yet other normal leg likes covered.

Needless to

> say no longer can a covering be tucked in anywhere. IF that part of

the

> leg gets warm its charlie horse cramps and " windmilling " I call it

as it

> gets restless and looks like a windmill to me. I have a piece of a

> quilted bedspread I made, it rests on other side of bed so when, at

that

> last moment I am drifting to sleep I can pull it on the top half.

over

> the sheet blanket.

> By the way I finally got a copy of test report from the Bowen Lab

in Fl

> and its very positive for Lyme. I have been in the process

of " getting "

> my house in order, easy to maintain and easy to cook without moving

> around too much and will now start rifing I needed the house easy

to

> maintain because I know just how sick I am going to be for the next

year

> at least I imagine. The two co-infections they test for were Nada

but

> then I had treated myself on Rife for babesia last Spring and

Summer.

> Why the chills and nite sweats are still around?

> Just got thru spending a very miserable week, got the flu that is

late

> coming in Texas and central A/C went out at same time PLUS I was

trying

> to get ready for oldest son and family coming for a week.

> Daughter-in-law took my credit card, got two window units, middle

son

> got one installed, it was working pretty good until central heat

blower

> came on at 2pm and left me sitting in front of one window unit until

> after 9pm for two nites, blower stayed on, blowing hot air, until I

> threw a " hissy " fit and youngest son came over, went in attic and

got it

> turned off. I got second window until in Friday nite and oldest son

> arrived Sunday nite and needless to say nothing to done for his

coming

> to visit. Mind you this entire time flu is raging on, Dr prescribed

> Zithramax so was also doing a herx thingie, finally last Thursday

temp

> stayed away with no medication.

> I take nothing for sleep since I have never found any medication

that

> doesn't leave me with a drug hangover.

> Coleen

[Guest guest]

Rose,

I know how the Rife works on me. I have just taken a much too long break using

it for Lyme is all, just have been getting the house bare or at least easy to

care for, easy to cook, etc because I

know after the treatment I am going to herx enough I won't be doing much for at

least3-4 days, hopefully not much longer since I watch my grandsons, they will

leave Fridays at 3pm, I will rife and

hope by Tues morning I am once again able to watch them, they are very little

trouble for me but I do need to be able to get around and not fall asleep.

Mainly the herx is extreme fatigue and

weakness.

I do have one advantage with the sleeping problem that I haven't heard anyone

else mention. IF I eat a big meal, its all I can do to get the plate used from

the table to the sink before falling

asleep-hence a baked potato can bring on enough sleepiness to get me there. OF

course that's not so handy in the daytime when I am watching the boys and can't

lay down.

Coleen

toil_for_lyme wrote:

> Hi Coleen,

> You touched on a few points I forgot...the chills and fever at night

> drive me batty! Never connected the switch to chills beginning with

> the " drifting off, " necessarily, but I still alternate between sweats

> and chills all night. My head is always drenched at night, even with

> my short hair. I wear brushed cotton nities, and my chest is always

> drenched. THEN I get cold. I often have to change nities during the

> night.

>

> You also mentioned the cramps...I'll get foot cramps that can spread

> up the leg and contract the calf muscles til I think it will split!

> The only way to relieve it, I've found, is to get out of bed QUICKLY

> and press the foot flat on the floor...put my whole weight on that

> leg until the spasms stop. Hasn't happened in awhile, but it's murder

> when it happens. That's another reason for sleeping on top of the

> covers, so I don't get tangled trying to get out of bed.

>

> Also, even in winter when it can get cold, I HAVE to have one leg out

> for ventilation. Otherwise I'll get too hot.

>

> Sorry to hear about your flu. I thought mine was flu at first (lots

> of people here in the Dallas/Ft. Worth area seem to be having it),

> but mine was definately bronchitis. Was almost afraid it was on the

> verge of going into pneumonia, but thank goodness it didn't. We're

> having a lot of ozone stuff in the air, and high pollen counts.

>

> I'd sure hate to have to buy TWO a/c units, but with the summer it

> looks like we're going to be having, it's better to be safe than

> sorry later. Cheaper on the electric bill, too, with new units, I'll

> bet.

>

> Let us know how the rife works for you.

> Love ya,

> Rose

>

>

> > Rose,

> > Quite a bit of what all it takes for your sleeping " cocoon " is very

> > simular to mine. Only my body is half and half, better keep bottom

> half

> > cool whereas top half gets the cold chills. Another weird thing is

> when

> > I am having a problem getting to sleep I stay hot all over but when

> I

> > start the drifting off to sleep THAT is when the chills start. AS

> long

> > as I lay there and no sleep coming, no chills, but as soon as sleep

> is

> > coming, chills, isn't that weird! Right now its a flannel sheet

> covering

> > all body except for that part of the bad leg from ankle length to

> foot

> > that has to be uncovered yet other normal leg likes covered.

> Needless to

> > say no longer can a covering be tucked in anywhere. IF that part of

> the

> > leg gets warm its charlie horse cramps and " windmilling " I call it

> as it

> > gets restless and looks like a windmill to me. I have a piece of a

> > quilted bedspread I made, it rests on other side of bed so when, at

> that

> > last moment I am drifting to sleep I can pull it on the top half.

> over

> > the sheet blanket.

> > By the way I finally got a copy of test report from the Bowen Lab

> in Fl

> > and its very positive for Lyme. I have been in the process

> of " getting "

> > my house in order, easy to maintain and easy to cook without moving

> > around too much and will now start rifing I needed the house easy

> to

> > maintain because I know just how sick I am going to be for the next

> year

> > at least I imagine. The two co-infections they test for were Nada

> but

> > then I had treated myself on Rife for babesia last Spring and

> Summer.

> > Why the chills and nite sweats are still around?

> > Just got thru spending a very miserable week, got the flu that is

> late

> > coming in Texas and central A/C went out at same time PLUS I was

> trying

> > to get ready for oldest son and family coming for a week.

> > Daughter-in-law took my credit card, got two window units, middle

> son

> > got one installed, it was working pretty good until central heat

> blower

> > came on at 2pm and left me sitting in front of one window unit until

> > after 9pm for two nites, blower stayed on, blowing hot air, until I

> > threw a " hissy " fit and youngest son came over, went in attic and

> got it

> > turned off. I got second window until in Friday nite and oldest son

> > arrived Sunday nite and needless to say nothing to done for his

> coming

> > to visit. Mind you this entire time flu is raging on, Dr prescribed

> > Zithramax so was also doing a herx thingie, finally last Thursday

> temp

> > stayed away with no medication.

> > I take nothing for sleep since I have never found any medication

> that

> > doesn't leave me with a drug hangover.

> > Coleen

>

>

>

[Guest guest]

I've been finding that the timing of supplements make a BIG difference in

Sonja's ability to go to sleep, and sleep through the night. For a while I was

giving her the B supplements (B2, B5 & B6) in the afternoon, since this is when

she has her biggest meal. Well, she would stay awake 2-4 hours longer -

sometimes past 11:00, and would wake up during the night as well in a silly

state.

It took me a while to figure this out, but remembering how hyper she used to

get with SNT (which is high in B's), I made a point of giving the majority of

once-a-day supplements, including minerals, in the morning. Now she's falling

asleep at 7:30 again - it made a huge difference. Something to try before

medicating, although she still needs melatonin and clonidine.

[Guest guest]

I have found that within a week or so of stopping Allie's Super Nu-

Thera night wakings begin. I'm wondering about pyroluria

Debi

[Guest guest]

Questions about Sleep Apnea. Has anyone in this group had a sleep study

done and found to have sleep apnea and use the sleep mask at night? I have had

it all done ,tested positive and Dr. recommended I use the air flow machine.

Said it will help me sleep, protect me and I will feel more refreshed in the

AM.

Sue

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

I had a sleep study and have been on c-pap for five

years. Yes, the machine will help you sleep once you

get used to wearing a mask. One thing I stopped

having was night mares and night terrors. I guess it

was my unstable sleep causing such horrid dreams and

all. When I wear my mask, I don't have all that

terror and bad dreams. If you have apnea, you really

need to use the machine.

If I can help in any way, feel free to shoot me an

e-mail.

--- ssr3351@... wrote:

> Qustions about Sleep Apnea. Has anyone in this

> group had a sleep study

> done and found to have sleep apnea and use the sleep

> mask at night? I have had

> it all done ,tested positive and Dr. recommended I

> use the air flow machine.

> Said it will help me sleep, protect me and I will

> feel more refreshed in the

> AM.

>

> Sue

>

>

>

> **************************************See AOL's top

> rated recipes

>

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Joan,

I had those extreme muscle spasms at night and I finally started taking

1,000 mg. of Calcium before I went to bed. That pretty much stopped the

spasms. However, your chronic fatigue is most probably a Lyme symptom or

related to sleep apnea (which I also have).

Sometimes we just have to sleep a lot and not do as much, even though it can

be disconcerting. I've often taken naps, and when I was first diagnosed with

Lyme, I was too tired to work for two weeks. (Which is what drove me to ask

my MD to do a battery of tests, including Lyme).

So ask your LLMD if it's a herx or the usual Lyme symptoms. I wish I had

more help for you. The only thing that has saved me in the past has been

caffeine. I have often been able to function because of coffee or black tea

(which used to make me too jittery, but not now).

We have a complicated illness. I hope you have family or friends that can

wash some dishes for you, etc. Be gentle with yourself.

Janet

[Guest guest]

I've had some luck with Adderall or the generic from the misdiagnosis of ADHD.

Ask your doctor for trial.

> From: Joan <joanadams@...>

> Subject: [ ] Sleeping problems

>

> Date: Wednesday, February 4, 2009, 12:25 AM

> Does anyone else need 12 to 15 hours sleep a night?

> I

> just wish I

> could stay awake and up long enough to clean up the house.

> Right now, I

> do good just to keep the laundry up. Help! Something has

> to wake me up

> and get/keep me going.