Re: Digestive System

[Guest guest]

Hirschsprung's Disease.

In a message dated 12/26/2007 10:31:35 A.M. Mountain Standard Time,

dewardjohnson@... writes:

Hi all I hope everyone had a great Christmas. Tomorrow Isabella goes for

her 1 year old check up. We had noticed awhile ago that she has trouble with

her bowels. At the DS clinic they gave us GlycoLax to put in her bottle

every day and this does help. They thought maybe it was because her formula

had

iron. She is now on milk and it has not improved. I am still adding

GlycoLax to the milk. Is there anything that they should be checking her for

as far

as her digestive system?

I also had to share this. Isabella gave us a wonderful Christmas present.

She was singing in church every time the choir started to sing, she started

to sing, as she held her arms up in the air. This had everyone around her

smiling. She also took 5 steps by herself. She was holding on to the coffee

table as always, she turned around and grabbed her little walker toy. She then

proceeded to walk to the dining room pushing her toy. This is the first

time she did that. We were so excited!

Sue

Isabella's 1 year old

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[Guest guest]

WAY TO GO ISABELLA!? Enjoy this time Sue, I had to listen to Karlee on the High

School Musical Karoke Mach. all day yesterday!? Needless to say, I was happy to

do so :>)???

On the other note, if it is constipation problems you are having, I gave Karlee

NutriveneD Digestive Enzymes when she was a baby, so I'm not sure if she would

have had problems or not.? I can tell you she never had any problems, but it

could have been from the NutriveneD Vitamin regimen.? She eats lots of green

salad and grapes and apple juice now, so we don't have a problem.?? Your call,

but the NutriveneD worked great for us.

Good Luck,

Beets, Mommy to Karlee, 8, mds and Eli 3, a stinker!

Digestive System

Hi all I hope everyone had a great Christmas. Tomorrow Isabella goes for her 1

year old check up. We had noticed awhile ago that she has trouble with her

bowels. At the DS clinic they gave us GlycoLax to put in her bottle every day

and this does help. They thought maybe it was because her formula had iron. She

is now on milk and it has not improved. I am still adding GlycoLax to the milk.

Is there anything that they should be checking her for as far as her digestive

system?

I also had to share this. Isabella gave us a wonderful Christmas present. She

was singing in church every time the choir started to sing, she started to sing,

as she held her arms up in the air. This had everyone around her smiling. She

also took 5 steps by herself. She was holding on to the coffee table as always,

she turned around and grabbed her little walker toy. She then proceeded to walk

to the dining room pushing her toy. This is the first time she did that. We were

so excited!

Sue

Isabella's 1 year old

[Guest guest]

I don't know if it has anything to do with the MDS or not but, has a milk

and egg allergy. When we found out about it, we took him off everything with

milk and egg and three days later, he was totally potty trained. For him, it

wasn't a matter of didn't want to go on the potty, he couldn't physically

control his bowels.

Digestive System

Hi all I hope everyone had a great Christmas. Tomorrow Isabella

goes for her 1 year old check up. We had noticed awhile ago that she has

trouble with her bowels. At the DS clinic they gave us GlycoLax to put in her

bottle every day and this does help. They thought maybe it was because her

formula had iron. She is now on milk and it has not improved. I am still

adding GlycoLax to the milk. Is there anything that they should be checking her

for as far as her digestive system?

I also had to share this. Isabella gave us a wonderful Christmas present. She

was singing in church every time the choir started to sing, she started to sing,

as she held her arms up in the air. This had everyone around her smiling. She

also took 5 steps by herself. She was holding on to the coffee table as always,

she turned around and grabbed her little walker toy. She then proceeded to walk

to the dining room pushing her toy. This is the first time she did that. We

were so excited!

Sue

Isabella's 1 year old

[Guest guest]

Sue

I am so excited to hear that Isabella is walking! That is so fantastic!

There are many reasons for digestive problems in people with MDS. You should

go to http://www.ds-health.com/ to read up on the common digestive issues she

could have.

Good Luck!

Kristy

dewardjohnson@... wrote:

Hi all I hope everyone had a great Christmas. Tomorrow Isabella goes

for her 1 year old check up. We had noticed awhile ago that she has trouble with

her bowels. At the DS clinic they gave us GlycoLax to put in her bottle every

day and this does help. They thought maybe it was because her formula had iron.

She is now on milk and it has not improved. I am still adding GlycoLax to the

milk. Is there anything that they should be checking her for as far as her

digestive system?

I also had to share this. Isabella gave us a wonderful Christmas present. She

was singing in church every time the choir started to sing, she started to sing,

as she held her arms up in the air. This had everyone around her smiling. She

also took 5 steps by herself. She was holding on to the coffee table as always,

she turned around and grabbed her little walker toy. She then proceeded to walk

to the dining room pushing her toy. This is the first time she did that. We were

so excited!

Sue

Isabella's 1 year old

[Guest guest]

Sue -

has also had digestive problems - been on gycolax and Lorelax (sp?) -

now she is fine - but I make sure she has plenty of veggies (which she

loves) and some prunes which are very sweet and she likes them as much as

other fruit - so now no mediction for the GI stuff. I also make sure she

gets 100% juice or Natures Harvest which is 100% fruit and veggie juice (my

son will NOT drink it but she likes it)

Darlene - Mom to (11) and (8)

> Sue

> I am so excited to hear that Isabella is walking! That is so fantastic!

>

> There are many reasons for digestive problems in people with MDS. You

> should go to http://www.ds-health.com/ to read up on the common digestive

> issues she could have.

>

> Good Luck!

> Kristy

>

>

> dewardjohnson@... <dewardjohnson%40comcast.net> wrote:

> Hi all I hope everyone had a great Christmas. Tomorrow Isabella goes for

> her 1 year old check up. We had noticed awhile ago that she has trouble with

> her bowels. At the DS clinic they gave us GlycoLax to put in her bottle

> every day and this does help. They thought maybe it was because her formula

> had iron. She is now on milk and it has not improved. I am still adding

> GlycoLax to the milk. Is there anything that they should be checking her for

> as far as her digestive system?

>

> I also had to share this. Isabella gave us a wonderful Christmas present.

> She was singing in church every time the choir started to sing, she started

> to sing, as she held her arms up in the air. This had everyone around her

> smiling. She also took 5 steps by herself. She was holding on to the coffee

> table as always, she turned around and grabbed her little walker toy. She

> then proceeded to walk to the dining room pushing her toy. This is the first

> time she did that. We were so excited!

> Sue

> Isabella's 1 year old

>

>

[Guest guest]

Just my two cents about the constipation issue . . . my oldest has MDS and was

always constipated. Once we got the diagnosis I thought it was MDS related.

However, my next 2 kids were also always constipated. My kids would eat

HANDFULS of straight prunes and it wouldn't even phase them! The Dr. put my son

on Mirolax, but by the time I got that perscription he grew out of it (around

the time he started potty training). My daughter also grew out of it once she

started using the potty. Our new Dr. told me it's fairly common with kids and a

lot of them grow out of it around 2 or 3, when they start potty training. So, I

would definitely keep trying different things, lots of fluids and fiber, but

just watch it and if it's not too bad she may just grow out of it.

IMDSA newsletter Editor

Mom to Aidan (MDS) 5, a 4, 23 months

Need to brag?? It's not to late to send in a brag for our next newsletter!

Just email a short paragraph, along with a picture (jpeg or bitmat format) to me

at slpbjones@.... All submissions must be received by January 15th to be

in the Feb.1st newsletter. Send in your brag and let your little one SHINE!!

Re: Digestive System

Sue -

has also had digestive problems - been on gycolax and Lorelax (sp?) -

now she is fine - but I make sure she has plenty of veggies (which she

loves) and some prunes which are very sweet and she likes them as much as

other fruit - so now no mediction for the GI stuff. I also make sure she

gets 100% juice or Natures Harvest which is 100% fruit and veggie juice (my

son will NOT drink it but she likes it)

Darlene - Mom to (11) and (8)

On Dec 26, 2007 4:45 PM, Kristy Colvin <imdsapresident@ imdsa.com> wrote:

> Sue

> I am so excited to hear that Isabella is walking! That is so fantastic!

>

> There are many reasons for digestive problems in people with MDS. You

> should go to http://www.ds- health.com/ to read up on the common digestive

> issues she could have.

>

> Good Luck!

> Kristy

>

>

> dewardjohnson@ comcast.net <dewardjohnson% 40comcast. net> wrote:

> Hi all I hope everyone had a great Christmas. Tomorrow Isabella goes for

> her 1 year old check up. We had noticed awhile ago that she has trouble with

> her bowels. At the DS clinic they gave us GlycoLax to put in her bottle

> every day and this does help. They thought maybe it was because her formula

> had iron. She is now on milk and it has not improved. I am still adding

> GlycoLax to the milk. Is there anything that they should be checking her for

> as far as her digestive system?

>

> I also had to share this. Isabella gave us a wonderful Christmas present.

> She was singing in church every time the choir started to sing, she started

> to sing, as she held her arms up in the air. This had everyone around her

> smiling. She also took 5 steps by herself. She was holding on to the coffee

> table as always, she turned around and grabbed her little walker toy. She

> then proceeded to walk to the dining room pushing her toy. This is the first

> time she did that. We were so excited!

> Sue

> Isabella's 1 year old

>

>

[Guest guest]

it is strange you mentioned that because my doctor said the same

thing. She is not too concerned because she does go. The strange thing is that

things work for awhile and then stop. Like prunes will work for a week then it

won't. Cantalope worked for about two weeks and then stopped. She is on

gycolax and it seems to be working. She eats all of her fruits and veggies

really well and I am hoping she will grow out of it I just keep my eye on the

situation. Thank you and all of you for answering my question.

Sue

--------- Re: Digestive System

Sue -

has also had digestive problems - been on gycolax and Lorelax (sp?) -

now she is fine - but I make sure she has plenty of veggies (which she

loves) and some prunes which are very sweet and she likes them as much as

other fruit - so now no mediction for the GI stuff. I also make sure she

gets 100% juice or Natures Harvest which is 100% fruit and veggie juice (my

son will NOT drink it but she likes it)

Darlene - Mom to (11) and (8)

On Dec 26, 2007 4:45 PM, Kristy Colvin <imdsapresident@ imdsa.com> wrote:

> Sue

> I am so excited to hear that Isabella is walking! That is so fantastic!

>

> There are many reasons for digestive problems in people with MDS. You

> should go to http://www.ds- health.com/ to read up on the common digestive

> issues she could have.

>

> Good Luck!

> Kristy

>

>

> dewardjohnson@ comcast.net <dewardjohnson% 40comcast. net> wrote:

> Hi all I hope everyone had a great Christmas. Tomorrow Isabella goes for

> her 1 year old check up. We had noticed awhile ago that she has trouble with

> her bowels. At the DS clinic they gave us GlycoLax to put in her bottle

> every day and this does help. They thought maybe it was because her formula

> had iron. She is now on milk and it has not improved. I am still adding

> GlycoLax to the milk. Is there anything that they should be checking her for

> as far as her digestive system?

>

> I also had to share this. Isabella gave us a wonderful Christmas present.

> She was singing in church every time the choir started to sing, she started

> to sing, as she held her arms up in the air. This had everyone around her

> smiling. She also took 5 steps by herself. She was holding on to the coffee

> table as always, she turned around and grabbed her little walker toy. She

> then proceeded to walk to the dining room pushing her toy. This is the first

> time she did that. We were so excited!

> Sue

> Isabella's 1 year old

>

>