random babbling about something said earlier

[Guest guest]

Please forgive me for forgetting who said this earlier.Today is the anniversary

of my fathers passing and mom and I have had zero company or calls and needless

to say its been an off day for my mind.But someone mentioned earlier in a new

years wish that hopefully they find better meds for this disease in the coming

year.

Well it got me to thinking and wondering why its been such a slow process in

the research for this particular disease.What can we do?What can I do?A big fear

of mine is coming on this group in ten years and reading a post from a hopeless

caregiver who hasnt left the house in days, and there lo is slowly wasting away

before them.And they feel secluded and hidden from the rest of society and

inside they just scream HELLO...WERE STILL HERE EVERYONE.

Before I go any further dont worry about me, Im not overly depressed or

anything Im just speaking of some of the feelings that unless one is a caregiver

they just dont understand.But you all do.Thats why I love it here.Here Im not an

alien or an outcast.Here Im part of the family.

I remember a while back reading a post about Kathie lee Gifford and her lo had

suffered with Dementia.I also read something about rock legend Neil Young's

father dying of the disease.Not sure if either one had lbd.I wish there was a

mega celebrity that would/could put a face on this disease and speak out.Make

the world know that much needs to be done.Give us all some hope if not for our

own los maybe for the future sufferers.

When I was 8 my biggest fear was the boogeyman.Wow how things change over

time.Now im most afraid of being helpless.Not sure who all are rock fans here,

but theres a Who song called " My Generation " , theres a line that stays in my

mind from that song constantly. " Hope I die before I get old " .Because as a cna,

over time Ive noticed that the biggest thing you see in a persons eye as you try

to help them is the feeling of complete shame that they have to be taken care of

by another human.I feel there pain every time I see that look.My heart cries for

them.

Again, dont worry about me, Im fine, I know that there will be a time in the

future when I have to get outside help with mom.I have told myself that when

that time comes I will except it.Im not there yet.Im here and ready to keep on

keeping on.Whatever it takes and no matter how long.Sorry for the endless

babbling tonight.Hope all is well. Ron

RON

---------------------------------

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[Guest guest]

Ron,

It was '98 when I picked Mom up at the hospital and brought her to my house.

The wheels grind slowly. It has been almost 10 years and there is now at least

a diagnosis!

What we get in the next 10 years may not be much better and we know the #'s are

going to increase 10 fold in that period of time.

I wish for the same thing as you. And I hope we don't have to wait another 10

years.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

random babbling about something said earlier

Please forgive me for forgetting who said this earlier.Today is the anniversary

of my fathers passing and mom and I have had zero company or calls and needless

to say its been an off day for my mind.But someone mentioned earlier in a new

years wish that hopefully they find better meds for this disease in the coming

year.

Well it got me to thinking and wondering why its been such a slow process in

the research for this particular disease.What can we do?What can I do?A big fear

of mine is coming on this group in ten years and reading a post from a hopeless

caregiver who hasnt left the house in days, and there lo is slowly wasting away

before them.And they feel secluded and hidden from the rest of society and

inside they just scream HELLO...WERE STILL HERE EVERYONE.

Before I go any further dont worry about me, Im not overly depressed or

anything Im just speaking of some of the feelings that unless one is a caregiver

they just dont understand.But you all do.Thats why I love it here.Here Im not an

alien or an outcast.Here Im part of the family.

I remember a while back reading a post about Kathie lee Gifford and her lo had

suffered with Dementia.I also read something about rock legend Neil Young's

father dying of the disease.Not sure if either one had lbd.I wish there was a

mega celebrity that would/could put a face on this disease and speak out.Make

the world know that much needs to be done.Give us all some hope if not for our

own los maybe for the future sufferers.

When I was 8 my biggest fear was the boogeyman.Wow how things change over

time.Now im most afraid of being helpless.Not sure who all are rock fans here,

but theres a Who song called " My Generation " , theres a line that stays in my

mind from that song constantly. " Hope I die before I get old " .Because as a cna,

over time Ive noticed that the biggest thing you see in a persons eye as you try

to help them is the feeling of complete shame that they have to be taken care of

by another human.I feel there pain every time I see that look.My heart cries for

them.

Again, dont worry about me, Im fine, I know that there will be a time in the

future when I have to get outside help with mom.I have told myself that when

that time comes I will except it.Im not there yet.Im here and ready to keep on

keeping on.Whatever it takes and no matter how long.Sorry for the endless

babbling tonight.Hope all is well. Ron

RON

---------------------------------

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