Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Welcome !! I hope this place is a comfort, constant support, and resource to you, as you are NOT alone. We all care about each other, and are blessed to be there FOR each other. The journey may be hard and long, but knowing someone is there to say, " take my hand, we will walk with you " is comforting to say the least. I'm Peg! ( grandma to Raven, Age 4 MDS, and Kendra, age 7, Gavin, age 5, and Lil' Larry, age 18 mos.) We'll be here ;-) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Hi Everyone We have a new member joining us today. Here is what had to say.. I am a disability support worker in Australia in a respite house and am wanting to find out more information on mosaic Down syndrome. Welcome to our family ! I am so glad you have joined us! Please feel free to ask any questions you have. We will be happy to share our experiences with you. Kristy Colvin IMDSA President www.imdsa.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Hi , It is nice that you want to find out more about mds. Sue Isabella's mom (1) -------------- Original message -------------- Hi Everyone We have a new member joining us today. Here is what had to say.. I am a disability support worker in Australia in a respite house and am wanting to find out more information on mosaic Down syndrome. Welcome to our family ! I am so glad you have joined us! Please feel free to ask any questions you have. We will be happy to share our experiences with you. Kristy Colvin IMDSA President www.imdsa.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Welcome , Ellen and family! I'm so glad you found IMDSA and this support group. Both are a wealth of knowledge and information! My name is and I'm the Newsletter Editor for IMDSA. I'm also the mom of a 5-year old son, diagnosed with MDS when he turned 2. Just to let you know, we have an online newsletter, MOSAIC WORLD that comes out quarterly for our paid members (only $25 a year!). The newsletter is full of info and tips from professionals and parents, as well as the latest research and IMDSA news. To find out more go to www.imdsa.com to register today! Our next issue comes out February 1st so don't delay! If you ever have any questions pertaining to the newsletter you can email me directly at slpbjones@.... IMDSA Newsletter Editor Mom to Aidan (5) MDS, a 4, 23 months Re: Welcome ! that is so nice that you are finding out information to help your friend. This group for me has given me so much insight into my daughter, I hope this helps your friend. Mosaic DS comes with a lot of the same things that DS comes with yet on the other hand it is so different. I have found that even at the DS clinic they do not know what to make of my daughter, so the group has been so helpful. Being a first time mother I sit and wonder is that the MDS or is it just her? Is this what a typical child does or is it because she has MDS? More and more I find that it is just what a typical child would do or learn with a few obsticals. I do find myself working with Isabella much more than I probably would have if she was not dianosised because I want to make sure she has every opportunity she can. This is really working out well. Isabella does not know boby parts (lol) (the rest of the group will get that), but she can pick out of a book a pig, dog, cat, cow and chicken. Te ll your friend that the extra effort in game playing will really pay off. She has also learned a few bad things on her own such as; if I use my hand to cover something that she wants she trys to Bite my hand to get me to move it. Yep we are now working on not biting. Anyway welcome to the group and feel free to ask questions. You are a wonderful friend! Sue Isabella's mom (1) ------------ -- Original message ------------ -- From: Kristy Colvin <imdsapresident@ imdsa.com> Hi Everyone We have a new member joining us today. This is what had to say... My best friend's son, 22 months, has mosaic Down syndrome. I'm trying to help her gather and understand information that can help her and her son. Welcome to our family ! I am so glad you have joined us. What an awesome friend you are! I know your friend must really value your friendship and all of your help! Please feel free to ask any questions you may have here. We will all be very happy to share our experiences with you! Kristy Colvin IMDSA President Mom to Arron 26, 22, Tim 21 MDS, Stevan 20 and Garrett 11 www.imdsa.com Quote Link to comment Share on other sites More sharing options...
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