Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 , Thank you so much for writing! I loved reading your story and hope you will tell us all more as time goes by! Judie, mom to Christi, 29 and others ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Hi ...I am so glad you found us!!! I loved reading your story and am so interested to hear more about your life!!! I hope you will consider coming to our next conference. You are a great inspiration to all of us!!! Ross Mom to 10, 6 MDS, and Kirk 4 **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Thank you for introducing yourself !! I love to hear what is possible for our children. Hearing your story, gives me hope that nothing is out of reach for my daughter if she gives it all she's got. Thank you for sharing! (mom to 2, MDS) In a message dated 1/10/2008 5:00:23 P.M. Eastern Standard Time, lflan35@... writes: Hello, I wanted to introduce myself. My name is Flanagan and at age 3 I was diagnosed with MDS. I'm not 37 (almost 38) years old. Life hasn't always been easy but I don't think life would have been any easier without the mds. When I was diagnosed the doctors told my parents they didn't know what I was possible of doing. Their suggestion was put me in a state school. I was enrolled in Early Childhood Education at age 3. I wasn't mainstreamed until the third grade. My cells were affected approximately 50%. It didn't matters any better that when I was bornI was brain damaged . I wasn't breathing for about 6 minutes. Along with the Early Childhood Education I was also in speech therapy for at least 4 years. Spring forward to the late 1980's. I have graduated from High School. I am a fully functioning adult that lives on her own. Has a full time job, down and drives her own car and I'm even going to college and also have a long term boyfriend. =) Anything is possible. Are there others like me out in this world? I would love to talk with others my age or anyone else with MDS. I hope to hear from you soon =) Flanagan **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Welcome . Your story gives us a lot of hope. Our little Adam is only 5, but I sure hope he is able to be as successful as you are in the future. Keep writing to us. Donna - gram to Adam 5 mds, Skylar 5 and Mia 1 lflan35@... wrote: Hello, I wanted to introduce myself. My name is Flanagan and at age 3 I was diagnosed with MDS. I'm not 37 (almost 38) years old. Life hasn't always been easy but I don't think life would have been any easier without the mds. When I was diagnosed the doctors told my parents they didn't know what I was possible of doing. Their suggestion was put me in a state school. I was enrolled in Early Childhood Education at age 3. I wasn't mainstreamed until the third grade. My cells were affected approximately 50%. It didn't matters any better that when I was bornI was brain damaged . I wasn't breathing for about 6 minutes. Along with the Early Childhood Education I was also in speech therapy for at least 4 years. Spring forward to the late 1980's. I have graduated from High School. I am a fully functioning adult that lives on her own. Has a full time job, down and drives her own car and I'm even going to college and also have a long term boyfriend. =) Anything is possible. Are there others like me out in this world? I would love to talk with others my age or anyone else with MDS. I hope to hear from you soon =) Flanagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Thanks for the warm welcome. I plan on sticking around. I have a question have those with mds ior the people that take care of them, have ya'll had a lot of health problems? I have glaucoma, scoliosis, bleeding ulcer, ovarian cysts.........No on in my family has glaucoma (which is usually hereditary) as well as scoliosis. It makes me wonder if there are gene mutations if problems arise later on? Thanks a bunch ! =) > Welcome . Your story gives us a lot of hope. Our little Adam is only > 5, but I sure hope he is able to be as successful as you are in the future. > Keep writing to us. > Donna - gram to Adam 5 mds, Skylar 5 and Mia 1 > > lflan35@... wrote: > Hello, > I wanted to introduce myself. My name is Flanagan and at age 3 I > was diagnosed with MDS. I'm not 37 (almost 38) years old. Life hasn't > always been easy but I don't think life would have been any easier > without the mds. When I was diagnosed the doctors told my parents they > didn't know what I was possible of doing. Their suggestion was put me > in a state school. I was enrolled in Early Childhood Education at age > 3. I wasn't mainstreamed until the third grade. My cells were > affected approximately 50%. It didn't matters any better that when I > was bornI was brain damaged . I wasn't breathing for about 6 minutes. > Along with the Early Childhood Education I was also in speech therapy > for at least 4 years. > > Spring forward to the late 1980's. I have graduated from High School. > I am a fully functioning adult that lives on her own. Has a full time > job, down and drives her own car and I'm even going to college and > also have a long term boyfriend. =) > > Anything is possible. > > Are there others like me out in this world? > > I would love to talk with others my age or anyone else with MDS. > > I hope to hear from you soon =) > Flanagan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 I am glad you are with us! We do have several individuals on here who have MDS themselves, so hopefully they will speak up here! One site that I have found very helpful is http://www.ds-health.com/ This site gives lots of information on Down syndrome. Currently, we are working with several researchers to get more information on mosaic Down syndrome (you are welcome to also visit our website www.imdsa.com for more on those research studies). Because people with MDS share the extra 21st chromosome found in Down syndrome we look at the info on Down syndrome to find similarities for health conditions. I do not know about glaucoma, but I do think that can be related to MDS. And, scoliosis has been a hot topic on our support group here lately because many here have scoliosis. (I do too, but I don't have MDS) Welcome to our family! Kristy Colvin IMDSA President Mom to Arron 25, 22, Tim 21 MDS, Stevan 20 and Garrett 11 lflan35@... wrote: Thanks for the warm welcome. I plan on sticking around. I have a question have those with mds ior the people that take care of them, have ya'll had a lot of health problems? I have glaucoma, scoliosis, bleeding ulcer, ovarian cysts.........No on in my family has glaucoma (which is usually hereditary) as well as scoliosis. It makes me wonder if there are gene mutations if problems arise later on? Thanks a bunch ! =) > Welcome . Your story gives us a lot of hope. Our little Adam is only > 5, but I sure hope he is able to be as successful as you are in the future. > Keep writing to us. > Donna - gram to Adam 5 mds, Skylar 5 and Mia 1 > > lflan35@... wrote: > Hello, > I wanted to introduce myself. My name is Flanagan and at age 3 I > was diagnosed with MDS. I'm not 37 (almost 38) years old. Life hasn't > always been easy but I don't think life would have been any easier > without the mds. When I was diagnosed the doctors told my parents they > didn't know what I was possible of doing. Their suggestion was put me > in a state school. I was enrolled in Early Childhood Education at age > 3. I wasn't mainstreamed until the third grade. My cells were > affected approximately 50%. It didn't matters any better that when I > was bornI was brain damaged . I wasn't breathing for about 6 minutes. > Along with the Early Childhood Education I was also in speech therapy > for at least 4 years. > > Spring forward to the late 1980's. I have graduated from High School. > I am a fully functioning adult that lives on her own. Has a full time > job, down and drives her own car and I'm even going to college and > also have a long term boyfriend. =) > > Anything is possible. > > Are there others like me out in this world? > > I would love to talk with others my age or anyone else with MDS. > > I hope to hear from you soon =) > Flanagan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Welcome , My name is Sylvia Wormley and I am the Family Connect Coordinator for IMDSA. I live in Arizona with my husband and 2 kids. My son is 8 years old and was diagnosed 50% affected at birth. He has been mainstreamed since Kindergarten and is now in second grade. I can only hope he will succeed in life as you have! I would like to invite you to sign up with the Family Connect Program. You can be connected with other people who have MDS or other families in your area. Here is the direct link if you would like to sign up. <https://imdsa.dabbledb.com/page/onlinerenewalsupdates/0cf18f89-a719-43fd-b2 62-304294f36bb1> online form Feel free to contact me at worms62@... if you have any questions! Sylvia Wormley Family Connect Coordinator _____ From: MosaicDS [mailto:MosaicDS ] On Behalf Of lflan35@... Sent: Thursday, January 10, 2008 2:59 PM To: MosaicDS Subject: I have MDS! =) Hello, I wanted to introduce myself. My name is Flanagan and at age 3 I was diagnosed with MDS. I'm not 37 (almost 38) years old. Life hasn't always been easy but I don't think life would have been any easier without the mds. When I was diagnosed the doctors told my parents they didn't know what I was possible of doing. Their suggestion was put me in a state school. I was enrolled in Early Childhood Education at age 3. I wasn't mainstreamed until the third grade. My cells were affected approximately 50%. It didn't matters any better that when I was bornI was brain damaged . I wasn't breathing for about 6 minutes. Along with the Early Childhood Education I was also in speech therapy for at least 4 years. Spring forward to the late 1980's. I have graduated from High School. I am a fully functioning adult that lives on her own. Has a full time job, down and drives her own car and I'm even going to college and also have a long term boyfriend. =) Anything is possible. Are there others like me out in this world? I would love to talk with others my age or anyone else with MDS. I hope to hear from you soon =) Flanagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Dear , thank you so much for sharing about yourself with the group. As a mother of a daughter with mds it is so comforting to hear from an adult woman like yourself, and to know that you have a very full life. Yes you are right when you said you are not sure if life would have been any easier without mds. Everyone has their struggles, but it is so wonderful to hear how you have overcome yours. God Bless and keep us posted. --- lflan35@... wrote: > Hello, > I wanted to introduce myself. My name is > Flanagan and at age 3 I > was diagnosed with MDS. I'm not 37 (almost 38) years > old. Life hasn't > always been easy but I don't think life would have > been any easier > without the mds. When I was diagnosed the doctors > told my parents they > didn't know what I was possible of doing. Their > suggestion was put me > in a state school. I was enrolled in Early Childhood > Education at age > 3. I wasn't mainstreamed until the third grade. My > cells were > affected approximately 50%. It didn't matters any > better that when I > was bornI was brain damaged . I wasn't breathing > for about 6 minutes. > Along with the Early Childhood Education I was also > in speech therapy > for at least 4 years. > > Spring forward to the late 1980's. I have graduated > from High School. > I am a fully functioning adult that lives on her > own. Has a full time > job, down and drives her own car and I'm even going > to college and > also have a long term boyfriend. =) > > Anything is possible. > > Are there others like me out in this world? > > I would love to talk with others my age or anyone > else with MDS. > > I hope to hear from you soon =) > Flanagan > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
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