new to group

November 5, 2003

Hi Topper,

Yes thats what she said. What and how serious is a cysts? No I asked for a copy and they acted as if they did not want to give them to me. I think what I am going to do is go pick up my medical records and get my own copy. And yes, she was definetely clueless. She really couldn't answer any of my questions,

-- Re: New to Group

Benign... no cancer.... that is good. Multiple nodes and cysts?

Did you mean hyper or hypo? Your systems usually indicate hypo (underactive) thyroid not hyper (overactive thyroid).

Did you get a copy of your labs? If not, ask for them and then post the results here, along with the ranges... we'll give you a heads up on what the numbers say... A LOT of docs are clueless.....

Topper ()

On Wed, 5 Nov 2003 22:00:30 -0500 (Eastern Standard Time) " W." writes:

Good evening everyone. I recieved a message on my answering machine today but I am not sure what she is talking about. Excuse me if I spell something wrong, but she said my biopsy came back banine, or something like that. Then she said it had multiple nodulars, and something about being sisted. I am so confused, and when I went to my appointment, they acted as if I was getting on my nerves when asking them questions. She also stated that I wasnt hyper. I have no clue what that means. And when I told her about my tiredness and how I keep gaining weight and not loosing no matter what I do or eat, she kept referring back to my tests. But I don't care what my bloodwork says. I know how I feel. I think maybe I might have to just pay out of my pocket and go get a second opinion. This is frustrating.....

August 17, 2004

Welcome to the group Kim. Sorry that you have Fibro and suffering with

this horrid disease. You have found an amazing group of wonderful,

loving, caring, and supportive people here. Not to mention humorous. I

hope you get everything you need from this group and it's right for you.

As for getting insurance to pay for a therapeutic bed, I had my doctor

write the name of the bed he wanted me to use as a prescription. I

submitted that along with the receipt and the insurance company covered

it. Good luck with that. I use the ObuseForm therapeutic bed for bad

backs and it's been good so far. Yet I still have those days that the

bed feels like no matter what position I'm in... it's uncomfortable...

then there are the days where it feels like heaven on earth. I have yet

to figure out what makes it feel so different on certain days.

welcoming hugs,

Norah

Norah Bleazard - Burlington, Ontario Canada

www.bleazard.net ~ www.janorlites.com

E-MAIL=

norah.fibroyahoo@...

CHAT=

MSN = black_dak_98@...

Yahoo = drazaelbn

AIM = black98dak

ICQ = 105346330

Fibromites_Fighting_Weight:

http://groups.yahoo.com/group/Fibromites_Fighting_Weight

http://fibromites.ath.cx

Kim wrote:

>Kim here in Tennessee,

>I am newly diagnosed with fibro, autoimmune thyroiditis and possible

>rheumatiod arthritis (my RH factor is borderline positive).

>

>I was curious if anyone had had any luck getting their medical

>insuror to purchase a specialty bed for them, such as a Select

>Comfort, Nautilus, etc. I tried out a Select Comfort bed last week at

>a friend's house, and it was so comfortable and did not hurt any of

>my pressure points.

>

January 5, 2012

I always recommend this book regardless of the situation because it helped me a lot, The Five Love Languages by Chapman. The advice in it is relevant across a wide variety of circumstances I think. From: aspires-relationships [mailto:aspires-relationships ] On Behalf Of Donna GreenSent: Thursday, January 05, 2012 1:40 PMTo: aspires-relationships Subject: New to group Hello, my name is Donna. I am new to this listserv. Only this week have I discovered that there is a strong possiblity that my husband has AS. It is a relief in a way because it helps me explain the difficulties we have had over the years. I am 66 years old and my husband is 69. We've been married 48 years and it has not been easy to say the least. I came from a dysfunctional family: my parents divorced when I was 9, my mother remarried when I was 12, and the second marriage was rocky to say the least. Basically, I say all this to let you know that I grew up having no idea how a husband and wife should relate to one another, so I assumed our difficulties were my fault and I'm sure many were because I do have low self-esteem. Knowing my husband most likely has AS unburdens me. I feel like shouting " It's not my fault! " Does that seem riduculous? I wish I could go back to the beginning of our marriage and start over, but since that's impossible I need help for the future. So many questions and thoughts are running through my mind. Could someone suggest a book for me to read to help me cope with the future? Any help would be appreciated. I want the rest of our life together to be good-not just 2 people living in the same house. Donna

-----------------------------------------

January 5, 2012

Donna Green wrote:

> Hello, my name is Donna. I am new to this listserv. Only this week have I

> discovered that there is a strong possiblity that my husband has AS. It is a

> relief in a way because it helps me explain the difficulties we have had over

> the years. I am 66 years old and my husband is 69. We've been married 48 years

> and it has not been easy to say the least.

Welcome! ...You've come to The Right Place.

My wife (69 near-70) and I (79 near-80) have been married 45 years, the

last half dozen or so (post-dx) almost blissful.

However, our first 40-odd years were largely very unhappy for us both -

a slow death spiral really, diving toward divorce. But we fixed it.

My previous 10-year marriage did end in divorce, but produced three

" kids " all now over 50. My present wife and I have no children together.

-Bill ...AS, retired geneticist

--

WD " Bill " Loughman - Berkeley, California USA

http://home.earthlink.net/~wdloughman/wdl.htm

January 6, 2012

, thank you for your suggestion. Already the information I have been reading in the posts have been helpful.

Donna

To: aspires-relationships Sent: Thu, January 5, 2012 3:25:32 PMSubject: RE: New to group

I always recommend this book regardless of the situation because it helped me a lot, The Five Love Languages by Chapman. The advice in it is relevant across a wide variety of circumstances I think.

From: aspires-relationships [mailto:aspires-relationships ] On Behalf Of Donna GreenSent: Thursday, January 05, 2012 1:40 PMTo: aspires-relationships Subject: New to group

Hello, my name is Donna. I am new to this listserv. Only this week have I discovered that there is a strong possiblity that my husband has AS. It is a relief in a way because it helps me explain the difficulties we have had over the years. I am 66 years old and my husband is 69. We've been married 48 years and it has not been easy to say the least.

I came from a dysfunctional family: my parents divorced when I was 9, my mother remarried when I was 12, and the second marriage was rocky to say the least. Basically, I say all this to let you know that I grew up having no idea how a husband and wife should relate to one another, so I assumed our difficulties were my fault and I'm sure many were because I do have low self-esteem.

& ! nbsp;

Knowing my husband most likely has AS unburdens me. I feel like shouting "It's not my fault!" Does that seem riduculous? I wish I could go back to the beginning of our marriage and start over, but since that's impossible I need help for the future. So many questions and thoughts are running through my mind.

Could someone suggest a book for me to read to help me cope with the future? Any help would be appreciated. I want the rest of our life together to be good-not just 2 people living in the same house.

Donna

-----------------------------------------

January 6, 2012

Bill, thank you for your reply. You give me hope. Things haven't been going smoothly, but this will give me understanding and hopefully I can forgive some behaviors that have been hurtful. For example,when my mother was dying and I was taking care of her, I got very little support from him, and he was there only for the funeral. My daughters had to tell him what to do and when to come. That hurt, but now maybe I can understand and forgive. When you have been married this long, there are a lot of good memories with the bad. We have 2 daughters and 3 grandchildren. There is too much to lose to give up on our marriage.

Donna

To: aspires-relationships Sent: Thu, January 5, 2012 5:59:31 PMSubject: Re: New to group

Donna Green wrote:> Hello, my name is Donna. I am new to this listserv. Only this week have I> discovered that there is a strong possiblity that my husband has AS. It is a> relief in a way because it helps me explain the difficulties we have had over> the years. I am 66 years old and my husband is 69. We've been married 48 years> and it has not been easy to say the least.Welcome! ...You've come to The Right Place.My wife (69 near-70) and I (79 near-80) have been married 45 years, the last half dozen or so (post-dx) almost blissful.However, our first 40-odd years were largely very unhappy for us both - a slow death spiral really, diving toward divorce. But we fixed it.My previous 10-year marriage did end in divorce, but produced three "kids" all now over 50. My present wife and I have no children together.-Bill ...AS, retired geneticist-- WD "Bill"

Loughman - Berkeley, California USAhttp://home.earthlink.net/~wdloughman/wdl.htm

March 5, 2012

I am new to this. I'm going to have to learn it all. I am here because I think

my husband has AS. My Mom died almost 4yrs ago when I was 4months pregnant and

newly married. I have struggled with depression ever since. My husband has

always been quiet and very focused on work. I guess I didn't realize to what

extent until Mom my go to support system was gone. All this time I just thought

he was being an asshole and ignoring me and blowing off my problems as if they

don't matter. He rarely talks about anything other than bills,dinner,

disciplining the kids etc. We don't have one on one back and fourth

conversations. He says his mind goes blank and he doesn't know what to say. He

says that since I talk to people at work all day long that should be enough. its

not. I love him and he has a very sweet side and good heart when he wants to

show it. That's the part of him I love. He's not been diagnosed with AS but

after reading about it I really think it makes sence. I'm just at the end of my

rope and tired of running into a brick wall over and over again with no change.

We are both in counseling seperatly. He just started. He was reluctant but I

told him I couldn't be here anymore if he doesn't change something. He's happy

to sit silently next to me holding my hand for hours watching tv. But I need an

emotional connection. I'm getting some with friend's from work but I want it

with my husband. I'm just so sad, lonley and lost. I'd love hearing any advice

on what to do. I'm trying to stick it out but its getting so hard.

Leah

March 5, 2012

Hi Leah.....

Welcome to aspires. There are a lot of good people on here, some of which I am

sure have been in your shoes and could offer sound advice to you. I haven't

been there, but welcome you to the group.

>

> I am new to this. I'm going to have to learn it all. I am here because I think