Re: Tell me there's hope

[Guest guest]

At 06:17 PM 5/23/1999 -0000, debh@... wrote:

>I've been reading all the postings over the last few days. I have to say

I'm a bit discouraged by some of what I've read. I play softball and love

roller coaster rides. I figured I was just going to have to put all that on

hold for this summer >only until they get me fixed. Is this not the case?

Our stance at WACMA is that it would be wise to avoid potential neck or

head trauma if possible. Rollercoasters are certainly ill-advised, but

softball is more of a personal call. Maybe if you're alert to the dangers

of trauma, then you could take precautions and go have fun.

That's all it comes to: we just need to be a wee bit more cautious than

other people. This doesn't mean we need to stop living. Alcohol is also

ill-advised for chiarians, but that doesn't stop me from going on the

occasional bender. I know it's not smart, but what the hell. I wouldn't go

on a fast amusement park ride though, no matter how drunk I was. I guess

others may avoid alcohol, but will go on rides. C'est la vie and que sera,

etc.

No one's saying what you can and can't do - we're just saying what's the

more logical choices. Then you can do whatever you want. Just don't say we

didn't warn you :-) I don't expect too much sympathy if I get drunk and

fall on my head.

ronny

World ACM Association http://www.pressenter.com/~wacma

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[Guest guest]

I've been reading all the postings over the last few days. I have to say I'm

a bit discouraged by some of what I've read. I play softball and love roller

coaster rides. I figured I was just going to have to put all that on hold for

this summer only until they get me fixed. Is this not the case?

I was diagnose with Chiari in March. I've had symptoms since last September.

I am currently being treated with a variety of medications, none of which

seem to be working. I am scheduled to see a neurosurgeon on June 3rd to see

what to do next. I was hoping that life would go back to normal at some

point. Can you shed some light on this?

Thanks,

Deb

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Hi, my name is Marti. I know of your dicouragement, I too loved roller

coasters & riding horses & working at my sole acomplishment towards using my

passion for animals as a career as a vet tech! I know have realized that I

must amend my paths. I have started, since the depression season is lifting,

to dream of other ways I can do things I love!

I know it stinks & the views of chiari are constantly evolving but, truth be

known how would it feel if you could have walked one more day only if you

hadn't been jerked around by that loopdy loop?

I had to start realizing I can still be thrilled I just have to be open to

the experience.

I was told it could be dangerous to ride seeing as I have a certain

connection with problem horses better yet the ones whom most do not

understand or don't have the patients for at that particular time. But, if I

concentrate on not riding & how that brakes my heart, miss out on the fact

that I can still connect with them. Wow this writing it out makes me feel so

much better.

Anyway, keep your smile close at hand! And realize that it is better to know

what you can prevent even if it means we need to find other ways to enjoy our

dreams & passions!

lots of Hugs!!!

Marti

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