Re: New to the Group/Charla

January 9, 2008

Dear Charla,

You have been through a lot with your fater. He is very fortunate to have you

and your husband caring for him. Your poor unfortunate father to have both LBD

and PSP Symptoms. I have heard they are very similar, but different. Robbin

Riddle on this site has a lot of information on PSP.

You have done an honorable thing by letting your father know that it is okay

to let go. I am sure it was very hard for you to do.

Know that we are here for you whenever you need to reach out.

Take Care, Jan

Charla wrote:

Hello and Good Evening;

My name is Charla and I am 45 years old. My father has LBD and PSP. He was

diagnosed a little over a year and a half ago. My husband and I sold our

house which was 2 1/2 hours away from my home town and moved in with my dad

to take care of him because I was not going to put him in a NH. His disease

has progressed and the last few days he has been sleeping a lot. I have

told him it is okay to let go and I asked him if he was holding on for me

and he shook his head yes. I told him not to. I love my dad very much and

this has been a up and down roller coaster ride from the beginning. I'm

really not ready to say goodbye, but he has no quality of life anymore as he

is totally incontinent and has been for months and can no longer walk or

stand on his own. I just wish he still had his mind. He has worked so hard

all of his life and next week he will be 78 years old. He is a strong man

and a fighter which shows as last October the Neurologist said he had 3

months to live if he was lucky, he has surpassed that by far and although he

has had bad days before; this seems different. He has aspirated more and he

has to have all food pureed and liquids thickened to honey consistency.

Hope to gain some peace through all of this.

Blessings,

Charla

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